Hey , Anybody heard from Suzane ?

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MIKEL99
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Date Joined Feb 2010
Total Posts : 914
   Posted 7/31/2010 10:14 AM (GMT -7)   
I noticed she's not on Facebook anymore , I know she said she was going to her Mom's for awile but she said she'd be back . She wasn't feeling good at all when she left , she was very depressed . I'm really hoping she's ok , anybody got any news on her ? Mikel

Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 7/31/2010 10:27 AM (GMT -7)   
Mikel...

I haven't heard from her either - I was concerned, too. I didn't notice the FB thing, though, until you mentioned it... that's weird, too. Anyway, hopefully she's just taking a needed break and such. Please let me know if you hear anything, Mikel, and thanks for being a good friend to us all here.

Suzane, if you read this - we miss you and hope you are doing ok...!

--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/31/2010 11:14 AM (GMT -7)   
Oh my goodness....I have been feeling so cruddy, I had not realized she had not been on. She was going through so much pain and still made the time for us here! I hope she is doing ok....keep us updated....anyone!

On another note....how are you feeling Mikel?

Hugs,
Beckey
***Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement***Fibromyalgia***TMJ***GERD***Severe Depression***VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uteru****Possible RA***

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

MIKEL99
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Date Joined Feb 2010
Total Posts : 914
   Posted 7/31/2010 11:59 AM (GMT -7)   
Hey Beckey , I'm actually doing ok , just dealing with annoyances right now , I'm itchy and don't know why , I got a slight rash on my stomach and leg , a very smasll area but it itches . Since the cellulitus went away my knee hurts much less some days not al all . I have to get a tooth pulled , and I'm paying $2200.00 to get other teeth fixed . Even my hip only hurts in certain positions but I still need the rolator to walk which is annoying . But as far as pain goes its much less than it was for sure , I think eating right , juicing and taking vitiamins and anti-oxidents has helped tremendously . My last t-cell count was 395 the highest its been in a year , thats why I haven't really posted my pain isn't really chronic anymore except for the hip and even thats bearable . But I'm always interested in supporting the folks here who are in more serious situations because coming here got me thru my worst times .I've always received caring support here from day one and I love everyone here , I think I'll always check in here i feel so close to everyone .And I still have surgery to come as well , I'm going on thursday for a pre-surgery check out ,hope they give me a date , its these annoyances that may delay it , but I hope not . Thanks for asking Beckey , how are you doing ? Lots of Love Mikel

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/31/2010 12:40 PM (GMT -7)   

Hello Mikel and Mom. I have put in a call to tmjpain's husband, as I too have been alarmed at her absence as well.

We have Skyped several times prior to her going to stay with her mother. While I can not give out details, I can tell you that she has been suffering more than I have ever seen her, to the point that she cut off the video feed on Skype, and would only chat by voice. It has not been fun to see a person that you have bonded with and love, suffer this way.

It worries me terribly, but I have been down this road with her many times before. We all, can only hope and pray that all is well with her and to think positive. Suzane is a special woman and has a wonderful husband. My wife and I have visited with them both several times by video Skype and had a wonderful time of it.

I will post more as soon as I know anything. I know that you both have been in contact with her as well, as she talks of you both often. Thank You for being there for her. It is so greatly appreciated by both her husband and Suzane.

 

      SE


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/31/2010 12:44 PM (GMT -7)   
 
   This is only a guess, but I would venture to say that she may be staying longer at her mothers. I do have a number for her mother, so I will try to give it a jingle tonight, if I can find it.
 
     SE

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/31/2010 2:21 PM (GMT -7)   
Michael...

That's what I think, too (her being @ her mom's)... but I also do think she's struggling :( If you get through to her, tell her I'm thinking of her... Anyway, I'll e-mail her, too.

Thanks for checking on things. Hope you are doing ok :)

--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/31/2010 2:52 PM (GMT -7)   
Hey Michael , how're you doing ? I hope your well man . Suzane said she was going to her Mom's for sure , but it was supposed to be for like a week and she didn't sound well at all . Her head was not in a good place at all and I'm very concerned for her , thats for sure . Her state of mind was very bad and she was feeling hopless and helpless , so please do try to get through tp contact her , I'm hoping she just extended her stay as well but I'll be worried until I hear something . I hope your ok bro , nice hearing from you , take care of yourself my friend . Mikel

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/31/2010 3:49 PM (GMT -7)   
OK! Just got off the phone with Suzan's mother! All is well! She stayed with her mother for a few days, and then seemed to turn a corner for the better, and felt like she could go camping with her husband.
She will be back sometime this next weekend. Her mother knew quite well who I was and the Healing Well organization I was talking about.

As Mikel has said, she has been in a very dark place in her mood and mind. The pain is unbearable at times, and I can tell you first hand that it is more often than not, in her case.
She is a delightful woman, and was a wonderful nurse, when she was able to work. This is something she misses greatly, and especially the children she worked with.

Suzane really needs the comfort of someone being with her most of the time, but it is difficult, as her husband works long hours to make ends meet. Her mother does come to stay when she can,
but it is difficult for her as well. I have spent many a night visiting with her by skype or text until the wee hours of the morning, giving comfort where I can. She is in so much pain at times,
that she rolls back and forth in bed.

Many of the good members here, such as Mikel and Tina, have also supported her whenever they can. I'm sure there are more of you here on the forum that have done the same, and she has mentioned it to me several times.
She is very grateful for this! Suzane has a very short term memory because of her headache problem, so she tends to repeat questions often. I assure here, that we all understand and not to worry what anyone thinks.

I will post more when I speak to her this next week, or she may be able to post a reply for herself.

Tina! I pulling for you!....and you too Mikel! I miss so many of the members here and hope to be back soon.
I seem to have turned a corner on the 26th of this month, and now see some light at the end of the tunnel.
Right now I'm still very cautious of my recovery, as I have had several disappointments.

Dani, you are doing a fine job! ....and Chartreux!...you always seem to bring a smile to my face :)
Pete! ...you work way too hard....but now look who's talking...as I have worked 6 weeks straight, 7 days a week with only one day off, for my Father in-laws funeral.


I hope to be back to support members again in about 30 days or so. Until then!...you all take care!


SE

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/31/2010 4:22 PM (GMT -7)   
Thank you SE for filling us in! She is such an incredible lady and I just can't imagine dealing with that kind of pain all the time! I do not deal well with headaches at all and to have to deal with the kind of pain she as and still be so willing to jump in and help others shows just how amazing she is!! She was always quick to answer me even as a real newbie!

SE, I am happy to hear that there is some light for you.....sending healing thoughts and prayers your way!

Tina hope you are having a LPD also! Take care of you!

My dear friend Mikel, I made a note on my calendar for Thursday....so I will be waiting to hear how your appointment goes! I will be sending good thoughts and prayers your way! Glad to hear that T-cell count is up there and you are feeling better!! Just because you feel better does not mean you don't post, however, this is still your family and we love and miss ya'! Don't forget that! I can undertand how annoying the itching is....I hate to itch!! I have sensitive skin and tend to itch a lot...it drives me crazy at times!! Hang in there hun and take care of you!

My stuff has not changed a lot...doing a little better, and that I am thankful for! I am still just kind of in a holding pattern, waiting to get some sort of dx! I have figured out that it pretty much the way this stuff works....hurry up and wait! The biggest problem I have is Lack of Patience....ask my husband! Still just hurting quite a bit and sleeping when I can and waiting! Doing my best to deal with it all and keep my head up! I will be okay though! Thanks!

Take care everyone!
Hugs,
Beckey
Purple Text***Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement***Fibromyalgia***TMJ***GERD***Severe Depression***VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uteru*****Possible RA***

Blue TextMedications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/31/2010 6:30 PM (GMT -7)   
Hey thanks a lot Michael , thats great news , I was very worried about Suzane , she is such a sweet and gentle soul , I'm very happy to hear she not only ok but feeling a little better . Hang in there Michael you've shown the kind of determination necessary to overcome your challenges , I wish you continued sucess and hope you return here as soon as you can . Beckey Girl your doing great , I know its hard to be patient I'm not great at it either but to hear that you are feeling a bit better is wonderful news to me , every bit helps .I'm going to see a dermatologist about the itching , it is a pain in the a** for sure, I'll definetly let you know how it goes thursday , thanks for remembering my good friend , you are a Sweetie ! Tina ithanks for the update you are doing fantastic , and it'll be over soon , you rmaternal instincts are off the charts , your in the home stetch now and the finish line is in sight . You've done an amazing job ,, take good care of you and those litlle girls !! Love To All , Mikel

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/31/2010 6:58 PM (GMT -7)   
Thanks Mikel for starting this thread, and SE for the update! I too noticed that I hadn't heard from Suzane in a while (we usually check on each other via email), but this week especially has been so crazy that I didn't have a chance to pursue the matter. I'm glad everything is okay. I worry about her because she is in so much pain & can't seem to find any relief!

Skeye

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 8/6/2010 9:16 PM (GMT -7)   
I am back. And now have tears in my eyes after reading all the posts. Thank you for caring so much about me. I am honoured to call you all my friends, my healing family.
As Michael has mentioned, we are always in touch with each other on a daily basis. The month of July was quite terrible for me, not only in pain but the depression was quite severe and I was becoming suicidal that I could not be left alone and hence went to my mother's. I could not do a thing, not make any decisons, not pack my clothes, worried about going on holidays, I just couldn't do it anymore. So my mom said at my side for five days trying to change my spirits. Hubby came to get me to go on holidays, camping and the only thing that got me there was that I wouldn't be alone, I would be with him. So the first few days were difficult but i started moving around a bit each day, a walk around the campsite, a short bike ride and I have pulled out of that deep hole. I pray that I can maintain my spirit now as we are back home and hubby will be back to work. Unfortunately my headaches have remained high and I just kept ice on my head. We kept them in business at the front office buying bags of cubed ice everyday. I would put some in a baggy and then put my velcro wrap around my head.
So please forgive me for not posting. I was in such a bad way, I just couldn't come on here and talk about my state of mind. I cried all day every day, I don't even know how i got thru the day. I want to be here to offer support to all of you in a better way and hope I can continue to now. I love you all for being there for me.
Thank you to all of you for posting here, to Tina and Mikel, I will respond to your emails this weekend and to my special buddy Michael, well you know how I feel!!!!!!
 
Love and hugs
   
SUZANE
      
 Chronic daily headaches
 Started in  2000
 Done it all
 No options left
 
Motto:One Day At A Time
 
           

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/6/2010 9:45 PM (GMT -7)   
Suzane....

SO good to hear from you. We were worried about you - but know we all understand better than anyone... So don't apologize! I've told you before that I've been in that horrible place before, not thinking I would pull out of a deep hole. I'm SO glad that your mom was able to be there for you. I still pray for a miracle for you - and that, somehow/someway, you'll wake up one day and be healed.

Just e-mail me when you can, no rush. Just take care of yourself, and know we are here and that we care - and that you are loved, Suzane!

Praying for you... --Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/6/2010 9:48 PM (GMT -7)   
Mikel, Beckey, SE/Michael, Suzane, everyone -

Thanks for the kind thoughts re: me and the girls! I appreciate it so much... the support and encouragement has kept me going all these LONG weeks! Won't be too long now...

Love, Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/7/2010 2:06 AM (GMT -7)   
Yes, She is back! :) We had a good Skype session last night! I had her laughing so hard, I thought she would wet her Pantz! :)

This is what HW is all about. Lots of good caring members here! Suzane is such a lovely person, and very clever with humor when she is feeling well.
The woman actually picks on my Redneck personality!

We are so glad that you are back, and truly hope you have good days ahead in the weeks, months, and years to come.

And....please give those poor stuffed animals a break and lift your head off of them every once in a while! :)

Yea...that's right!....Suzane does not use pillows for her head!....She has all sorts of stuffed animals to rest her weary head on! :)

Hang in there!.....we will always be there for you! :)

To all...... Thank You for being there for her as well! You all are the best!

SE:)
"Respect your fellow human being, treat them fairly, disagree with them honestly, enjoy their friendship, explore your thoughts about one another candidly, work together for a common goal and help one another achieve it."

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 8/7/2010 6:40 PM (GMT -7)   
Suzane, did you ever check into that head wrap I sent you information on? Just wondering if you had tried it, and if it had helped at all.

Glad you're in a brighter place.

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Carpal Tunnel Syndrome (both wrists), Reynauds, IBS, Scar Tissue/Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/7/2010 6:44 PM (GMT -7)   
Suzane,

I am so glad to hear from you & to learn that you are okay. I was quite worried about you! As always, you are in my thoughts and prayers.

hugs,
Skeye

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 8/7/2010 6:47 PM (GMT -7)   
No I have not yet. I still need to show it to my husband.

Well unfortunately it's been such a terrible day. The pain has me in tears and beyond belief again. What to do???? I feel like it is going to blow up!!!

Thank you to Michael and Linda for getting me thru the day. Man oh man, what would I do without you dear people!!

Let's hope tomorrow can be better.

Hope you are all having a low pain weekend.
   
SUZANE
      
 Chronic daily headaches
 Started in  2000
 Done it all
 No options left
 
Motto:One Day At A Time
 
           
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