Anyone switch to Diludid (some type of extended dosage?)

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Regular Member

Date Joined Apr 2008
Total Posts : 38
   Posted 8/2/2010 10:27 PM (GMT -6)   
My doctor wanted me to stop my fentanyl patches and take an extended diludid? I don't know what it is and how it works anyone have any thoughts on this? Thanks :)
2002 Carpal Tunnel Surgery, Plantar fasciitis, Migraines / Daily Headaches, 2005 Gastric Bypass surgery (200 lb weight loss), 2006 Hernia repair (due to wls), one week later complications and an emergency surgery Bowel obstruction, March 2008 another Hernia repair, chronic back and leg pain all over muscle pain (doctors say it's related to fast weight loss and loss of laxity in muscles etc, Nerve damage / pain in back legs and arms / hands, herniated discs and spinal stenosis in lower back, high blood pressure, anemia, allergies. Recently had 3 miscarriages and now back on several medications and getting mirena / IUD soon.

Have been on so many different medications! Currently 75mg Fentaynal patch, 1200 mgs Neurontin 3xday, Immitrex as needed, Avapro, Prozac 80 mgs, percocet for break through pain as needed, Skelaxin as needed, Zanaflex (at night to sleep and muscle Relaxer), topamax, Xanax as needed and I think that might be it hehe

If you would like to keep in touch with me on twitter my name is butterflyz0033, please let me know your from Healing well :)

Regular Member

Date Joined Jul 2008
Total Posts : 329
   Posted 8/2/2010 10:31 PM (GMT -6)   
I was recently switched to the new extended release (Exalgo) and its not something I would recommend to others. It has given me wicked headaches every night when I take it as well as making it hard to fall asleep fully, I stay in a consious state but cannot move my body which is really scary!)
However, normal dilaudid has none of these side effects for me and works pretty well so I must not react well to the ER stuff in it...

Its just dilaudid with a formula to make it a once a day dosage.

Hysterectomy at 25 : Fell down stairs 3 days after4 laproscopic surgeries since 24

Cervical Stenosis between C 2 and C6 and two buldging disks located C2/3 and C4/5

Meds - Embeda 20mg 2x per day: Dilaudid 2-4 mg every 4-6hrs::Amrix 15mg 1x day: Pristiq 50mg 1x day


In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 8/3/2010 12:10 PM (GMT -6)   
Dilaudid is a potent pain med for sure , its in the class of oxycontin and morphine .Why did your doctor switch you to it ? Did he give you any reason ? I'm guessing the extended means time release , I've never used it but there are side effects to every med unfortunately . Good luck I hope your pain lets up . Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . Awaiting hip replacement surgery .

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 8/3/2010 6:06 PM (GMT -6)   

The extended Dilaudid is a pretty new medication (I think a few months old); I haven't been on that... but I've been on Dilaudid (instant release) for a couple of years. It is a stronger medication, but so is fentanyl - which you are on so... Dilaudid is the brand name for hydromorphone. Medication is a hit or a miss, as you probably know :) so what might work well for some, doesn't for others, etc... even re: side effects.

Just curious as to why you are switching from the fentanyl - are you having problems w/ it? Just wondering... I hope the extended Dilaudid works for you.. since it's new, I'd be curious to hear what you think of it. Keep us update - and good luck!

Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)
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