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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/3/2010 12:42 AM (GMT -7)   
I wish I had good news for you all, but I don't.  It's 2:40am and I have been up since 1 with horrible pain.  Tried everything to bring it down but no luck.  So.....here I am thinking that the pain could not get any worse.  Gosh I can barely sit in my recliner!!!  I'm in tears and I feel so bad!
 
Hugsss
 
Scarred
I live to "Tame My Pain!" 

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 8/3/2010 7:03 AM (GMT -7)   
Scarred, I am so sorry you are hurting so badly! Sending gentles hugs that include a shoulder to cry on and huge prayers that your pain eases!!

Take care of you,
Beckey
***Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement***Fibromyalgia***TMJ***GERD***Severe Depression***VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uteru****Possible RA***

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/3/2010 8:31 AM (GMT -7)   

 

   Dear Scarred,

     Good morning *warm hugg* I am glad you stopped by. Though, goodness, I am sorry to hear you are in so much pain! Is it an out of control flare or was it increased activity? What ever the cause I sure hope you can get it down to managable level. Stay strong! You are in our prayers here!

*hugg*
   dani


 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/3/2010 8:33 AM (GMT -7)   
Scarred,
try curling up with a hot pad, and I will hope that your pain easies up for you soon...
lots of soft gentle healing hugz...
((((((((((((((((((((((((((((Scarred)))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 8/3/2010 9:59 AM (GMT -7)   
Oh Scarred, I'm so sorry to hear how bad the pain is. I hope so much that today it has eased up. I hope you know that we are all thinking of you. Please let us hear how you are.
Catz4
I'm called Cat or Stac at times, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4/DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Frozen Shoulder. I had an emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06. I'm frightened most of the time and scared the rest! I would love to be heard by friends, family and now most of my doctors has seen the proof of my pain. What validation. This has beomce one of the most important words to me...to be validated. Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 8/3/2010 10:04 AM (GMT -7)   
Sorry your having such a difficult time Scarred . please hang in there .Would a heating pad or hot bath or ice helpyou at all ? I hope you feel better very soon . Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . Awaiting hip replacement surgery .

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/3/2010 1:56 PM (GMT -7)   
(((((((((((Scarred)))))))))))))). I hope you are feeling better this evening!

hugs,
Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/3/2010 2:09 PM (GMT -7)   
Hi, Scarred,
Like others I'm sorry to read you post because you're unable to sleep due to pain. Because of what you posted on the venting thread about your husband growing tired of the wait, I wondered if your pain last night was because of anxiety or disappointment or frustration over the SCS issue.

I'm going to say something that I hope you will take with the best of intentions and caring. I have watched you struggle with this whole SCS mess for I think years now. You went to see a psychologist, and seemed to come back much stronger emotionally when you started posting after those sessions. I don't know if you're still seeing him, but maybe another visit or two might help, just to get you stabilized back in a more positive, empowered place. I think the psychologist Ok'd you for the SCS, if I'm remembering correctly, but then W.C. gives you more obstacles. If it's now starting to affect your marriage, maybe it's time to think about letting it all go. Now that's the part I don't want you to misunderstand. I'm not saying simply throw in the towel on trying to get the SCS (although that is an option, and having options on the table, even ones we don't like, can help us feel more empowered and less helpless), but to emotionally and psychologically let it go.

I realize this is easier said than done, but I think it's taking so much energy from your life, and now maybe your marriage, that you have to ask is it worth it? If you can detach emotionally from the process, and take on more of a "whatever happens, happens" attitude, and GO ON with your life and possible other pain options with doctors, you may feel a sense of relief. You can just take the steps W.C. puts in the way and try to process them as just motions to go through, without giving W.C. and the possibility of an SCS trial so much power over your emotions. Am I making any sense?

I also remember you were going to consult an attorney. It really seems to me that's the only way you're going to get W.C. to do something. Maybe you're going to have to pay an attorney, if you still haven't received a denial and they won't take the case on a contingency basis. At least a consult with an attorney who knows the W.C. laws from the state you're dealing with would be worth paying for, and if he/she says there's really nothing you can do legally to push them, then maybe you have to let it go. Otherwise, W.C. controls you and your life. If there's something you can do legally, and want to pursue it, then do it. But begin to think about what it's all worth, and is the price you and your husband are paying becoming too high.

Oh, boy, I feel like maybe I should duck now out of fear of this being misinterpreted. I just hate seeing you stuck in this place for so long, and giving so much of your life to this struggle.

Big Hugs!

PaLady

Post Edited (PAlady) : 8/3/2010 3:13:34 PM (GMT-6)


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/4/2010 3:16 AM (GMT -7)   
Hey Everyone! Just a little update...my pain yesterday was horrible!!! Had that 2 hour ride to Wichita to see my doctor and an hour wait in the waiting room that really kicked the pain into overdrive!!

Now, down to the brass tacks of things.....here is what is going on with the stalling tech that WC seems to be doing. Apparently they have not recieved (I believe my adjuster on this one) a bill from the last psychologist that did the evaluation in April. Apparently the guy went out of the country shortly after my visit and returned a few weeks ago. ( He is with Doctors without borders). Now with that said....don't Duck PA!!! I'm not going to take anything you say as your lashing out at me!!!!

This SCS road has been a very tough and long road, but it looks like we might be towards the end soon!!! WC along with yours truly has gotten on the psychologist case about this whole thing and in two weeks the report should be sent out to bot WC and my Pain Doctor. My next appointment is in a month (9-7) and that is a medication check. Then I see my doc in Oct. so by Oct we should know what they are gonna do with me.

When you have ten people working on the same patient it is hard to get quick answers. Hubby seems to be more relaxed and is now feeling sorry that he said anything. I told him don't worry about it cause everything is peachy Keen now!!! In fact.....I have actually seen him smile for the first time in 4 years!!!!!! Dang I am gooooood hehehe!

Okay, so that's what is going on. The psych has approved my stim and I am now in the hands of a very very good Pain doc that is ready to go to war with WC if they say NO!!

hugsssss all! Thank you so much for the encouragement. Oh and PA......You are one of a kind dear and I couldn't ask for a better friend!!

Hugsss

Scarred
I live to "Tame My Pain!" 

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 8/4/2010 2:00 PM (GMT -7)   
Hi Scarred,

I just wanted to give you a quick atta-boy for keeping on keeping on. WC is such a pain! Thank Goodness I didn't have to deal with them, but a friend has been dealing with them for years and is still having issues getting things approved and paid.

I don't know if they mentioned this to you or not, but in our State, WC has to pay your mileage to and from Dr's and pharmacy visits too. The rate is really good for my friend and she took it upon herself to send a detailed listing of the WC mileage to them for payment. It was a BIG check when it finally arrived and she is sending in the forms every month or so now for payment. Although I would never presume that money was needed by anyone, I know many of us could use all the help we can get and I thought I would point this out just sort of FYI.

I hope your pain levels go down and you can get that much needed rest tonight!
Retired Mom

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/4/2010 3:38 PM (GMT -7)   
Scarred,
Thanks for the kind words! (Whew! LOL) I am glad to hear you may be near the end. That would be wonderful. Even better sounds like both you and your hubby may be smiling - at least for today. And one day at a time is about all we can ask for, right? (or at least all I can manage!)

Hey, if you can get reimbursed for anything by W.C. it would be worth it - not only for the money, but just to annoy them!

Hugs,

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/4/2010 5:05 PM (GMT -7)   
Hey Scarred, sorry to hear you had a bad night, but really positive to hear you may be reaching an end when it comes to your SCS. Lovely to hear your husband is being supportive too.
So hard to constantly keep our heads up when so much is thrown at us.
Just letting you know you're not alone, golitho

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/5/2010 11:59 PM (GMT -7)   
Hey all! Yes it is 1:00am and Yes I am up once again in dreadful pain!! But I'm dealing with it the best I can.

Retired: I have been getting checks from WC of Wyoming for the past 10 years, ever since the accident. It really helps when your doctor is 2 hours away and money is tight. And since my doctor's PA in all her infinate wisdom has decided that my appointments are now every month (I see the Nursing next month for a med check and then the PA the following month) the checks from WC are really going to help out a lot!

Hubby, after talking to my PA and hearing the email that I recieved Tue. from the Psychologist that things are now back on a right path, has been very supportive. I understand that the report is done and in my favor. The office did not send my WC a bill for services so that was the big holdup. Now that we have that straightened out I think things will move a little faster now.

The Ball is in WC's court. So we shall see if they serve it back with an affirmative answer or quit the game entirely!!

Hugggs and thanks for each of your support!

Hugs

Scarred
I live to "Tame My Pain!" 

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/6/2010 9:08 AM (GMT -7)   

 

   Hello Scarred! Ouch! It sounds bad! Hope you get to feeling better very soon.

The next time your in Wichita, give me a shout, and we will go out to dinner. My treat!

Maybe we can get Privey down here at the same time, and have a Mini CP Reunion!

  SE


"Respect your fellow human being, treat them fairly, disagree with them honestly, enjoy their friendship, explore your thoughts about one another candidly, work together for a common goal and help one another achieve it."

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/6/2010 12:56 PM (GMT -7)   
Screamin! I would love to but hubby takes me to my appointments and is usually in a hurry to get back so that he can get back to work. But I thank you for the offer!!!
I live to "Tame My Pain!" 

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/6/2010 1:02 PM (GMT -7)   
cry  scarred,
I am so sorry that you have had such a difficult time. I just now read the post so I am hoping by now that you have figured out something to decrease your pain. Can you get into the doctors? Did the heating pad, or ice work? I really hope you are feeling better and got or can get some rest. Hugs,
Heather
Mama6

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/8/2010 1:30 AM (GMT -7)   
Hello mama6! Nope, no such luck on dropping my pain. I can get it down for a tiny bit when I am in the tub, but I can't stay in there long because by 10 minutes I am increasing my pain once again. Gawd I wish I had not sold my hot tub!!!!!! GRRRR!!! I could just shoot hubby for including it with our old house! Oh well, water under the bridge now. I just have to try different ways to keep going and hope that WC comes to their senses.

Hugs

Scarred
I live to "Tame My Pain!" 
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