Traveling with CP

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 8/3/2010 6:02 AM (GMT -7)   
Hi Everyone. I'm sorry that I haven't been posting a lot lately. I miss posting and I miss talking with everyone here. I have been doing okay. Pain levels have been high lately, but I'm dealing with it. I'm going to start posting more on Sunday, because right now I'm on a vacation. Well, not really a vacation. I'm working--far away from home on the other side of the country.

I hate traveling. Sorry for being so negative, but it's SO hard to travel. Flying gives me so much more pain. My hip bones were hurting me so much by the end of the flight. Then, I had to work all day the next day and put a smile on my face and pretend that I was fine. I had to go two days straight from morning until night. God help me and give me strength to get through until Friday!!!!!!!!

Thanks for reading. I know that it's supposed to be fun to take a trip...even a business trip.

Do you like to travel? Do you have any travel tips for me for the flight home? Husband is with me. I have ice packs for the plane, my wheelchair, b/t medication, etc., but that's it.

I don't know when I'll be able to post again--probably tomorrow morning.

HUGS

Miss everyone:(

Flower

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/3/2010 8:25 AM (GMT -7)   

 

   Dear Flower,

     Good morning *hugg* It sure is good to hear from you. How long will you be away from home? It sounds like your schedual is packed! I really hope you are able to get in a "down time day".

     When I had to travel, my first stop before I left was to my doctors office. Together we took care of everything. Extra meds, pharmacy locations, emergency contact numbers, all of it. On the plane was hard, oh gosh so very hard. That was the hardest part but the extra BT meds and "therma care" heat wrapps helped (My pain responds best to heat during flares). I also schedualed "down time days" in my schedual. Unfortunatly I ended up using more "down time" days than what I had planned for. Most of all the "emergency kit" came in handy. In my kit was "heat wrapps", tens w/excess supplies, high BT pain meds, normal extra med doses, protien snacks (ensure & nuts) and water. It came in handy nearly every day I was out there in Florida.

     The lesson I learned was to not be afraid to say "I need 20 mins or so." I was just so worried about trying to put on a good face and keep up... in the end my stubborn nature got me in a lot of trouble. So, don't be afraid to speak up.
 
      I really hope you are able to keep your pain down. I am sure you are exhausted to no end by now. Try to pace yourself as much as you can. You are in our hearts here.
 
*hugg*
   dani

 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 8/3/2010 10:13 AM (GMT -7)   
Hey Flower , its good to hear from you , I'm sorry your dealing with so mush . but your doing a great job , your a very strong and determined lady . I hope your pain levels go down , and welcome back . Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . Awaiting hip replacement surgery .

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/3/2010 2:37 PM (GMT -7)   
Flower,
I used to love traveling. Now I dread even having to drive down to visit my cousin, who's about 3 hrs away. It's such a hassle trying to remember everything - meds, my neck sleeping pillow...well, you all understand. I haven't flown in years mostly because I don't have the $$, but I also wonder how I'd handle all the packing and the sitting. I love flying, and would sure hate to make bad memories, because all my past ones are good. But that was before CP.

Anyway, just wanted you to know I do understand. Dani has some good suggestions. Since this is a work trip, it sounds like you don't have all the flexibility you need, but you need more than what it sounds like you're getting. I think you need to speak up and ask for some breaks. Does your employer know about your health issues? If not, maybe you just need to say the trip caused you some unexpected problems, and you really need a little down time. THen use heat, maybe a relaxation tape, BT meds, whatever you can to maximize that down time. Go away in any private place you can find and stare out a window. Heck, go into a bathroom if there's really no place else, and lock yourself in a large stall! (hopefully, there's a window with a view somewhere)

Good luck! Let us know how you make out.

PaLady

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/3/2010 4:09 PM (GMT -7)   
Hi Flower...

Just wanted to say hi and that it's good to hear from you. Sorry your pain has been high, though; mine has, too, so I can sympathize with ya! Looking forward to you posting more... and have a safe trip home.

--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 8/4/2010 6:43 AM (GMT -7)   
Thank you everyone! I appreciate all of you so much. I definitely need to speak up. I woke up with horrific pain. I have to go now to a meeting, so I can't even post the reply that I want to post, so please forgive me. You are all so wonderful. Thank you for all of the suggestions too. I will post more later.

Hugs

Flower

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/4/2010 4:38 PM (GMT -7)   
Nope! don't like to travel....My brother wants me to go to Chicago for his new
baby daughter's naming (jewish ceramony) and well I would have to board 3
cats..no way not going, can't take doing 300 miles to get my daughter at
University...It's 1,000 miles from here to Chicago...no way....plus they
don't include me in anything, I'm just a nobody to them.....anyways nope don't
like to travel..any other questions???? (lol)
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/4/2010 4:56 PM (GMT -7)   
Hi Flower I hate having to go to work on a bad pain day never mind being out of my comfort zone on top of it all! Does travelling involve dinners too or are you able to recover once the work day is ended?
If so remember hot water or heat of any description, hot showers, baths, does your hotel room have a microwave for heat packs?
It sounds as if you're going to need some down time to recover from your trip!
Look after yourself, pace yourself and we're all here for you, golitho

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/4/2010 8:04 PM (GMT -7)   
Oh sorry about my answer is wasn't good...
they do have icy/hot patches those might work along with
something like asper cream or a over the counter cream
to work in after your hot pack...
Hope that helps...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 8/5/2010 2:20 AM (GMT -7)   
Hey Flower,

I hope things are better today and you've had time to rest. I don't travel for the same reasons as the others...even blew off a free trip to Hawaii earlier this year because I didn't want the pain. A brief trip a few hours away was all I needed to tell me I was done with travel for now.....nope, no planes here....or cruise ships either!
Retired Mom

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 8/5/2010 5:24 AM (GMT -7)   
Retiredmom-Wow. You blew off a trip to Hawaii. Right now, I'm at the same place. I just can't do it. It's too much! It really effected my pain levels. I feel like I'm on adrenalin right now, because I know that I have to get through this.

Char-Thanks for the tips. 1000 miles is a really long trip. It's good that you are comfortable enough to say no. I seem to do the opposite, lol, and I'm regretting it!

Golitho-Yes! It involves dinners and being out late. Well, to me it's late. There's no microwave in the hotel. You're right. I'm going to need time to recover. I have time--about three weeks or so to do nothing when I get home. I'm happy about that at least.

Momto6-Thanks! I'm sorry that your pain has been high too:( Hugs.

PA- Thanks. Yes, I did speak up a bit yesterday. In reading your post, I realized that traveling really isn't just taking a plane somewhere. I mean, I got ready (shopping, cleaning, etc.) for this trip for a week beforehand so when I add all of that up, I guess that I have just been going and going for too long. Thanks for all of the suggestions.

Pebbles-Thanks. Yes, I did schedule a bit of downtime yesterday. Thank God.

Mikel-Thank you. You're always so positive! You're wonderful.

Dani-Thank you. Yes, I did speak up a bit. You were really prepared for your trip (if I remember correctly, it was on the longer side). Thank you for all of the advice. If I every fly across the country again, I'm going to be really prepared.

I hope that I replied to everyone. Please forgive me if I missed someone.

You're all so amazing and I can't even tell you how much I appreciate you. All of the support that you gave me helped a lot. It's so nice to have people that understand what life is like for me every single day.
I'm so ready to go home. I work and then fly tomorrow. It will be a long, grueling day. I'm going to buy the heat packs to stick all over my back, lol. My next post will be from MY bed at home on my heating pad!

Hugs,

Flower
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:31 PM (GMT -7)
There are a total of 2,734,294 posts in 301,200 threads.
View Active Threads


Who's Online
This forum has 151323 registered members. Please welcome our newest member, judy.
367 Guest(s), 14 Registered Member(s) are currently online.  Details
cupcakespinkgal, TOOTY, Albannach, dismissed, jennydancingfish, porkysgal, Girlie, pmm73, Suffering34, Jingles1234, Cowboy10, lavendar, Broncofan18, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer