Good morning. My name is Dani and it is very nice to meet you. I am glad you found the Healing Well Community. It is a wonderful place for resources, knowladge and support.
I have adult onset progressive scoliosis. It spans a rather large section of my spine. It began when I was 27. I am 30 now with multiple curves. I began a singular curve (10 cobb) in lumbar. Now, I am multiple curves. Primary progressive levoscoliosis T10- SI (50 cobb). Secondary T4- T9 (15-20). "Possible" presentation in my C spine. Of course, all the usual suspects that come with it, sclerosis, stenosis, narrowed space, facet arthropathy.. you get the idea. I am sure you know all to well what accompanies spinal deformities.
I understand the multiple "types" of pain that come with scoliosis. I hate that there is one pill / treatment for each "type" of pain, and it is frustraiting to no end! We are literally expected to just take our meds, and try to pick up the peices of our lives. Just between you and I... you would think they would have advanced in treatments with so many people suffering with some form of curvature of spine. Arthritis, disk degenration, age related, adolescent onset, idiopathic... MILLIONS of folks, yet the treatments are still archaic at best.
As you well know, many problems arise with rods. Most notably herniations, arthritic degeneration, disk degeneration. There have been remarkable advancments in stem cell technologies, but even that, is still in early stages of development. Very little can be done. Aside from revision....
I too have rather young children. My chores and mother duties are done in rather unique ways. My husband and I spent an entire summer re modeling my home. Here is a post about what I did to make my environment easier to manage.
Post Edited (Chartreux) : 8/4/2010 5:26:58 PM (GMT-6)