Good morning! My name is Dani and it is very nice to meet you. Please, excuse my late introduction. I don't know how I missed your post! I am terribly sorry to be so tardy.
Goodness, you have been through so much. I can only imagine how hard it has been to push through the pain without help or end in sight. It must have taken an increadible amount of will power over the years. I do hope that you are able to slow down any further damamge. I too, am trying to slow down damamge to my body. I know how hard it is to have many many years of life to live...and only so much you can do physically so that more damage is prevented as much as possible. When we are young, surgical "fixes" are discouraged because we have literally many decades to live and most surgical fixes are only designed to last 20-30 years. ...that "seems" the average of the most "cutting edge medical technologies / techniques". Its hard to be young and have to take so much into account.
I too, went to a pain psychologist. I was given all the tools I could possibly need. We praticed and praticed for months on end! Once thereapy is completed, a good after care support groups IS needed. I am so glad you picked us to be a part of that aspect of your life. It is so important to be able to talk, openly, about the daily struggles and joys of day to day life as a chronic pain patient. I dont know about you.. but for me, my therapist is ready when ever I need her, should something more urgent come up. It is nice to know there is help, when I need assistance.
Oh! Do not worry about spelling! As you can tell I am horrible with spelling. I have often wished that healing well was given as "spell checker". But... other times I am glad there isnt one. I know that sounds strange, but hear me out.. when someone in our CP Family who has fibro, MS (for example) will often "mix up" common words. LIke Witch & Which, or Here & Hear. It lets me know that one of my CP Family is struggling. Also, when someone is typing fast because they are in pain or is emotionally "crying inside" there are many many "Mxied up speelign wirds" and that tells me that one of our dear loved ones is having a VERY hard time. SO, there is a good and a bad to spelling errors. So, don't worry one bit about spelling!
I can see I am going to chatt away endlessly if I am not careful. SO, I will end this here. Again, it was VERY nice to meet you. I look forward to knowing you better as time goes by.
*warm hugg* dani