SCS Implant Recovery

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rena2020
Regular Member


Date Joined May 2010
Total Posts : 42
   Posted 8/7/2010 6:21 AM (GMT -7)   
I had my surgery( SCS IMPLANT ) on July 23, 2010--- two weeks ago. My question is that is it normal for me to still be in a lot of pain where my incision is on my upper back and on my rear end where my battery is placed? I just thought that by this point, I would be feeling better. I do not do not go back to Neurosurgeon until Aug 25th.

I know that I am getting a little depressed about this because pre-op I was able to ride in the car with my sister driving and we could go to Wal-Mart (yipee!) in a wheelchair, but I was at least able to get out of the house. For the past two weeks, I have not been able to go anywhere.

It seems as though good 'ol Face Book is even becoming boring to me :)

If anyone could just let me know that I am on track for the recovery and this is normal or maybe I am being impatient with this process.

Thanks again for listening to me, guess I just needed to vent. so thanks for being the ears to listen to me.

Bless everyone and thanks again!

Rena

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 8/7/2010 2:14 PM (GMT -7)   
Hi Rena, I am sorry you are not feeling so well. I know nothing about surgery with the SCS, I have a pump, not knowing anything about the incisions and such, I would venture a guess that it is a little too soon. I really would not think that you are even healed up. Even if your incisions on the outside may look healed don't forget you have to heal on the inside too. It was a good 6 weeks before I felt half way decent when my pump was put in. I had a six inch incision on my low back and then about the same on my upper stomach, above the beltline. My pump was put in with a race of being in between a change of insurance companies and my dr convinced me the new company I was changing to would not pay for my pump. I had less than two weeks to have it implanted. I did not have any time to research anything and I had other health issues going on. Needless to say I was quite shocked after surgery because my dr made it sound like it was not a big deal having one put in. He lied is all I can say.

Give it a little more time but if the pain does not lessen by next week, then perhaps a call to thr dr should be made. You need to make sure there is no infection or anything going on. Try to hang in there. I know its not fun recuperating from surgery of any kind.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

rena2020
Regular Member


Date Joined May 2010
Total Posts : 42
   Posted 8/7/2010 4:47 PM (GMT -7)   
thanks so much for your reply about feeling better! you really put my mind at rest! you are so right about the fact that i look at my incisions and they look great from the outside, but it is the inside with all these foreign objects in me that have to heal.

i so appreciate your reply and i know that i will sleep better tonight just knowing what you said to me, thank you!

it is amazing that the docs make all this sound like a piece of cake and that we will feel better soon, well there are several things that they do not tell us!

have a good evening and again thank you for taking time to respond to me

rena

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 8/7/2010 4:55 PM (GMT -7)   
You are so welcome. I know many times in the past when I have had surgery I would get so tired of doing nothing. Every time I tried to venture off, I paid for it and knocked myself back several days. I seem to always learn the hard way, lol. That is pure human nature I think, lol. Just hang in there and when you get real aggravated just think about how much better you will feel when totally recovered. Better to go forward than backwards.

Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

peleegal
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 8/7/2010 8:58 PM (GMT -7)   
Rena,
I had my implant on April 12. I am still in a lot of pain. My doctor just changed one of my pain medications to try and change to maybe change the whole pain process. My battery also shifted upward in the past month or so. So you are definetely not unusual for you to still be in so much pain. Just remember they put that lead in your spinal cord, so touched nerves, muscles and everything else. Let alone the area where they put your battery. I don't know if you have 1 or 2 leads but just give yourself time to heal. I completely understand how your feeling, but I've been dealing with this for the past 4 months. Facebook and the computer has been my only friend. I feel really bad because I have 2 teenagers and we've had a really boring summer. If you need to talk post something on here. I can relate.
Hugs,
Carole

rena2020
Regular Member


Date Joined May 2010
Total Posts : 42
   Posted 8/8/2010 6:08 AM (GMT -7)   
Good Morning Carole,

Thank you for you email, it always puts a smile on my face and makes me think that things are going to be okay!

My PM doctor told me that I would not be spending the night in the hospital, however, when I had my consult with my neurosurgeon, he told me that this was major surgery and that I would spend the night with a pain pump to control my pain. I don't know if he wanted me to spend the night because I have a paddle or what his reason was, but he wanted me to stay. Being on the pain pump was great! I woke up actually, never really slept in hospital) but at 6 am I was going to the restroom by myself, walking the halls and even got myself dressed! The nurse told me that my insurance would only let me stay in hospital for 23 hours. The nurse that morning told me to call my sister to come get me as she just had to check one patient out before she would get to me. I see the PA in the hall and I begged him to come in and let me go home, ( yes, I was crazy because of the good'ol pain pump) my sister finally told me to get back in bed that I was acting a little crazy!! So... I listened to my sister, who is wonderful, and settled down. The PA comes in and tells me to wiggle my toes and said that I could go home. Never once did he ask if I went to the bathroom or checked my blood pressure that was 85/47! I then come home and thought that the ambulance would come and take care of me, but like you said, how was I going to get on the stretcher, and they would just send me home in a few hours. I thought I will just take my meds and I'll be better in the morning, because that is what the PA told me. He made it sound like I was going to be a new woman in 24 hours.

I am so glad that you told me that my insides still have to heal really put my mind at ease, so thank you for that )

My Valium helps me out a lot, but I am almost out and the doctors think that we are druggies if we ask for more meds!
It's odd that my doc and my representative were my best friends in the world until they got the $$$$ from insurance company, so now I am just a nagging patient that they really don't care about!

I can't imagine that you have teenagers at home and that you are not able to do things over their summer break! I am sure that they understand and that they know that you are doing the best possible and that you are a great mother to them. One day, we will be back to our normal selfs again.

I know that this SCS implant works great for some people, but my concern is that I am having pain in my leg that I did not have pre-op.

I hope that you have a great Sunday, and that you get some rest and relief ~~ you sound as though you are a very strong person.

I know that I have been going on and on, but I think that sometimes I need to vent to people, especially to those that can understand what we are going thru.

Thank you again for helping me!

Rena

rena2020
Regular Member


Date Joined May 2010
Total Posts : 42
   Posted 8/8/2010 3:49 PM (GMT -7)   
well, i know that things are going to get better for me each day, i always look here for people that respond because it puts my mind at ease.

two weeks ago they implanted my SCS, so at that time they charged it and i had it on all the time, for the most part. my remote control told me today that the battery was getting low and that i needed to recharge it. i take out my booklet and followed all the instructions on how to recharge my battery. now understand that it was myself and my sister both reading the instructions ( we are both blonde ) but even with being two blondes, we thought that we could do this together. well..... guess what??? yep, you guessed right it would not charge. i called my representative from boston scientific and he informed me that the area that they implanted my battery was too swollen and that it would not charge. gosh, maybe they should have told me that from the get go but no.... that would have been too easy for them to tell me that. he told me that the battery area may stay swollen from anywhere from a week to a month... does it get any better than this? yes, it does! he then proceeds to tell me that i will not be able to have my stimulator on until i am able to charge my battery, when my rear end is not swollen anymore.

okay, so now i have horrible back pain from my incision and a horrible pain in the a** from where they implanted my battery and my legs and feet still hurt. i go bak to the doc on aug 25th and if they do not give me more meds at that appointment, well, let's just say i will tell my doctor that i will come live with him for awhile and maybe he will change his mind!l

again, sorry for listening to me vent (it's becoming a habit) but it does help me to know that people care and also i am doing this for the people that are considering getting a SCS implant to ask all these questions.

hope everyone is going to have a good evening and sleep well!

thanks again for listening to me!

rena

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/8/2010 7:07 PM (GMT -7)   
Rena,

Perhaps you should ask your rep if you can meet with him to go over charging. It might also not be charging because you don't have your charger in the right place. I had a hard time with mine at first (didn't get a great signal) because it turns out that I have to place my charger lower than I thought because the upper half of the battery is plastic, not the battery itself, so instead of placing the charger directly over where I feel the battery under the skin, I have to put it just over the lower half.

Because of the incorrect placement it took me 8 hrs to charge 50-75% of the battery & I kept losing the connection (ie it would randomly stop charging). Fortunately I had a doctor's appointment to get my sutures out the next day & the rep was really helpful. Although my battery does charge slower than most in general, because my battery is in my chest & because of the curvature of my chest (since I'm female), the connection isn't as good as it is if it's implanted in the butt or abdomen.

Also, I find that if I charge once my battery gets down to 50%, and not <25, the charging is much less of a hassle, although at my current settings, this does mean that I have to recharge about every 3 days.

hugs,
Skeye

rena2020
Regular Member


Date Joined May 2010
Total Posts : 42
   Posted 8/9/2010 3:57 AM (GMT -7)   
Skeye

I did speak with my rep yesterday he's the one that told me this and he said maybe by my next appt aug 25 he could look at it to make sure all was ok. I feel better about it this morning, just the way it is and I have to deal
with it. Thank you for your advise, it really helps me knowing people like you care.
Have a wonderful Monday!!

Rena
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