New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 8/7/2010 1:49 PM (GMT -7)   
Hello everyone, I have chronic back pain on a moderately severe level but I have a friend that is very severe. he cannot get much quality of life even on the top of the does range of narcotics that most PM doctors will go to. right now its ms contin 100 q6hrs and dilaudid 8 q6 prn, soma q8hrs. this has been the best cocktail but onl y gets him to a 6-7/10 at best. Does anyone think the intathecal pump is the only next step, and can anybody give a story on their pump experience
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008

current Rx: MScontin 30mgs 2x, dilaudid 8mgs 4x p.r.n., soma 3x, Arthotec 75mgs\200mcgs 2x, neurontin 300mg HS, vistaril 25mg 3x prn, wellbutrin 150mg 2x(ADHD),Adderall 20mgs 2x(ADHD)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13476
   Posted 8/7/2010 2:04 PM (GMT -7)   
Hi Soldier, I have a pump and can say it was the best thing I ever did for myself. I have problems tolerating medications and lots of allergies to all meds not just pain meds. This is why I ended up with a pump and I have not had back surgery as most do that have the pump. In order to have  success with a pump you must have a dr that knows them like the back of his hand and have the same experience and knowledge when it comes to the medication used in pumps. If you don't have those two key elements then the pump will not be a success. The dr that had my pump implanted claimed he knew all about them and as it turned out he did not know squat and I suffered just as bad as before. Thank goodness he quit PM and referred me to the dr seeing me now. She is the top pump dr in my state and she knows her business and the difference is unbelievable. Oh yes, I still have pain, I always will unless a miracle happens, but life is better. But, pumps do come with their own set of drawbacks and difficulties, its not as easy as it sounds.
 
Why don't you bring your friend to the forum and I will be glad to talk to him about the pump or answer any questions I can. Also, if you will do a search here at the forum on pumps you can find a ton of information there too.
 
Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/7/2010 4:27 PM (GMT -7)   
Hi Soldier...

Straydog gave you some good info; as she said, there's lots of info here on the pain pump if you search the forum. I've gone through the pain pump trial (it was successful, overall); but have not had it implanted for a variety of reasons... I think I'll *know* when that "right" time is. Anyway, it's a hard thing to decide, I do know that. I agree that working w/ a PM doc that is well versed in pain pumps is the biggest thing and is the key to the pump being a success.

Re: the meds your friend is on - that's similar in strength to what I've been on, and I even been on higher dosages than that... and, yes - a 6 or 7 is about the most relief I get... actually, a 6 is a good day for me.

Those are just my experiences so I thought I'd share. I'd say doing research is the best start, as well as having the right doctor. From there, your friend could possibly have the trial and see what type of relief it offers. Just my thoughts. If you have any more questions, feel free to ask as I've done a TON of research on all this... and there are also a few here with the pumps.

Good luck! --Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 8/7/2010 4:56 PM (GMT -7)   
Tina have you done any research on stuff for headaches?
It doesn't seem that they do any implants for headaches here in Ontario.
   
SUZANE
      
 Chronic daily headaches
 Started in  2000
 Done it all
 No options left
 
Motto:One Day At A Time
 
           

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 8/12/2010 8:46 AM (GMT -7)   
thank you mom and straydog. I will try to get my friend on the forum if his son can teach him how to use the computer. that idea could very well be the difference of having quality of life. right now he is on a involuntary cruise to the bahamas so im sure he will be fit to be tied when he gets back mon. that is great info you provided. i think ther is a doctor here in norfolk that is good at this and comes highly recomendede.
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008

current Rx: MScontin 30mgs 2x, dilaudid 8mgs 4x p.r.n., soma 3x, Arthotec 75mgs\200mcgs 2x, neurontin 300mg HS, vistaril 25mg 3x prn, wellbutrin 150mg 2x(ADHD),Adderall 20mgs 2x(ADHD)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13476
   Posted 8/12/2010 11:22 AM (GMT -7)   
Soldier if computer access is the problem then perhaps you need to be his voice so to speak, put his questions out here. Also, if this is a person you go visit perhaps you can pull the forum up for him and let him do some reading too. There is another group online called Pumpsters that is dedicated to people either getting ready to have a pump put in or already have one. They really do have a wealth of information and I actually joined this group. But, they do some sort of a background check to make sure that you are who you say you are and they were just a little too paranoid for my taste. If I remember right it took about 3 weeks before I was notified I was accepted into the group. They have rules about everything it seemed to me.

Also, you may want to go to Medtronics.com they have quite a bit of info about their pumps, I have a Medtronics pump. I am still learning about these things, lol. I was told I could no longer have MRI's after having one implanted, well I just found out thats not true. There is a particular MRI machine FDA approved along with another MRI machine just approved for the Synchromed II pumps which is what I have.

Well, I hope this person was able to enjoy the cruise anything to take your mind off of the pain.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 10:36 AM (GMT -7)
There are a total of 2,735,394 posts in 301,299 threads.
View Active Threads


Who's Online
This forum has 151402 registered members. Please welcome our newest member, Len.
308 Guest(s), 11 Registered Member(s) are currently online.  Details
robotguy, fly with me, smlafleur, iho, maria2016, rockyfords, InTheShop, sam12, JackH, Kristvet86, ljimd


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer