New - Latest Diag Psoriatic Arth - Any Relief?

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KKat
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/10/2010 4:30 AM (GMT -7)   
Had total hip replacement a month ago after finally being diagnosed w/psoriatic arthritis. My hip is healing, but my low back sacral and pelvic pain is 8-9 or 10 on pain scale. Sleeping A LOT helps so far.
Wondering if anyone out there has this type arthritis and how to deal with pain and lack of mobility.
Thanks!! http://www.healingwell.com/community/emoticons/eyes.gif

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 8/10/2010 9:00 AM (GMT -7)   
HiKKat and welcome to Healing Well's chronic pain forum. I do hate seeing a new person come along that is suffering, but very glad that you found us. At least by coming here you know that you are not alone in your suffering. Everyone here sfers with pain due to various ailments.
 
I was dx'd with psoratic arthritis a little over a year ago, along with plaque psoriasis. I have had the skin problem for a very long time but it was not severe at all then wham it hit me full force. I am on Humira for crohns disease and it works for both conditions from what my dermatologists tells me. I have psoriasis on my feet really bad and both hands, one elbow, face and in my hairline. The right side of my body is much worse than the left and no dr can explain why. I deal with infections with my feet resulting in cellulitis in both legs. It has been a horrible battle. All of the expensive creams the dermatologists has rx'd to me did nothing. Instead one of the members on this forum  has a friend with it bad like me and she had switched drs and he told her of a product to try and its available over the counter and she has been controlling hers with this medicine. I bought it and it has really helped me too. It is not gone but at least it is much better than it was.
 
Does your dr have you on any of the TNF blockers like Humira for your arthritis? That is something that you have had to have a hip replaced. I have a pain pump but it was not implanted because of PA. My break thru meds do help with the joint pain on really bad days and of course the Humira. What meds are you on? We do have a forum here for Psoriasis but it is not very active at all and I gave up on it.
 
Anyway, I wanted to pop on and tell you hello and welcome aboard. I do hope that you will continue to post and let us know how you are doing.
 
 
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

KKat
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/10/2010 9:19 PM (GMT -7)   
Thanks for your response! My mother had the skin condition very badly, but I have only had one rash outbreak a couple years ago that wasn't diagnosed psoriasis. In retrospect the six month rash was exactly that. I also had a recurring corneal condition that is considered a PsA symptom. I was just started on Arava (the generic is Leflunomide) 25mg. It is a DMARD type drug and I believe it is a milder Rx than Methotrexate. I had a bad kidney response to taking a high dose of ibuprofen and my Dr is concerned about elevated kidney level responses. It has not alleviated the pain yet, which I have in my pelvis/sacrum, fingers & thumb, neck, toes and knee. I am managing to find a balance between rest and activity, I'm on long-term disability. I don't have much social contact at all and do the usual pain isolation.
Thanks again for responding.
KKat

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/10/2010 10:07 PM (GMT -7)   
KKat
I also want to Welcome you to Healing Well Chronic Pain forum, I think you will find, that allot of us are in the same boat as you when it comes to social contact and isolating ones self because of the chronic pain, so when you are here you are not alone! One thing that is really terrific about the folks here on this forum, is that we can empathize with you, because we know what it is like to live with chronic pain. I hope that you will find like I did, that these are the most caring and compassionate people right here on this forum, that you will find anywhere on the internet! I really consider the folks here, as my family! And although we are not doctors and we can not cure anything, we can be there for you, and listen and give your our advice and support! So when your pain gets you down and if you feel frustrated, and just need to vent and rant and rave a little, well here you are among friends and we give you our ears, and our support, so this is the place to do it at! We all just support each other here!
Again I welcome you to our CP family!

White Beard

Oh yes I was just informed that after my arthrogram of my right hip, that it looks like I have Anterior Femoral Acetabular impingement of the cam type, and they are going to do intraarticular steroid injection of my right hip on the 17th. I have been having some problems with my right hip for some time now,so I can relate a little to you having hip pain.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 8/10/2010 10:17 PM (GMT -7)   
Lets hope this new medication can get you in remission. There is a lot of drugs available now to help with the condition. I just read an article about one of the pro golfers being dx'd with PA and he is on Enbrel and responding very well to it. It really is so weird how these auto-immune diseases work, I always says its like my body just does not like itself, lol.

Yes, it is so easy to isolate ourselves when not feeling good and up to par. That is something we really need to watch because it can become such a habit and not a good one. I have been working on a plan to do some things with a friend Friday if all goes well. I initially thought oh no, I should stay home, then realized what I was doing, l do hope things get better for you and soon. Please take care of yourself.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

KKat
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/12/2010 6:09 AM (GMT -7)   
Does the pain pump help? It is amazing to suffer so many concurrent illnesses.Thanks for taking the time to respond.
KKat

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 8/12/2010 6:37 AM (GMT -7)   
KKat, yes the pump has been a very good choice for me since oral meds were exhausted. My pump is not for the PA, that dx came last year. Granted 4 AI diseases is not your typical path, lol. I have suffered with lower back pain for over 20 yrs, have done everything short of surgery, there is nothing I have not tried. I also have severe problems with the facet joints. As it turns out this is one of the reasons I cannot stand up straight even using a cane, is the facet joint problem. I think of the money spent on this body I should feel like a million. But if you don't have a good pump dr handling the pump it will not be a success. Alot of the PM drs do not have the knowledge and experience needed to handle a pump patient. A good pump dr needs to know as much about medications as a pharmacist would and also understand how these pumps work. The PM dr that recommended the pump to me was not educated enough to be handling a pump patient. He later decided to go back into anesthesiology and that was a blessing in disguise for me and 44 other pump patients. He referred us to a retired neurosurgeon who went into PM handling pumps only and has over a decade of experience with pumps. She is the leading pump dr in our state. Frm what I am hearing now, most of the PM drs are sending their pump patients to her to handle. She was floored at the condition so many of us were in with these pumps. Its like she said, our dr truly wanted to help people with CP but he was way too under educated with these pumps. I suffered in silence with this pump and he refused to increase my dose in the pump, he refused to increase the oral meds for BT pain for two years. When he told me I has maxed out the dose in my pump I believed him, little did I know. My dose he had me at is where my dr starts her patients out at. But like she said, when a patient complains consistently for 2 years of a 9 pain level something is wrong, and the sad part was the dr made no changes in those 2 years when he should have if he had known what he was doing.

I have had my pump since 2005 and I have a couple more years before my battery will run out. Then everything will need to be replaced and I have just learned of a pump that is not ran off of a battery and there is no more surgeries involved on replacement. I am excited about that. Take care.
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