Does anyone have a lower back protruding disc but have pain EVERYWHERE?

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bridget10
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Date Joined May 2010
Total Posts : 200
   Posted 8/10/2010 10:55 AM (GMT -7)   
Hello, don't mind me while I am stuck in limbo-land waiting on a complete diagnosis. It helps me to write out my symptoms and see who can relate.

Quick background: started with hip pain that lasted for 7 months before I finally got a doctor to refer me to a neurologist to get an MRI. By that time, I had also developed tingly feet and hands and also pain in my right foot. So I got the MRI and it turned out I have a protruding disc (still don't have an answer on if that is similiar to a herniated disc) in my lower back (L5-S1). I am assuming that is what is causing my hip pain, though it is strange b/c my back hardly ever hurts, but my hip always does.

Anyway, in the meantime, I also got a nerve test and have no perpipheal neuropathy, and also got a blood test and everything came back normal. I had started to develop pains in my arms and legs as well and started getting light headed easily (especially while hot) and muscle twitches. When I told the doctor that my Aunt has MS, he wanted me to get a brain scan to rule that out. So I got that and a neck MRI at the same time. Everything was fine-- no lesions found and no bulging discs in neck. The only thing found was "minute degenerative disc disease" in parts of my neck..... but I am assuming "minute" is nothing to worry about, right? They also found a retention cyst in my sinus area but said it is only a concern if my right cheek hurts and I said it doesn't bother me at all so I guess I will wait and see what happens.

I still have frequent arm pain and it gets worse according to how much I am using my arms. It even hurts my arms to swing them while walking on the treadmill. I do not have shooting pains, so it does not feel like siatica. I just get all over body aches and my hands get crampy sometimes. I can't hold heavy glasses. I still get light headed and muscle twitches but not as bad as it used to be. I swear I feel worse when i am hot and it has been cooler here lately.

Is it possible to have all these symptoms only from a protruding disc in lower back?

My other thought is that is that maybe it is fibromyalgia. It even hurts to lightly touch my skin and that can be on of the symptoms. And I seem to get fatigued easily. So I am waiting to get a referrel to see a rheumotologist.

But in the meantime, I would love to hear from those who ONLY have back problems and what all of your symptoms are.

thanks!

Kellie

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 8/10/2010 12:06 PM (GMT -7)   
Hi Kellie, I started out 3 years ago with just lower back problems....same place L5-S1! I have back pain most of the time (at least achy and stiff) but some of the other stuff is worse!! It is from nerve impingement, at least in my case. And it is MUCH worse when the barometer goes down. It is random and it comes and goes and jumps around! This was all happening before the fibro and RA symptoms that started this year! I am going to just list what symptoms I have gotten from my back, and like I said it jumps around and is not constant anywhere.....

Bad pain in my hips, buttocks, groin area....but more to the outside of leg, knees, ankles and really bad in feet....to the point I can't walk.

Tingling all over my legs, feet and back.

Buzzing feelings in my buttocks and legs....like a cell phone vibrating against them.

Feelings like spiders crawling all over my legs and feet.

I never had problems with my arms and hands though.....well up until now! In the last year things have changed and now my upper back and neck is also involved and I have fibro.

Just to let you know what was happening when it was only my lower back!

Hope this helps!

Take care of you!
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement ***Fibromyalgia***TMJ***GERD***Severe Depression***VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uteru****Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 8/10/2010 2:02 PM (GMT -7)   
I too have HORRIBLE back pain from extensive disc damage.  My scoliosis is not just curves, but twisted spine, severe osteoporosis, and 3 areas of stenosis.  I am 3 and a half weeks post op from c5-7 fusion, doing pretty good except my lower back is KILLING me.  I know they started with my cervical spine, because the stenosis was most severe there and my spinal cord was being damaged.  The damaged and detereriated discs in my lower back are causing my legs to go numb and I simply fall over or flat on my face...depending on which way I am facing or going at the time.  I am on a multitude of pain meds and muscle relaxers just to be able to get comfortable.  I feel for you, lower back pain is miserable!  My legs have little feeling in them, but at the same time they ache comstantly.  I am hoping that my neurosurgeon decides to do something SOON!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/10/2010 2:14 PM (GMT -7)   
Not sure if you were posting to me or to the other poster. I just wanted to clarify that I have NO back pain... if any at all, it is a mild ache or stiffness. My arms and hands bother me the most, then my feet, hip and legs, and neck hurts on occasion as well. I am so sorry to hear you both have such horrible back pain! That must be so awful! My mom has a bad back too (mostly just in lower back) and even had TWO back surgeries and they did not help at all! That scares me because I don't want mine to get progressively worse.

I just was mainly curious if my upper body symptoms, like arm pain, might be related to the bulging disc. It wouldn't make sense to me if it was, but if there was ANYONE out there who has that (and not related to the upper spine at all), then it gives me something to think about while I am anxiously waiting to get a diagnosis! I know I am kinda jumping the gun, sorry.

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 8/10/2010 2:48 PM (GMT -7)   
 Hey Kellie , Sorry to hear your expierencing such difficulty . I think tingling senations can me anthing from circulation to back problems butI would put these questions to your Doctor . There are probably folks here expierencing similar symptoms and attempting to benefit from their expierence is wise as well . Be patient and I'm sure someone will post with some useful relevent info . I don't have those issues but wanted to offer you my support and encourage you to post whenever , this is a great Forum with giving , supportive people , Good Luck to you and I hope your pain subsides . Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery scheduled for August 23rd !

finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 8/10/2010 3:09 PM (GMT -7)   
Actually it can. The fusion I just had done helped the numbness, pain and tingling in my arms. My neurologist said that bulging discs (I had 4) in the cervical spine are usually the cause of arm pain
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/10/2010 4:23 PM (GMT -7)   
to "finally really crazy".... I like your user name.. lol.... i think I should have the same name! anyway, so, your arm pain was from your cervical spine? I had that checked out on the MRI and it just said "minute degenerative disc disease".... I would be shocked if something called "minute" would be causing this much pain. I do have a follow up appt. with the neurologist on the 20th, so I will wait and see what he says. If he says he can't help me, I will get a referrel to a rheumatologist to rule out Fibromyalgia (esp because my mom has that too)

finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 8/10/2010 11:05 PM (GMT -7)   
I have fibromyalgia as well, but had 4 bulging discs in my cervical spine that were impinging the spinal cord. They removed the damaged discs and fused the vertebrae together with titanium and screws with some cadaver bone to replace the disc. But yes, one of the first MAJOR things my neurosurgeoun evaluated and tested was the strength, feeling, tingling, numbness and pain in my arms. He told me that most upper body pain and or other problems come from some kind of damage to the cervical spine area. Of course I am still healing from that surgery, but we are waiting to see how long he will wait on my thorasic and lumbar fusions, because I have the same problems in my legs due to bulging and deteriorating discs in the mid to lower part of my spine
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 8/11/2010 8:38 AM (GMT -7)   

Antybuggy....I rarely come to this forum but am glad I stopped in today....I have disc compression(and or bulging, I forget what the doc said....Fibro Fog) in L5 and T3 and suffer from the exact same pain symptoms that you do and was baffled by it because my rheumy told me I would not have bilateral tingling, buzzing/pain in both legs from this condition!  My right side is the worst and the aching/burning/tingling butt, thigh, down the leg to the knee keeps me up at night.  I just chalked it up to fibro as no doctor has actually ever discussed any symptoms I would get from this.(I think he might have mentioned sciatica but from what I read that is stabbing pain)  Glad I visited today...sometimes these forums help us more than our doctors.  I wonder if spinal stenosis causes some of these symptoms also???  I also feel like my legs and back are crawling with bugs!

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil
 
Reach out and touch someone.  If they don't touch you back it's because you still  have brownie batter on your face.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/11/2010 8:45 AM (GMT -7)   

 

  Dear Kellie,

     Good morning! My name is Dani and it is very nice to meet you. I am glad you found the Healing Well Community. As you can see we have a fantastic group of loving, caring, compassionate members.

    I do not know to much about fibromyalgia... only what I have learned from members here. It would be worth a try to get it checked out. I wonder if you are suffering from a symptom called "Tetany" and "paraesthesia". I have both, the paraesthesia is a symptom from 3 of my diagnosis... It is frustraiting no doubt. In anycase, they are a symptom from many other illnesses and conditions. Here is more info

~~> http://en.wikipedia.org/wiki/Paresthesia

~~> http://en.wikipedia.org/wiki/Tetany_(medical_sign)

 

     I hope you are able to get to the bottom of things. I can well imagine you are frustraited and wanting, needing, an aswer to all the pain.

     Hang in there and stay strong

*hugg*
  dani


 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 8/11/2010 9:02 AM (GMT -7)   
Donna yes, stenosis will cause many of those symptoms of the lower extremity that you have described if the stenosis is in the lower back.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/11/2010 9:51 PM (GMT -7)   
THanks, Dani, for making me feel welcome. :) I think, after posting what I did, I feel even more confused than before! It's not anyone's fault, but everyone seems to be saying that upper body pain, tingling, etc. would ONLY be from the cervical spine... so, is that correct? If so, then, does that mean that my "minute degenerative disc disease" woudl be causing me all this pain? Hmmm.. guess I will find out more from neurologist.

thanks for everyone's input. :)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 8/12/2010 4:44 AM (GMT -7)   
Bridget your neck pain will cause symptoms in the upper extremity only and your lower back will cause the same in the lower extremity, its is the path of the dermatones being followed. Hope this helps.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/12/2010 9:05 AM (GMT -7)   
okay, thanks, that's all I wanted to know. :) So that means either it's the "minute DDD" or, it is something else, like Fibro

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/12/2010 12:01 PM (GMT -7)   
Hi Bridget. I've had 2 surgeries for herniated discs (lumbar) and I also have fibromyalgia, so I have a little bit of experience with both.

My lumbar issues did not cause any problems from the waist up. I had the typical sciatic pain, leg pain, hip pain, etc. I since have developed sacroiliitis in both hips, and I have trouble with piriformis syndrome, so it's really hard to tell what is coming from where, now, but at the time, I only experienced below the waist issues.

However, I sometimes have EXCRUCIATING arm, shoulder and neck pain just from the fibro. Often it is related to overuse or bad sleeping position, but sometimes it seems to come out of the blue. I also have trouble with my hands. It definitely sounds to me like some of your symptoms could be fibro related. You might want to pop over to the fibro board and read "Fibro 101." There is a wealth of info there.

I hope you get some answers soon. :-)

Hugs - Austen

Edited to add: I just saw the part about the retention cyst too. I also have one of those on the left side. It would fill up with fluid and just gush out uncontrollably. They thought I was leaking CSF fluid (scary) until I had a CT. I keep mine in check with Flonase spray. I haven't had any problems with it since I've started using it.

Post Edited (AustenFan) : 8/12/2010 1:05:02 PM (GMT-6)


bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/14/2010 8:38 PM (GMT -7)   
thanks, I have posted some on the Fibro board to compare my symptoms but sometimes I feel silly since I am not diagnosed with it.

you have a retention cyst too? Does your cheek hurt? If I had never had a brain MRI, I would never have suspected it. I have virtually no sinus problems. My nose gets a little stuffed up but just normal stuff. The Neurologist said he can recommend an ENT to me but he said it's only a concern if my cheek bothers me and it doesn't, so I turned it down. Do you think I should still see one anyway? Does it keep getting bigger if you don't treat it? Is it the type of cyst that could be cancerous? I have not had my follow up yet, so i have so many questions. I do see him on Friday, the 20th.

Did you get an xray or MRI of your hip as well? MY hip almost constantly bothers me, but the doctor that it was related to my back. THat's too bad you had to have two surgeries! Did it help at all?

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 8/14/2010 11:16 PM (GMT -7)   
Kellie -
Sounds like sciatica for one thing, which does not have to have "shooting" pain, only going down hip and sometimes all the way to the toes. Sciatica is not i the arms, but it sounds like there is something pinched in neck as well.

Fibro can make you feel like you have pain in all sorts of places. Usually muscles are involved. Do you have the pressure points that are sore when someone presses on them?

You can get a copy of the reports on all your tests from the places that did them. The disks of the MRI too. Some places make you sign a paper releasing the records - silly when it's to yourself. If you say it's for your PCP it should be free. You can make copies yourself for other doctors you see. I'd certainly be seeing a rheumatologist!
Alcie
 
 

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/16/2010 1:46 PM (GMT -7)   
I'm not sure if it's a pinched nerve in neck.... could "minute degenerative disc disease" cause that? THere were no bulging discs in the neck. With siatica, is it always a straight line down of pain? For me, it is more an achiness that is in different spots all over. In fact, the pain is normally in the front or side of my leg. And the foot pain is right smack in the middle of my foot. I'm sure i do get some siatica too because of the herniated disc. Now, my arms and legs (mostly my knees but also all over) feel warm in the inside, but not to the touch. Not sure how to explain it. Almost like a burning feeling. It almost feel inflammed at times. I know I tested negative for arthritis though. Sigh. well, I will have the follow up on Friday and will ask the doctor all about it. I did get copies of the MRI's already, as well as a copy of my blood test results. I don't fully understand everything in the reports, but I plan to have him clarify.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/16/2010 1:47 PM (GMT -7)   
oh, and it affects both legs... sometimes just the right.... but a lot of times, both legs at the same time. I am also extremely sensitive to touch.... i had a light massage it it put me in a bad flare for a few days.

sjf
New Member


Date Joined May 2010
Total Posts : 18
   Posted 9/4/2010 10:10 AM (GMT -7)   
 Hello Bridget 10 and everyone.
I've been complaining to my Rhuemy for two years about pain in my right buttock and hip and down my thigh. Sometimes it's shooting, mostly it's achy but it hurts almost all the time and keeps me from sleeping. I have arthritis in my Sacroillic joints so at first I thought it had to do with that. This summer it's gotten much worse so my Rhuemy took x-rays of my back and lumbar and saw nothing that should be causing sciatic pain. A couple more months passed and I decided it was time for an MRI even though I'm terribly claustrophobic. It was pretty horrible even with Xanix. The results also showed nothing that should be causing my pain but she recommended I see a physical therapist. She thought it was myofacial pain syndrom but it didn't really match my symptoms which were dead on Scatica.  I did a little online research and discovered something called Piriformis Syndrom where the Piriformis muscle in the butt irritates the Sciatic nerve. Bingo, went to PT and thats the first thing the therapist said. I'm so happy to have a diagnosis and he's confident we can clear it up.
  Good luck with your pain issues and if you're not satisfied with the answers keep looking. There's alot of good information on this site and it's so helpful "talking" to others on here who have similar problems. Sometimes friends and family get tired of hearing it.
UC in remission for 6 years. Taking 6mp; Fosomax and Diclofinac for UC related Arthritis.
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