PM pain in my......

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opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/11/2010 7:40 PM (GMT -7)   
Hi all-
Well found a PM doc who was actually understanding what my pain was like with the nerves in my ribs. Had a cryo-ablation done and it worked for just about 3 weeks. Called back to give them an update and found out my attending had left. Leaving me with 2 pm doctors left there. Went for a follow up appointment and got told she won't prescribe narcotics and doesn't do any type of ablations either. Sends me home with another anti convulsive. Here we go again. Not a huge deal since my surgeon was still willing to prescribe the pain meds and actually he and the PM center had somewhat of an agreement to do it this way. Well since they did the ablation and it didn't work the surgeon thinks all the pain management should be on them now and won't refill my pain meds anymore. Well I call my PM and ask about continuing these. I get a short answer of "no, ask your PCP".
Now this is getting to be a pain. I have had some serious depression lately and my psychiatrist knows it is mostly pain related and had offered while I was in the hospital lately to prescribe it if neither would. So I call him and he gives me a short lecture about how surgeons always do this, get patients "hooked" on pain meds and then dump them. Anyway he does agree to write a script and while I was in the hospital he had them switch me to 2 every 6 hours instead of PRN and it really helped a lot. When my wife picks up the prescription from him it's for 1 every 6 hours. My wife reminds him I have been on 2 for over 2 years and he just tells her I have been taking too much and that's all he will prescribe a month. Wow, what an irritating thing to cut your meds in half after 2 plus tears.
Also, the PM center told me that if the ablation worked at all they would titrate me down, so I called and asked about at least doing that and got the same answer as before... she doesn't prescribe narcotics. But I am welcome to bring it up to her directly at my appointment on the 23rd if I like.
Sometimes I feel like they enjoy kicking us to the curb.


Take care,
Bill

Ps. I was taking 10/650 lorcet and was lowered to 10/325 both 2 every 4 hours as needed before the psychiatrist took over.
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/11/2010 7:57 PM (GMT -7)   
Hi Bill,

I'm sorry to hear about the situation you are stuck in. Yuck. I can only imagine how frustrated you must feel!

Do you know what happened to your PM? Did he retire, move away, or just simply leave the practice for another one? If he just switched practices & did not move out of the area, perhaps you can follow him to the new clinic.

If you can't track down your old PM, then I'd consider asking your current PM's office for a referral to another practice that DOES do cryo-ablation, since that is what helped you in the past. If they refuse, or cannot give you a name, then I'd ask that same question to your PCP and/or surgeon. In the mean time, explain to your surgeon that you were seeing the PM doc & had finally found a combination of treatments that helped, but then your PM left without any notice & that the other PM's at the practice are unwilling & unable to properly handle your case. Then I'd ask the surgeon if he could prescribe your meds for you until you find a new PM. If the surgeon says no, then I'd ask your PCP. It's not fair that this situation is beyond your control & yet you are getting punished.

Again, I'm sorry you have to deal with this mess. Perhaps ask your psychiatrist for something to help with the withdrawls, since at his "request" you were suddenly thrown into withdrawls because of his lack of proper tapering & such a state may be detrimental not only to your physical health, but to your psychological well being as well.

Hang in there!

hugs,
Skeye

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/11/2010 8:06 PM (GMT -7)   
cry  Bill,
I am so sorry to hear what you are going through. These Dr.'s that treat CP patients, for the most part, are a joke. They have no compassion for what anyone is going through. They are not doing the job that they were hired to do. Yes, hired. You hired them and pay for them to treat you. If they aren't I would remind them of what they are there for and how recluss(sp?) it is for them to allow you to go through withdraws and be in constant pain. If they refuse to do anything, I would fire them. Yep..fire them. Get refferals from anywhere. People you know, hospitals, etc. When you call for your innital app. ask the questions. How do they treat people with your conditions? Do they prescribe meds? What is there practice if a patient has severe issues after hours? I hope you can find some relief. No-one should have to suffer like you are. Good luck!! Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/11/2010 8:37 PM (GMT -7)   
Skeye, has some pretty good advice to follow!


SE
"Respect your fellow human being, treat them fairly, disagree with them honestly, enjoy their friendship, explore your thoughts about one another candidly, work together for a common goal and help one another achieve it."

Áthas
Regular Member


Date Joined Aug 2010
Total Posts : 55
   Posted 8/11/2010 11:08 PM (GMT -7)   
*shakes head* Gosh, Bill, I find it impossible, though unfortunately not surprising how they just shift responsibilities and let you suffer the consequences. Unfortunately, I don't have any advice, but I hope that it will work out for your best somehow. Doctors generally don't seem to be the most understanding people.

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 8/12/2010 5:44 AM (GMT -7)   
Bill,
 
I am sorry you are going through this. I have had some similar issues with PM docs, surgeons, and PCP's as well. It seems like no one will help, and that they don't care how much pain you are in. It stinks, and the medical community doesn't seem to want to change it, since that would  be close to claiming responsibility!
 
But seriously, I have been there, and am still there. I hope things get better for you and you find a doc that is willing to work with you.
 
Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, and adhesions.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/12/2010 8:38 AM (GMT -7)   
 
   Dear Bill,
 
    It is nice to hear from you. I am sorry to hear you were in the hospital and worse to be treated like that while in the hospital must have been terrible. Is anyone taking responsibility for your care atall? I would be very upset if I were in your shoes. To be dropped like that for no reason is every chronic pain patients worse nightmare.
 
     What are you going to do about your care from here on out? Are you going to change all of your doctors or try to get down to the bottom of "why" they wont perscribe your medicine anymore? I just dont know what to say. I am shocked they would do this to you. I really hope that someone can help you. I am so sorry you have to deal with all of it.
 
*hugg*
  dani

 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/12/2010 2:03 PM (GMT -7)   
Hi all-
Thank you SO much for the replies and advice. I didn't even think to ask if they would tell me where my original PM doctor went to. I have to ask that for sure.
I am going to a University teaching hospital for this and now I am worried any of them may just up and leave without notice. I am going to see my PCP next week and ask her if she will be willing to help out and maybe know any other PM docs.
I have found if I am able to keep my mind busy it does ease the withdrawls a bit. Thank goodness for the seroquel I take at night. It helps me get to sleep and stay asleep quickly. The first couple nights that didn't even work and those were some LONG nights. I believe I am past the worst now and hope I don't have to do it again though.

Thanks again for all the replies

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/12/2010 2:25 PM (GMT -7)   
Hi, Bill,
I'm late coming to the party, as usual, but sorry to read you really have joined the maze of the CP world. I would first suggest you call either your psychiatrist, your old PM's office and/or your PCP and see if you can get some help with withdrawals, and stepping down more gradually from that dose. Your psychiatrist should have known better - especially if he's going to even attempt to prescribe pain meds. Shame on him! I actually am working with a psychiatrist for PM and he's had extra training for it because he has so many CP patients, and he knows how difficult it is for us to get decent care. He at least listens to my input, but unfortunately he's a solo practitioner and is extremely busy, so he doesn't always get back to me right away. That's what I've accepted in return for his knowledge and kindness in taking me on as a pain patient who also has depression.

You know doctors can and do leave hospital clinics all the time - either to go to other places, or to set up a private practice. You first PM may have done that, or joined a group practice. Problem is the place she used to work may not tell you where she's gone - especially if she's now become competition in the local area. You could try seeing if there's a new phone listing under her name, or call other pain docs in the area and see if she may have joined a practice. While you're doing that, you can also investigate what services each of the pain management docs do. Not all PM docs are created equal, so to speak. Many now only do interventional procedures (like the ablation you had) and don't like prescribing meds at all. So you want someone that is willing ideally to do both, but definitely is willing to look at and follow you for medication. You shouldn't have to suffer. I know you're still trying to work and enjoy life with the baseball team, and I'd hate to see that affected (any more than it already is) when it doesn't have to be.

Don't give up! It takes many of us a lot of tries to find the right PM doctor. Many, many tries!

PaLady

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4648
   Posted 8/12/2010 3:16 PM (GMT -7)   
I had worse luck with U hospital for my (3) rib injections than a little outlying hospital. It does make a difference where and how they inject/cut/zap.

The U guy injected in the front of my ribs at some nerves, and it didn't work at all. The pain doc at the suburban hospital injected next to the spine and it helped for months, just coming back now. I'll go back to him for a second injection and then for an ablation (have to check out what type he recommends) when that wears off. Ablation is supposed to work for at least months, but the nerves do grow back.
Alcie
 
 

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/13/2010 3:04 AM (GMT -7)   
PaLady-
Thanks for your great advice. I do now really understand the frustration of just wanting relief and how hard it can be to get.

Alcie- I have had injections at the pain site and close to the spine and I got much better results closer to the spine also. Unfortunately mine no longer lasted months or even weeks, just a few days. Glad you found someone who can help.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

usmc155
Regular Member


Date Joined Mar 2009
Total Posts : 22
   Posted 8/13/2010 4:44 PM (GMT -7)   
Been there. You must watch how many docs you approach. Usually a GP will write with authorization given from a pain center or a pain doc. Go easy. This can be a slippery slope.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/13/2010 9:17 PM (GMT -7)   
Bill
Most of the time the injections work better near the spine because that is where the actual cause of the pain is, irritation or inflamation of the nerve roots, but you rarely actually feel the pain at that spot, you usually feel the pain some where down the path way of that nerve. Like epidurals they inject the steroid to reduce the inflamation that occurs where the nerve root is injured. It blocks the inflamation process, and thus reduced inflamation, which reduces the swelling, and thus reduces the pressure on the nerve and thus less pain! That is why allot of times the surgeons often use the epidural injections as a diagnostic tool, if the injection reduces the pain, then that indicates that is the spot or the nerve that is bad, and thus that is the place that needs the surgery done. as in diskectomy or laminectomy or what ever.

It is to bad that more Doctors ( especially Pain Doctors) are not more aware on the proper procedures of weaning a patient down to a lower dosage of pain med. Or even completely off of them! Most are aware of doing it with prednisone, or other steroids, but not with pain meds! Unfortunately the patient is the one that suffers!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!
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