no more roxicodone

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yankee girl
Regular Member


Date Joined Nov 2008
Total Posts : 125
   Posted 8/13/2010 11:58 AM (GMT -7)   
Just got back from my PM appointment. Due to the bad press on pain clinics here in central FL, my PM doctor has taken me off roxicodone--I was taking 5, 15 mg. per day.  It was perfect. My pain was controlled. I was able to function well at work (I'm a teacher)....
 
He gave me a choice of what to take--I chose percocet...HOWEVER, he kept me at 5 pills a day, and they're only 10 mg. Each pill is 33 1/3 less than what my body is used to. I asked him about withdrawal, he assured me since I will have SOME medicine in my body, that it won't be an issue.
 
I am the model patient...I never called to reschedule for an earlier appt, never ran out of pills...I'm drug-tested, so they know I'm not the one selling them on the streets....
 
He did say if I have a problem, to certainly go back to see him..one of the options he gave was opana (sp?) and I'm not familiar with that...
 
I'm not happy...school starts Monday....
 
Has anyone else faced this? Thanks to all who has read this.
 severe nerve damage/several surgeries on wrist, fibro,TMJ, PTSD
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 8/13/2010 12:26 PM (GMT -7)   
Oh YankeeGir,l I am so sorry to hear this. Yes, we have been hearing about the problems in FLorida and its just disgusting. Like you say, you have a medication that works, now it is no longer available, it just seems so unfair to CP patients to have to deal with crap like this. That does sound like quite a bit of a decrease in meds, I just hope he is correct and you don't have any problems. I have no experience with Opana but I believe some other members here have taken it and perhaps when they see your post they will pop on.

If you start having withdrawal type symptoms please contact your dr immediately. I had that problem when I was on Fentanly patches and its no fun. Take care. Susie

yankee girl
Regular Member


Date Joined Nov 2008
Total Posts : 125
   Posted 8/14/2010 12:09 AM (GMT -7)   
hi Susie,
 
Thanks so much for responding. I'm just sick about this.
 Funny, he seemed slightly concerned as to when school started, like he might have been worried about the decrease himself, just didn't tell me.....
 
 
 
thanks so much for writing...
 
Natalie
 severe nerve damage/several surgeries on wrist, fibro,TMJ, PTSD
 

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 8/14/2010 3:05 AM (GMT -7)   
How is the new medication working? It's ashame that your doctor is doing this, but it sounds like he will work with you if your pain isn't under control.

Flower

yankee girl
Regular Member


Date Joined Nov 2008
Total Posts : 125
   Posted 8/14/2010 4:35 AM (GMT -7)   
the new meds aren't the same...they're not as strong as the roxys...i've been up since 2, with severe pains, sweats (like hot flashes only worse)......I'm ready to cry as I'm trying to NOT take my first dose for as long as possible...

severe nerve damage/several surgeries on wrist, fibro, had jaw discs replaced due to TMJ, PTSD

yankee girl
Regular Member


Date Joined Nov 2008
Total Posts : 125
   Posted 8/14/2010 5:31 AM (GMT -7)   

Susie as well as anyone else with experience re: Fendyl (spelling?) patches....what problems do you have with them (if any), do you find them effective? (I certainly understand that everyone is different).

He also mentioned this as an option....I'm really angry with myself for not demanding an equivilant amount of the new meds...but I was so shocked that this was happening...

I'm going to have to call and get back in.  Even though he's a reputable doctor, the majority of his staff has that "look" when they speak to patients--like we're all drug seekers...god, I hate this...I just want to control my pain so I can do my job and have some quality of life.

 


severe nerve damage/several surgeries on wrist, fibro, had jaw discs replaced due to TMJ, PTSD

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 8/14/2010 10:17 AM (GMT -7)   
Yankee Girl they did control my pain very well but one of the things many people experience with them is they only last for 48 hours insead of 72 hours. It can be difficult getting a dr to rx them every 48 hours too. So that is something for you to keep in mind when talking to the dr about them. This is a widespread problem with the patches. My problem with them was I started on them in the spring and when I went outside and started getting warm they released too much medication which was not a good feeling and then of course because of that the life of the patch was shortened and I ended up in withdrawls for the next 24 hours and that was horrible. You cannot do anything that will cause a change in your body temperature, no hot showers that sort of thing. I love being outdoors. I also had trouble getting them to stick and stay on till I discovered these coverings called TegaDerm, which is like the clear covering they place over an IV that really sticks. So I got that problem taken care of. When the dr increased the patch to 75 mcg I was unable to urinate so I had to go off of the patch. As far as I am concerned it was a blessing in disguise for me. Spending that 3rd day in withdrawals was no fun and it was no fun for my family either. My daughter later told me, momma that was one drug that was no good for you because you were just awful as long as you were on those things, lol.

If I can help you let me know...Susie

yankee girl
Regular Member


Date Joined Nov 2008
Total Posts : 125
   Posted 8/14/2010 2:40 PM (GMT -7)   

Thanks for the info Susie--I don't think I want to try the patches after reading what you've been through..

Would it be better to ask that he add 2 additional percocets each day? That would put me only 5 mg short of what I had been taking with the roxys. Or would that be too much tylenol?

I'm so tired. Is this what eternity feels like?? sad


severe nerve damage/several surgeries on wrist, fibro, had jaw discs replaced due to TMJ, PTSD

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 8/14/2010 7:46 PM (GMT -7)   
Susie is right about the patches being difficult to keep on during the summer. In fact, I chose to go off them for the summer and probably will return to them in the fall. It really depends on the person and their metabolism whether or not the patches will last the full 72 hours but for most people they do last that full time. '
The matrix has been changed for most of the patches now, it is in the adhesive rather than in an alcohol based matrix. The adhesive matrix patches are much better at a standard absorption rate than the gel matrix used to be so there are fewer problems with rapid absorption than there used to be.
Fentanyl is a great pain medication if you need it but some do take some time to get used to the medication, like any other pain medication it has it's pluses and minuses when it comes to side effects.
Opana is a hydromorphone medication, similar to fentanyl in it's place on the pain medication scale. I tried it and didn't like it because it caused too much nausea, but I know of many others who have had great pain relief with it and minimal side effects.
For someone with chronic pain who is taking a medication with tylenol in it, the maximum daily intake of acetominophen isn't supposed to be more than 3 grains or 3, 000 mg and most often less is recommended because of the long term impact on your liver.
Most of the time, when medications are changed, they take what the daily dose of your current med is, convert it to the new med and then reduce the daily dosage by around 25% sometimes more for cross tolerance. Cross tolerance simply put means that the new medication is reduced in the event that there are side effects and for another reason and that is that the new medication might work better for you at a lower dose. It is also so that the doctor has some tweaking room to adjust your dose if you need it.
Most percocet has 500 mg of tylenol in it, so taking 5 a day is putting you right around the maximum daily dose of tylenol. Most PM doctors like the keep the intake of tylenol around 2500 mg a day if you are going to be taking something long term.
Hope all of this helps you out some,
Sandi
PS Hi folks.........miss you all.
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 8/14/2010 9:49 PM (GMT -7)   
YankeeGirl why not give the Opana a try. You know we all metabolize these medications so differently and how we react to them is just not the same. I would hate for you to possibly pass up something that may work very well for you, provided of course you have no troubles with Morphine. Then if the Opana is not for you give the patches a try because they do give good pain coverage. I liked Sandy's idea of using them in the fall/winter months when the temps are much cooler. Another thing is you cannot get in a hot jacuzzi with a patch. Once a patch is put on you are not suppose to take it on and off either. My mon was on the patch as she had terminal lung cancer and it helped her so much in the pain dept. Lets face it there are down sides to nearly all pain meds. I have Dilaudid in my pump and you cannot believe how bad I sweat on this stuff. It is year round no matter if its 105 or 5 degrees outside I am sweating. My head sweats really bad and it gets downright embarrassing.I am always having to have my Viva paper towels in my pockets because of this.

I totally forgot about the Tylenol in the percocet. I am so glad Mrs123 saw this post, as she always has very goof info to pass on to members. The main thing is try to get a hold of your dr come Monday morning and not let this drag on thinking it will get better. Keep us posted and hang in there..Susie
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