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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/13/2010 1:19 PM (GMT -7)   
Feeling awful. Typing is so hard. Reading posts for the Crohns and Fibromyalgia and Chronic forums and honestly, it's inspiring mentally. I just can't transfer the relief and joy and pure goodness that I see when I read these threads and see so many people in our situations offering up help, advice, good wishes, prayers...
 
It's inspiring and humbling. Still can't transfer that heart and mind happiness into my nerve endings and muscles and tendons that are so tight and unrepsonsive. Still, maybe with this relief and happy feeling, my stomach/side pain will ease enough for me to get some sleep.
 
Good night...er...afternoon??? LOL And I wish everyone a good rest and a day of manageable pain...or even ten minutes of this truly joyful feeling I've got in me...to everyone out there.
 
Keep your chin up. We've all got inner wells of strength so deep that those poor regular mortals out there have no concept of.
 
Happy thoughts and a great day for everyone out there on HealingWell.
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/13/2010 9:47 PM (GMT -7)   
Joie1

Just know that we are all here, to listen and share in your pain, Your not alone, at least not when you are here among family!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/14/2010 7:48 AM (GMT -7)   

 

   Dear Joie,

     Good morning! I don't seem to remember if I have introduced myself or not... But! My name is Dani and it is very nice to meet you. I am so glad you found your way over here to the chronic pain forum. As you can see, we have a great group of people over here!

     After reading your post I cannot help but wonder if you are seeing a pain management sepcialist? If not, then I would highly recommend you see one. It is really important to seek out one when we are diagnosed with painful chronic (often times life long) conditions. From my understanding, Fibromyalgia and Chrons disease are increadibly painful. Alone, they are painful and life altering. Together? They are debilitating. I am so very sorry you are hurting so much! I think it is time to seek out more specialized help for your pain.

     Again, it was oh so nice to meet you. I look forward to knowing you better as time goes by.

*hugg*
  dani


 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 8/15/2010 8:18 AM (GMT -7)   
Joie,

Welcome to the forum!

My grandmother developed Chrons Disease in her 60's. She was able to take some medicine that helped it. And that was 20 some odd years ago.

I remember seeing a commercial recently with a hockey player (I believe it was) who was endorsing a NEW medicine for Chrons Disease with the "you don't have to suffer anymore."

It's good to know that the pharmaceutical companies are working towards new and improved medicine and hopefully a cure. Keep positive and good luck to you.

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/15/2010 4:47 PM (GMT -7)   
Joie,
I am so sorry you are in so much pain. I am sorry we have to relate to one another in such an awfull way. Please vent often and as Dani said a pain specialists sounds like it might be a good idea for you. Take care, and feel better!! Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.
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