~ Weekly Roll Call

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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/16/2010 9:20 AM (GMT -7)   
Good Morning Chronic Pain Friends!
 
      Well it is another beautiful monday morning! Though I would love nothing more than to fast forward to friday...... it is Monday. There are tasks to complete, jobs to do and appointments that need to be kept.
 
      Often times we are so busy supporting others that we often forget to update about ourselves. So, before we get too wrapped up in starting out the week... please, stop by and let us know how you are doing. Even if you are in alot of pain or not in much pain, give us an update. We want to know how you are doing.
 
What are your major planns for the week?
How are you feeling & what has your pain scale been like over the weekend?

 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 8/16/2010 10:16 AM (GMT -7)   
Hummm, where do i start. My pain level has been off the wall for way too long. I went to emerg. on Friday after my MRI. Knowing that nothing would really come of it, I had to do this for myself and try hard anyways to get admitted. The only thing that came of it is getting in to see a neurologist quicker. I called this am and my appt is Sept. 7. I have tried everything possible it seems for pain so no help in that department. Appts. this week; saw chiro today, massage tomorrow and craniosacral on friday. Otherwise just trying to get thru each day, one day at a time, keeping ice on my head and praying for better days ahead.

Wishing each of you a low pain week.
One day at a time!!

SUZANE

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/16/2010 10:19 AM (GMT -7)   
Monica checking in
 
This weekend was not good. Went to the doctors on Friday, can't stop sleeping, and more pain and sore throat. Primary sorta rushed me out of the office with a Z-Pac, I think it is more like EBV or something. Had mono before seems a lot alike but not as bad. So I was in bed all weekend sleeping, so of course that means sore city on all my joints and my back. Oh and Friday night, somehow I managed a migrane amist all the confusion. It was bad, thought I'd end up at the ER, but was able to hang on till the meds eventually took over.
 
This week, will be a better week!!!
 
 
Hopegirl... 
 
Taking it one day at a time.... 

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 8/16/2010 10:42 AM (GMT -7)   
Morning all,

I haven't been posting much as there isn't much for me to say. My pain levels are finally being managed comfortably, and now I may have to go off the one drug that's really helping the most. I've been getting increasing pain in my hands/fingers that were never really a problem before. I was recently diagnosed with Carpal Tunnel so I guess I should get the tests done, and arrange to have surgery to get things back to normal. If that doesn't relieve the pain, then I'll have to assume its the last drug I started taking - the Cesamet.

We recently increased the dosage, and the new pains I was experiencing increased as well so I think it's pretty safe to assume where the issue is. Just one more stupid body part that doesn't want to work properly. If I do have to stop the Cesamet, I"m going to be so miserable - it's really worked with the Cymbalta and Oxycontin to give me really good pain relief everywhere else, but if it's affecting my small joints....well, I don't want to take a risk of doing permanent damage there.

I guess I just hurry up and wait some more for appointments and tests, etc. The wait times here for anything are unbelievable....it could take a year before I see a surgeon for my hips.

Hope everyone is doing as well as possible.

Pam
Under Construction.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/16/2010 11:15 AM (GMT -7)   

 

   Well... Where to start?

     My pain scale is the lowest it has ever been in the three years I have been in pain. As I sit here typing, it is at a 6. No kidding. I am consistantly making it to 5 and 6pm before I reach an average of level 8. I am sleeping 4 to 5 hours per night, only waking 5-10 times per night. This morning I slept for 4 hours. I only woke 6 times. I just took my meds, enjoyed a fresh cup of coffee with way to much creamer and waited for the sun to come up. I felt really nice.

     I don't like the "foggyness" that came with the medicine increases. It still makes the "inside me" uncomfortable. I think it is safe to assume this is as good as things will get with reguards to tolerance to the meds. I just wish it wasn't so.. detached... so... uncomfortable.

     My caffiene ban has finally been lifted. I was under the impression that it would be life long. Though it did effect my testing by 1 to 2 points, it is such a small difference that I can safly consume a mild amount of caffiene again. It helps to battle the "foggyness" minimally, but enough to help somewhat.

    I am confused and baffled right now. Perhaps it is just because of the meds... It hardly seems fair? To finally be so low on the pain scale and still have such termendous decisions in my future? Mixed up, backwords world we live in.

     This week is going to be crazy and busy to no end. So much planned I am worried I will even be able to keep up. With a little luck and a lot of prayer, things will work out just fine.
 
*hugg*
  dani

 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 8/16/2010 2:24 PM (GMT -7)   
Hello my dear friends/family, I have not been posting much lately because I am trying not to be so negative. I will fill you all in now since it is the weekly check in! Seems like I am in a holding pattern.....and it is a bad one! I hurt everywhere!!! I kind of slipped on Thursday night and caused more pain in my back which was compounded by my monthly visitor on Friday morning! I always have had most of my cramping in my back and ever since I got hurt it has just got worse! Then you throw in the cysts and it makes it really bad! I had a terrible weekend....spent most of it in bed! Still just hanging in there and we shall see what happens!! Nothing planned for this week....but the Rheumy comes back on Saturday.....so I will stop the steroids Sunday and hope that I will get some answers soon!! Sending healing thoughts to you all!! Take care!
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 8/16/2010 2:36 PM (GMT -7)   
It's awful to hear everyone is suffering so terribly. I wish we could all find answers to our chronic pain or just a little less pain so we could enjoy our lives.
It is comforting to know we have each other here to talk to, to share our sorrows, to support each other in a non-judgemental way, and to come here each day, day after day.

God Bless you all!!
One day at a time!!

SUZANE

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/16/2010 4:37 PM (GMT -7)   
Hey everyone cry . Well I have had a rough weekend, what with my mom and all. I haven't thought about much else. I've already talked to her 4 times since thursday. My pain has been off the charts. If i had to say thank god for reherniating my disc a week and a half ago..I would. They gave me predisone and vicodin. I am always an advocate for taking meds as they are prescribed, but about 5 days after going to er my back felt better so i held onto the vicodin. This weekend i had to use it for my joint pain, and headaches. It helped so much more than my tramadol and cymbalta do. It was the combo of that and the predisone. I have my new Rhuemy app. on Friday and new pr. dr. on Monday. I'm am so nervous that I will end up with two more overpaid quacks. I don't want to think like that but my spirits are low right now so that's how it is. I didn't do anything this weekend but clean and help my oldest host his first gaming party, since some his friends leave for college this week.(12 straight hours..I don't know how they do it). So I not only cooked for our 7 but 11 other young adults. They had a good time though so it was fun!! Well hang in there everyone 4 days left..we can do it yes we can!!! There that was my cheer. Did it work? Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 8/16/2010 7:54 PM (GMT -7)   
Hello all!  This weekend was really busy! Saturday we had a wedding that was an hour and a half away from home, and since it was family, we HAD to go. Plus, the ceremony was at 3, and dinner didn't start until 6, and standing around waiting for the photos, etc., really tested my limits. Then Sunday we had an event at church that I had to attend for my Outreach team (all of us in tie dye t-shirts, you should have seen it!) and driving my two boys another hour and 15 minutes to church camp for the week. Needless to say with all that travelling my pain is pretty high.
 
We still took the time last night and tonight to go out for dinner and treat ourselves as a couple to some quiet and greatly missed date nights and time with friends. Tomorrow I have a Mary Kay party at my home, and thank goodness I have such a helpful fiance, since he is up late with me helping me clean.
 
I hope you are all doing well. My prayers are with you all!
Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, and adhesions.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/16/2010 9:39 PM (GMT -7)   
I'm so sorry that so many people are having a rough time :( I hold you all in my constant prayers...

Dani, I know you still have so much going on BUT just to hear you have some improvement in your pain makes me so happy for you. I hate all the side effects and everything else for you.... but I'm always so glad to hear when someone has better control of their pain.

Some old stuff here. 30+ weeks w/ the girls. We are naming them Alyssa (Ally) Joy and Hailee Faith... (there you go, SE, no more Baby A and Baby B!) :) They'll be delivered in 2 to 4 weeks depending on my health and such. So, either end of this month or 1st two weeks in September.

Pain still constant and high. Very worried about the pain after surgery (I'll be having my 7th - and FINAL - c-section). Need to go make a plan w/ my PM doc for afterwards. I'm anxious about dealing w/ chronic pain AND acute pain.

That's it for this week :) Just getting ready, too, for "Back to School" :) --Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/17/2010 1:20 AM (GMT -7)   
Like tmj I too have been off the chart as far as the pain goes for the past couple of weeks. It's so bad that I have resigned myself to my recliner and refuse to move. Of course, hubby has really been worried about me and is mad at WC for not getting things moving faster. But hey....I have been working on my latest project, crocheting! Yes, I crochet when I can, but my fingers are getting arthritis (ohhh the joys of getting older) and I can't hold the yarn and needle for very long.

My knee is still acting up. But that too is par for the course. Other then that.....Just peachy here!!! Trying to stay positive and happy!

Hugsss

Scarred
I live to "Tame My Pain!" 

JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 8/17/2010 3:35 AM (GMT -7)   
Hey Ya'll. I went back to work for teacher in-service this week. Students come back next week. So much to do. I didn't even have the time to get stressed or even think of my pain levels. Sometimes being busy is good for my pain. I'll update everyone come Friday! lol I'm sure the levels are in the upper 9-10's! :-)
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