For Frances2008

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/17/2010 3:52 PM (GMT -7)   
Hi, Frances,
I noticed your post on another thread about the "meltdown" at your PM's office, and I think it's all very understandable considering the stress you're under. Sounds like the best thing may be to drop a note to him/her and explain how all the stress is affecting you, and you hope he/she can understand that you really do need your medications.

The wait with the job, the foreclosure, no A/C added to the problems with your PM's office - well, you know anyone of those alone is stress enough, but piled on eachother? Too much for pretty much anyone, especially those of us having to deal with things alone.

I just wanted you to know I was thinking of you, and offer some extra support during this rough patch. Anyone else who wants to add some support for Frances is more than welcome to add to this thread! yeah

((((((((((Frances2008)))))))))

PaLady

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 8/17/2010 3:58 PM (GMT -7)   
Big hugs for you Frances. Just know that we all care and are here for you all the time. Post when you can!!
One day at a time!!

SUZANE

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/17/2010 4:26 PM (GMT -7)   
PaLady... that was nice of you to start this thread :) I thought the same thoughts after reading her post..

Frances - thoughts and prayers going your way... I hope this rough patch of life quickly blows over and you can back to feeling better and such.

Re: what happened at your PM doc - I could be wrong, but it's sounds like you've always had a pretty good relationship w/ your doctor. Are you worried about things w/ him, or is he apt to understand the stress your are under and such? Trust me, I've had meltdowns before, too.... sometimes, it just all boils over :(

Anyway, just thinking about you and hoping your stress eases soon, Frances.

--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 8/17/2010 4:39 PM (GMT -7)   
I'm adding my prayers and hopes here too! Frances, everyone can understand a breakdown when you have had too much on you. We are here for you any time and all the time!

I hope you will find a compassionate and caring Dr who will give you what you need to help!

All my best!
Retired Mom

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 8/17/2010 4:48 PM (GMT -7)   
PAlady, thanks for posting this. I missed the other thread.

Frances, I'm so sorry that you're going through so much. Why did your doctor just take away your pain medications like that? Aren't they suppose to wean you if you have to go off of them?

I hope that things get better soon. It's ashame when we feel like we can't trust our doctors, since they are the ones who should be caring for us.

Sometimes people really let us down...thank God that there are others to bring us up.

Thinking of you,

Flower

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 8/17/2010 5:28 PM (GMT -7)   
PAlady, thanks for starting this!!

Frances, so sorry to hear about all you are going through! Life with CP is hard enough! Hang in there and know that you are thought about and loved!

Hugs,
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/17/2010 5:57 PM (GMT -7)   
Frances,
 I would like to say, as well, that we have all had our meltdowns. Sometimes life gets to be so much that we are sure we cannot take one more thing, especially when we are in pain. We are all here for you, just take care of you. Your dr. is bound to understand if you just explain how rough it has been. Take care Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 8/17/2010 6:13 PM (GMT -7)   
thanks all.

I did send him a note apologizing for having a meltdown & asking for help to at least get in with another clinic -- waiting to hear back. He did give me Catapres patches and I had a few extra Actiq to last a couple days. So it's not as if I am in some kind of medical danger. Just miserable.

I get it though. If he wanted all that drama he would have become a psychiatrist. I need to pull myself together better. He did say that maybe I will do better without pain meds. So I'm trying to accept that. It's just scary though b/c I remember what I was like with the idiot PM I saw when I first was in pain who would write for one med & one med only (& of course I was allergic to it, so I took it maybe twice a month). I missed an average of 10 months of work out of every year & was totally miserable. I went through so many jobs & had pretty much given up all hope.

And now I feel like I've fought tooth-and-nail for the last 7 years for nothing. Just when I'm on the brink of pulling things together, so it would seem, every single solitary thing falls apart like a house of cards. No job, no home, no meds, no insurance, no hope. How is someone with CP supposed to survive on the street? Apparently the correct answer is "one day at a time". Yeah. Right.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/17/2010 8:37 PM (GMT -7)   
Frances,
I wish you lived closer I'd say just come and stay here for awhile, even though you'd have to sleep on a pretty old couch, and deal with a house that's falling apart because I can't afford to make the needed repairs. The one thing I did right was at least pay off the mortgage or I'd be out on the street, too. Or likely in a room some relative loaned me for awhile.

So I'm not in your shoes completely, but close, and I think I get it. I've been there, and in some ways still am, in a pretty desperate place, and have found I've had to sort of beg for help from a few relatives. A couple of stepped up to the plate, or I wouldn't be hanging on. Do you have anyone you can stay with, lean on for awhile? You may have to actually ask someone outright for help, and oh, I know how hard that is when one has been independent. But that job still may be a possibility for you - don't give up on that.

Seriously - is there anyone you can lean on - even someone you'd prefer not to ask, but maybe you're at the point you just have to? A relative, a friend?

PaLady
p.s. I hope I'm not intruding or causing you more discomfort by posting this. Please let me know if I am and I'll delete this! I just know how tough it is, and that so much of what you're going through is from some beyond "bad luck" with this economy and the housing market. You've worked so hard and are so close with this new potential opportunity.....just know I'm thinking of you and in your corner!

Post Edited (PAlady) : 8/18/2010 12:59:35 PM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 8/18/2010 12:50 PM (GMT -7)   
Frances, you have way too much stress going on in your life for a dr to just say no more pain meds. That is the last thing you need to be dealing with, Catapress or not. So, maybe if he will refer you out it may be in your best interest to leave that environment. I too, thought you had a good relationship with this guy, you have always indicated you did. That is what is so disturbing, I don't care if you lost it in his office or not, he has treated you long enough to know you better I would have thought. I am so sorry you are having such a hard time, it just seems like things were going decent.

I did not realize you were working thru a temp agency. Was this 2 week conference you spoke of doing at this temp place? What happened, does this mean you will not be handling that for them after all? The timing just could not be worse for all of this to hit, kind of like being blind sided. You are always coming up with different agencies for people to contact when they get in a bind with no jobs an no money, can't any of those places help you?

Like Palady said sometimes we have to ask for help from the very last ones we ever want to, but that may be your only choice. Many times, I thought I would bite my tongue off before asking. Don't give up, you have not struggled the last 7 yrs to throw in the towel, you are a fighter and a tired one right now. Take care and please know we do worry about you. Lots of soft hugs coming your way..Susie

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 8/18/2010 1:59 PM (GMT -7)   
PA-
You didn't say anything to bother me. I'm just really drained right now. I did hear back from PM & he said he will give me some Actiq tomorrow morning & we're gonna try the new Onsolis.

Susie-
I was told the job was a done deal & just dependent on a background check. Then they tell me they need to run a credit check & motor vehicle record check & & & ... pretty much everything but rights to my future children. The hiring manager agreed not to require me to go to the conferences, but now everything's tied up with these stupid HR things. Starting 1 Jan 2011 we will have a law in IL saying that pre-employment credit checks are illegal except for financial services industry. And no one drives at all in the entire company as part of their job, so I really can't figure that one out. Sadly, none of that helps me out right now.
So I've been in limbo for several weeks now waiting for all this checking stuff to get wrapped up & am still working as a temp in the meanwhile. They did say I am their final candidate but that doesn't do me any good. No one will rent to you unless you have an offer letter (well, there's probably a few shady places). So I don't know what I'm going to do.
I'm just so overwhelmed with everything. Hopefully tomorrow will be a better day.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/18/2010 7:27 PM (GMT -7)   
(((((((Frances))))))))).

I'm sorry that you are having such a rough time lately. I'd tell you to try to stay positive & that things have got to get better from here, but I know that you know that & that you are doing the best you can -- which is all that you can do. Hang in there! We're all behind you 100%! I just wish there was something more that I could do to help...

Skeye

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 8/19/2010 6:56 PM (GMT -7)   
Thanks, Skeye.

Well, the misery continues. I went to pick up a script today. It was for 3 days b/c supposedly I was gonna get the Onsolis within 3 days. Well, of course I have the worse curse on me b/c the registration people have a huge backlog & didn't even get my information in their computers today. So I'm definitely not getting it within 3 days. So I will be out of meds on Saturday (again) & who knows what happens after that. I've already told them I'm not coming to work on Monday b/c I just can't stand this anymore.

I took a Toradol last night just to be able to sleep b/c I can't get any rest in this much pain. I had a huge project at work today & needed to focus so I took a couple doses of my medicine during the day -- little did I know that that was going to mean none for tonight. I tell ya, I just can't catch a break.

Sometimes I wonder why I even bother trying to get up & out of bed in the morning.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/19/2010 7:14 PM (GMT -7)   
O Francis, my heart is with you, I just couldn't stand the thought of no meds. You poor old thing.

Can't you plead your case to the registration people? Is there no one with a heart out there to help you?
Whats become of our caring medical prfessionals?

Big hugs, that break has to be around the corner, golitho

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 8/19/2010 7:26 PM (GMT -7)   
They have to ship it. So far, not only do they not have me in their system, they haven't completed the DEA mandated patient interview & don't have approval from my insurance. Idiots! I don't normally complain too much about drug reps but I'd like to that the lady who promised I didn't need more than 3 days worth of meds out back & shoot her. There is a special DEA policy for Onsolis that it can only be dispensed by an approved mail-order pharmacy. So it's not like I can just walk down the street & pick it up. They have to send it to my house. So the very best case scenario is delivery Monday by noon.

PM says I can come get another script for some more of my usual meds, but honestly he is 90 minutes each way. How the heck am I supposed to drive that 2 days in a row? I can barely move as is.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 8/19/2010 7:29 PM (GMT -7)   
PS -- I'm sorry to be so bitter. I just haven't gotten much sleep lately between the stress & the pain from packing. And it feels like all the negative things just keep piling up.
I was hoping to hear about the job this week, but was told it will be probably 3 more weeks before they decide. In addition to the mental stress of not knowing, I have to drive for 1.5 hours round trip for work each day. If I could get the job I would move within a few blocks of work, but for now it's just an awful lot of sitting. :(

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/19/2010 7:37 PM (GMT -7)   
You rant Francis, you need to get it out! Can't your PM ring a pharmacy or fax a script? I know my local pharmacy will give me scripts from a phone call from my doctor if I physically drop the script to her later. But I live in Australia its probably tighter regulations over there?
I wish I could make the drive for you, is there anyone who could pick up the script for you?
I'm trying to help I know you've probably thought of all these permutations at this stage?
My heart is with you, golitho

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/19/2010 7:53 PM (GMT -7)   
More hugs for you! ((((((((((Frances)))))))))))).

Skeye

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 8/19/2010 8:34 PM (GMT -7)   
Thanks Golitho.
Unfortunately, hard core pain medicines and a few other types of meds have special restrictions from the US Drug Enforcement Agency & state DEA's. These meds can only be filled with a physical script.

It is a huge pain to have to drive back & forth multiple times a week. I will try to see if I can get someone else to pick up the script, but because of privacy laws usually there must be a previously signed release on file with the doctor. I don't know why since a fax or copy is just as legal as a wet signature, but many places won't take a faxed release. I'm going to check, though. omg, when am I gonna catch a break?!!!

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/19/2010 9:56 PM (GMT -7)   
Frances,

I've been thinking of you; I can tell how wiped out you are from reading your posts. I'm so sorry. This whole thing just sucks; there's no better way to say it.

I hope you can figure out a way to p/u a script on Monday... at least to get the Actiq for a few more days. That way, you won't go through horrible withdrawals AND deal w/ the pain - on top of everything else. That's the last thing you need. I hope and pray you get the Onsolis very soon... but I know you are all too familiar w/ the "reality" of how that junk works... nobody's hurrying to do anything...and, meanwhile, you are stuck, suffering.

I wish there was more that we could do for you, Frances; but I agree w/ what's been said here - you've worked too hard to get where you are at... and we all are hoping and praying that you DO catch a break, here soon.

Keep venting and know that we care :(
--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 8/22/2010 4:56 PM (GMT -7)   
Frances I wish there was something more that could be done to help you out. I cannot believe your driving records, omg, yes they will want some sort of right to your future children I am sure. The credit check thing needs to be trashed as well. Come on, how many people are unemployed in this country and their credit is in the toilet. they have lost homes and cars and these are people with excellent credit. This is just not right. You already know this.

Keep your head up the best you can and hopefully you will get some medicine soon. Hugs, Susie

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 8/23/2010 5:06 PM (GMT -7)   
Thanks, Susie, I agree.

Thanks, Tina. Well, it seems there will be no Onsolis for me. In spite of being on round the clock narc pain meds for over 7 years, apparently I don't meet the gov'ts definition of "opioid tolerant". wth! does that make any sense to anyone else?

So I'm off tomorrow for script #3 in less than one week. If I have to keep this up, I may qualify for the stupid drug yet. I avoid driving like the plague for a reason. mad

wth is the point of inventing new drugs if no one can use them? this is just dumb. stupid people & stupid rules like this don't exist on scarred's island, do they? i'm outta here.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 8/24/2010 4:00 AM (GMT -7)   
Wow. That's terrible Frances. Will your doctor give you a normal thirty day scrip this time? I can't believe that they don't think you're tolerant? That makes no sense to me.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 11:57 PM (GMT -7)
There are a total of 2,735,765 posts in 301,329 threads.
View Active Threads


Who's Online
This forum has 151433 registered members. Please welcome our newest member, teenujohn.
177 Guest(s), 6 Registered Member(s) are currently online.  Details
0311, delta30, holo100, joavila92, Randy Eichner, celebrate life


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer