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Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/19/2010 6:16 AM (GMT -7)   
Hi all,
 
Waiting for my doctors appt next week, it feels like its taking forever. I need an increase of meds. Right now I take Oxycotin 20mgs 2X's a day 12 hrs apart. I talk Ultram 50 mg's 2 up to 3 times a day and percocets 5/325 for break thru. Well the percocets are gone because guess what? Break thru has been my middle name for the past month. Oxy was the greatest thing since sliced bread when I first started taking it. I was at 10, then my rhuemy bumped me up to 15. I'm not happy that I need some sort of increase, but the pain is crazy. Is 20 mgs the next step? Is this still considered a small dosage? I just always worry that if I am taking this now, if in the future if I need really strong medication, that it will not do anything for me. But my quality of life is not good right now.
 
 
Hopegirl... 
 
Taking it one day at a time.... 

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/19/2010 9:01 AM (GMT -7)   
Hopegirl

I am a bit confused, are you now taking 15mg or 20mg every every twelve hours, your first line says your are taking 20mg of Oxy every 12 hours, but later on you say you were bumped up from 10 to 15 mg every 12 hours, anyway every one is different, but for most even 20mg of Oxycontin every 12 hour is considered a relative small dose. I was started off on 10mg but very shortly was increased to 20mg q12hrs. Then several years later I was increased again to 40mg q12hrs, but I found like many that have posted here that take this med, that it just did not last the whole `12 hrs, so for the last year or two they changed it to 40mg q8hrs and that has worked much better for me. hopegirl if your pain is so high that your quality of life is not good at all, then you need to be talking to your Doctor about it, you should not be in that much pain, of course you will never be totaly pain free, but it should be manageable, if it is not, and it is affecting the quality of your life that much then document it and please please talk with your Doctor, maybe you will need an increase, explain to your docter everything and why you have to take the Percocets for break through, that right there shows that your pain is not bein adequatelly controlled! You should only have to take the Percocets just every once in a while for the break through! Maybe you will just need to be taking it more often like allot of us, like every 8 hours, your doctor should know what to do, just explain how bad the pain really is and do not try an make light of it, and sugar coat it, if your in bad pain the doctor needs to know!

Good Luck to You!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/19/2010 9:19 AM (GMT -7)   
 
White Beard,
 
Sorry, I'm rambling today...a lot going on at work with lay-offs and such.
 
I started out taking 10 mg every 12 hrs then
my rhuemy increased it to 15 mg every 12 hrs
 
I meet with her next week and plan on telling her everything that has been going on with the pain. I remember asking her if the 12 time frame was too long, she responded by saying that this medication is a 12 hour medicaiton...so I doubt if she will be doing much with that. She basically said that the time frame that the pain comes back, that I should be using the percocets for. I have to say honestly, I'm terrified each time I go and say that my pain is worse. Only up until 2 appts ago, she was pretty much not working with me on my pain factor, until she saw me on a day that I was pretty bad and said..."I'm going to manage your pain" due to the fact that she sent me to a PM and he basically said I should not even be on percocets or any narcotic because they did nothing for my pain. That had to be the worst doctors visit for me ever, I was crying and felt humiliated.
 
I do feel like now we are getting somewhere with my medication, but now quiet there yet. I know it takes time. I also feel that something else is going on, not sure if the Lyme is back or EBV or what...my fatigue and sleep is crazy. I can sleep all day and still feel somewhat tired when I wake up. So hopefully next thrusday I will get some bloodwork done and we can get to the bottom of what is going on. I know stress is a major player right now for me. Work, family...its very concentrated right now and I have to figure out ways of getting rid of some of it.
 
I'd really like to figure out something else besides the tramadol and percocet. The tramadol makes me nervous because of the Prestiqe that I take, and the perc's..well they just keep me awake.
 
 
Hopegirl... 
 
Taking it one day at a time.... 

finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 8/19/2010 10:25 AM (GMT -7)   
I have been taking the oxy's for over 3 years now and over time have worked myself up to 3 60mg a day.  It used to b 2 of the 60 mg, but with al the surgeries they have lined up for me and the pain associated with them because of the shape my spine is in, he lets me have 3 a day.  After surgery for about a month they gave me 3 80 mg a day, but I am ready to go back to the 60's because the 80's make me WAY too tired.  Oxycontin is just one of those meds that just when it seems like you have found your dose, it's not long befotre you find yourself asking for more.  There was even a time when I took a 60mg in the morning and a 40 mg at night.  Hopefully your doc will work with you unitl you find the dosage that works for you.   The only thing that is really different for me is my doc won't let me have percocets for breakthru, because it is the same drug as onycontin, just not time released.  He gives me 4 10 mg Lortabs every day for that along with a host of other meds for muscle relaxation.  I too seem to be ramblig today, so I hope this made some kind of sense to you,   hope it helped
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 8/19/2010 10:29 AM (GMT -7)   
I'm so sorry you are going through so much. I don't have any real knowledge of oxy, but I wanted to add a bit of support to your day!
Retired Mom

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 8/19/2010 10:57 AM (GMT -7)   
Hi Hopegirl,

I'm sorry you're finding problems with breakthrough pain while on the Oxycontin. I have the same problem. I'm currently on 40mg of Oxy, 2X a day, plus I take Tramacet for breakthrough pain. I had to give up the Percocets I used to use instead of the Tramacet, as I was having real problems with the side effects and we had to keep upping the dose over and over. We finally just overhauled all the meds I was taking and did an inventory on what worked, what didn't, what dosages needed to change, etc.

For some reason, I don't think we in Canada face quite as much hassle as Americans when it comes to getting pain meds prescribed and then playing around with dosages. Maybe it's just me...but I've never felt like I had to lie to my doctor or withhold information in order to get my meds changed up. I've just come right out and said, I don't think such and such is working for me...can we increase it or is there something else I could try?. I've never had my doctor ignore me or condemn me; rather, she goes out of her way to find and suggest things we might try. She's been my doctor for years and has always worked hard for me.

I think you just need to be honest Hopegirl and tell your doctor that you are just not getting the pain controlled like you have in the past and you'd like to discuss increasing the dosage of your Oxy, or take it 3 times a day. There's no reason to be shy about asking for what you need. I would hope your doctor would respect the fact you know your body and would act accordingly, but I guess that's too big a dream to hope for. I just hope your doctor listens to you and prescribes what you really need to feel better.

Big hugs to you Hopegirl...you're in my prayers!!

Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, IBS, IC-PBS, Carpal Tunnel Syndrome (both wrists), FAI, Reynauds, Opthalmic Migraines, Severe Hot Flashes, Physically Unable to Vomit due to Nissen Fundoplication Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vit. D and Multi-vitamin

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 8/19/2010 2:50 PM (GMT -7)   
I am on a very high dose of oxycontin, I agree with finallyreallycrazy, you get to a good dose then it quits working and you have to raise it again. Oxycontin has been a lifesaver for me, it is the only thing that controls my headaches. But again my body builds a tolerence pretty quick.

I am now on a dosage that is working great for me and I don't need any breakthru meds. I take 2 80's a day and a 40. I have to take them every 8 hours too because I don't get any where near 12 hours of relief. So even 2 20's a day is a pretty low dose, I wouldn't think your doctor would have a problem with that.

Take care and I hope you get some good pain relief soon.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/19/2010 9:11 PM (GMT -7)   
hopegirl

Oxycontin was made to be a 12 hour med, but even allot of pain Doctors are using the 8 hour dosing, as allot of people are finding that after 8 or nine hours there pain is coming back. I know my Doctor tried the 40mg every 8 hours, about 3 or so years ago and it was just to much, I felt drugged out, so at my request we went back to every 12 hours and more Percocets for break through, then I believe it was a year or two ago, that he tried me again at 40mg every 8 hours and what blessing it was I cut drasticly back on the percocets, for a while I didn't even take anything for break through, just get into my recliner when I would hurt. Just make sure that your Doctor understands your pain where it is, what increases it and what you can do to help relieve it, you might even consider keeping a log of your pain, and take it with you to your appointment.

You mentioned that you were tired and sleepy allot during the day, it sounds like you need to have some blood work done to see what is going on. Also, do you have any problems sleeping at night? snoring, or night sweats, or waking up gasping for air, or having the need to move your limbs (especially your legs during the night?) Do you find that you need to get up and go to the bathroom allot during the night? What I am getting at is possible sleep apnea, and you do not have to snore to have it! nor be over weight, or any of the other stereotypical things that they say about people with sleep apnea. You can be any age, or gender, or weitght, often people that take opiate type meds can suffer from Central Sleep apnea! So if your tired allot during the day, and if you have any of these problems with sleeping at night, if you have a spouse or a bed partner, ask them if they notice you having any problems with your sleep, being restless, or any of the other things that I mentioned. If you do mention it your Doctor may you might need to have a sleep study done and see a sleep apnea specialist. Just something to consider, I know I had it for years before being diagnosed, and even then it took them another 18 months before they finally got me on the right PAP treatment, but what a difference it has made in my life!

Anyway I do wish you well and hope everything works out well for you!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 8/20/2010 8:28 AM (GMT -7)   
Dear Hopegirl , I was taking 80 mg oxycontin , 3 tablets 2x per day , plus percocet 325mg , 2 tablets 4x per day , So it can get ridiculous , but I never felt as well as I did when I started eating right , juicing veggies and fruits and taking vitiamins and anti-oxidents . Be very careful about your increases , do you see a therapist ? Your state of mind has everything to do with what you can endure .If you feel good about yourself nothing looks as bad or hurts as much . Don't make the mistake I made , coming off an addiction to pain meds is horrible . Please try eating right and caring for your mind and body in the ways I've described , pain meds are definetly not the only response to pain , or the best response . Best of luck to you and please let us know how you are doing . Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery scheduled for August 23rd !

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/20/2010 9:25 AM (GMT -7)   

Good Morning Everyone!!!

 

Thank you all the helpful and caring words

I actually do have sleep apnea, but I could never get use the the cpap. It is rather mild from what the doctor said. Actually my husband has it also and could not get use to the mask. I would use it and by morning, it would always be in the same place either on the floor or no the night stand.

I can't wait to get to the doctors next week. Hope everyone has a great weekend!

 


 
 
Hopegirl... 
 
Taking it one day at a time.... 
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