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krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 8/23/2010 10:19 AM (GMT -7)   
Hi,
 
So I have finally decided to see a pain mang doc.  I go tomorrow.  What should I expect?  I have mostly tummy/pevlic pain as well as bad joint pain.  I am nervous...but not sure why.
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4648
   Posted 8/23/2010 3:33 PM (GMT -7)   
Are you seeing the right doc? Have the gastro, the ortho, the gyne and the rheumatologist all given up and referred you for pain management? I do see you've visited at least some of them.

Have you had ultrasound to rule out endometriosis? Other non-invasive tests like MRI or CT?

Pain doc can give you pain meds or cortisone shots or, eventually, nerve block or maybe ablation. Pain doc doesn't cure anything that I know of, just stops the pain.
Alcie
 
 

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/23/2010 4:54 PM (GMT -7)   
Hi Krw135,

It's not unusual to be apprehensive about seeing a pain management doctor for the first time (I know I was). There is such a stigma associated with pain meds, that it tends to makes those of us that truly need strong pain medication afraid to ask for help, because we don't want to be labeled as drug seeking. Just be honest with the doc. Explain how your pain affects your life & what measures you have taken to relieve it (ie, meds, ice/heat, procedures, etc) and what works/doesn't work. If you don't sleep because of your pain, tell him that. If you can't work because of your pain, tell him that. Pain management isn't just about reducing pain, but improving quality of life and your ability to function.

Don't be surprised if your doctor doesn't want to try pain meds first. Often they are kept as a last resort. That doesn't mean that you can't ask about pain meds, but be sure not to ask for a specific one by name (unless you have been on something recently prescribed for your pain that is helping). Let the doctor present options to you, that way you are less likely to be seen as drug seeking. Depending on your pain and your history, your doc might want to try you on antidepressants (yes, some of them are used for pain & in addition they may also be helpful for treating depression, which often afflicts us chronic pain patients), anti-seizure meds (used for nerve pain), muscle relaxers, steroids, or something else. He may also want you to try some pain-relieving procedures, like steroid injections or nerve blocks.

If your doctor does decide to start you on opioid pain medication, he will probably make you sign a pain contract, which states, among other things, that you will take only the meds that you are prescribed & that you will take them exactly as prescribed, you won't get/take pain meds from any other doctor (unless first approved by your PM), you will submit to random urine drug tests (to make sure that you are taking the right meds & the right amounts), etc. I know that this contract might seem kind of degrading, but it's all about liability. Although most patients are honest & take their meds as they should, some are not. Unfortunately it's the few bad patients that ruin it all for the rest of us.

Good luck tomorrow. Let us know how it goes!

hugs,
Skeye

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/23/2010 8:09 PM (GMT -7)   
krw135,
I haven't been to a pain dr. but wanted to make sure this is where you should be going as well. I'm sure you know better than us what you need, though. I just wanted to wish you luck and tell you it will be ok. Take care and post an update, Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 8/24/2010 6:04 AM (GMT -7)   
Hi! I just wanted to let you know that no matter where you go, the best thing I've ever done for myself and my docs has been going to the top of Chronic Pain, going into Chronic Pain 101 and scroll down. You'll find a section called Pain Journal and Pain Management (I think! Jeez the brain is foggy!!) Anyway, that pain journal was the best thing that every happened to me! I took it into my pain management and they did a complete turn around about how they were dealing with my pain! It helps to have questions asked right in the midst of the worst of the worst! You'll see, I just promise you things will go better once you are able to present to the doctor something in black and white and that you did your research to help yourself!
That's what I've done and things are better. Just my two cents worth....take care.
Stac
DX’d-Syringomyelia C-1 to T-1, DDD, Diabetes Type II, Migraines, Chronic Muscle Spasms, IBS, Panic Disorder, ICC, Hypothyroidism, Bipolar Disorder, Fibromyalgia. Emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06. Frozen Shoulder and Torn Rotator Cuff in Left Shoulder. Surgery for shoulder recently, now in Physical Therapy.

krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 8/24/2010 7:34 AM (GMT -7)   
Thank y'all so much! These replies mean a lot to me and have helped ease my anxiety a little. I go to the dr this afternoon. I have seen every kind of dr and tried everything to help with my pain. I know I have a lot of adhesions and my mom has literally dragged me around the world (went to Germany for adhesion removal) to help with all the pain. I have tried heat, ice, bath, accupuncture, massage, and I know other things I can't think of right now. My PCP does currently precscribe Norco, which does seem to take the edge off most days, but some times they don't seem to help at all. I am just wanting to see what my options are. I have decided that I don't want to live in pain when there is something that can help. I still work full time and hope to have a full life ahead of me. I am just so frustrated with my stomach:(

But again, I REALLY appreciate everyone for taking the time to respond to me! Thank you:)
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/24/2010 8:42 AM (GMT -7)   
I hope your appointment goes well, will be thinking of you...
Keep us posted...
((((((((((((((((((((((((((krw135)))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 8/24/2010 9:06 AM (GMT -7)   
Thank you- I will give an update after! I hope it goes well too!!!

You guys are the BEST! It is no nice to be able to talk to people and not feel judged and actually have people who understand real pain. Thank you all so much, i mean it!
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck
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