I am so sorry he scared you so badly. Did he understand your fears reguarding more procedures and contrast dye? I sure hope so. You have been through so much the last two years it doesnt seem fair that you have to endure even more.
Perhaps, when you go in for your CT, you can tell the tech about the reaction you have with the contrast dye? I do not know of any alternatives, but perhaps he/she can offer a new suggestion or reason for your reaction? I know the last thing you want is a barrage of testing, but the images will help your doctor to understand in detail what is happening to your spine.
I completly understand your fears reguarding an SCS. Who wouldnt be afraid? I think in your situation, the best thing to do is to arm yourself with knowladge. Learn everything and anything you possibly can about the SCS. That way when he "suggests" it again, you are able to have a conversation with him reguarding fact based risks and why you do not think it would be a wise decision (nor a good decision, you might change your mind by then?)? That way you are having a reasonable "meeting of the minds" reguarding it.
Most of all I am so sorry he has you going through a whirl wind of testing. I hope you are able to find a few moments to yourself today. Hang in there
Post Edited (retiredmom) : 8/26/2010 5:17:34 PM (GMT-6)
Happy Birthday Mom! :)