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suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 11:29 AM (GMT -7)   
Hi, I'm Suzi, and I'm a fibromyalgia sufferer! Sounds like an AA meeting. Anyway, I'm new here; this is my first post. I didn't know that FM could cause foot pain, but I sure know it now. It cost me my job last week (retail sales at Cracker Barrel). I've been seeing a podiatrist for about 2 months now, and I've had two sets of orthotics made. The first ones hurt so bad I couldn't wear them. The second ones are actually the first ones with a lot of cushioning on them. They feel better, but far, far from adequate. I thought I had plantar fasciitis, but after many tests, the answer was I don't. I slept in braces at night, did exercises... etc, all to no avail. It's neuropathy. I start therapy tomorrow; I'm really hoping it will help. I take Lyrica, Cymbalta, Tramadol and OTCs, which help with the other body pain, but don't seem to be helping with the foot pain. I heard about a med specifically for neuropathy called Neurontin. Has anyone used this med? Does it work? Even with insurance, all these meds are taxing our resources.

If you are experiencing sleep problems, see if you can get your doctor to order a sleep study. Mine did, and it turned out that I was getting NO REM sleep, which is the restorative phase of the cycle. (People used to think that REM - Rapid Eye Movement - meant they were dreaming. Made sense, but it was wrong.) So they put me on CPAP (Controlled Passive Air Pressure) and I've been using it for about a year now. It REALLY helps! Much more than sleeping pills, which tend to keep you OUT of that phase you need so much.

Thanks for listening. I don't have anyone around to share with. My husband and grown children are supportive, but I rarely mention it to others.

Suzi

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/29/2010 12:05 PM (GMT -7)   
Hello Suzi! Welcome to the forum! While I do not know much about Neurontin, I was on it for a very short time in the hospital during my back surgery.

My wife believes that it made me hallucinate severely, but I really question that, as I was on many meds for the recovery there.

I know there are others here who are on it, and I'm sure they will be along soon to help you with your question about it.

Give the members a chance, and they will be here soon!

I just really wanted to say Hello to you, and say that you have come to a very magical place for support.

We believe that we have the best forum on the internet for CP and a host of other conditions. Be sure to check out the Fibromyalgia forum as well, if you haven't already.

SE:)

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 1:14 PM (GMT -7)   
Thank you, SE! I have checked it out, and actually started the same thread there, as it is also a FM issue. I look forward to meeting other members!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/29/2010 1:44 PM (GMT -7)   
OK! You're off to a good start then! Be sure to involve yourself here, and as post often as you like.

Usually one of the Moderators will be along at some point to give you your official welcome :) They are Chutz and or Dani...White Beard and or Stray dog.

All of them...are wonderful people!....as are the members here. I think Chutz even hangs around the Fibro forum, so you may see her over there as well.

Take care!

SE:)

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 8/29/2010 2:16 PM (GMT -7)   
Hi Suzi. Welcome aboard. I am Suzane and I suffer from continous severe headaches. I am 52.
 
You will just love it here. The members are all so true to their hearts. I have made some wonderful friends. They all understand what we are going thru because they too have gone thru much the same, whether it's chronic pain, depression, loneliness, trouble with doctors, questions about tests, everything. We all come here to share, to vent, to be together, to help each other get thru those rough days. You will find you have a new family here.
 
Post again when you can.
 
hugs
One day at a time!!

SUZANE

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 2:40 PM (GMT -7)   
Thank you, Suzane! You seem like a warm and friendly person! I'm sorry for the pain of your headaches. I get one nearly every day, and if I don't catch it soon enough, it'll send me to bed.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 8/29/2010 2:46 PM (GMT -7)   
Hi Suzy -
I had foot pain and the podiatrist said my pain was from my back. Not neuropathy! Just a pinched branch of sciatic nerve where it comes out of the spine. One injection of cortisone and it was gone! (Two orthopedic surgeons mis-diagnosed it completely! One told me to go out and buy bigger shoes.)

Keep fussing with the podiatrist about the fit of the orthotics until you are happy. My guy has adjusted 4 times, free, mostly raised the wedge until it stopped my ankle pain. He says only the really hard plastic ones are worth using. The cork or other soft ones just don't support much. I can't stand to walk down the hallway without my supports unless I walk on the outside edge of my left foot.

I've also tried Lyrica and Neurontin for my fibromyalgia and feel much better now that I've stopped taking them. I am currently taking tramadol 100mg extended release and nothing more, except diazepam or temazepam on bad nights for sleep. It doesn't stop all the pain, but it's the only thing that stops the muscle pain for me.
Alcie
 
 

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 2:54 PM (GMT -7)   
My podiatrist agrees with yours. And I'm walking on the balls or the outsides of my feet, too. I tried wearing the inserts for a month, and all it did was make my feet hurt worse. That's when we decided to put a lot of padding on them. I still have the same, hard support underneath, so it holds my foot in the correct position. The doctor did a test to check for impingements and found quite a few. He says best as he can tell without surgery is they (little benign tumors) are wrapped around the nerves in various places in my feet, my knees, and one hip.

I once had sciatica so bad! The only thing that helped was sitting in a warm bath. The pain would go away as I sat in the tub, but the second I got out of the water, the pain would return. Strangest thing!

God bless you as you struggle to "be normal" in a very abnormal world!

Suzi

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 8/29/2010 5:39 PM (GMT -7)   
Suzi
I have a tiny hot tub in my bathroom - fits in what was the back half of a small walk-in closet. I sit in it twice a day and it helps a lot.

You might ask about the tramadol. Just don't take it with Flexeril, any narcotics, any tranquilizers except banzodiazipines, or you risk serotonin syndrome. I like it for my moderate - severe fibro and sciatic pain. I could use a lot more for my horribly arthritic spine, but heating pad helps along with an occasional Vicodin. I don't expect to ever not have pain.

Interesting about the little tumors. I've never heard of this before. Is this a condition with a name?
Alcie
 
 

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 7:30 PM (GMT -7)   
Yes. Hang on a minute. It's called Baxter's Nerve Entrapment. Here's where you can find it:

http://www.podiatrytoday.com/article/3160

(((Gentle hugs)))!

Suzi

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 8/30/2010 1:11 AM (GMT -7)   
Suzie,

My humble opinion is that maybe an epsom salt soak might help? Its generally good for sore muscles, and since FM does involve muscle pain, its worth a try :)
MRI revealed a bulging disc w/gel lost at L5 and showed the bulge touching nerves, causing sciatica. Diagnosed w/ Arthritis which is responsible for joint inflamation pain. Treatment: Nucynta 50-150 mgs every 6 hours (schedule II narcotic, Mu Opoid agonist and NE reuptake inhibitor), Celebrex 100 mgs, Klonopin .5, Epidurals, Radio Freq nuerotomy (sept 8th, 2010)

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 8/30/2010 3:35 AM (GMT -7)   
Suzi -
I read with interest the article but didn't notice on first reading anything about the tumors. I noticed they recommend a cortisone injection as a diagnostic test. I wonder if that would help you even if the nerve entrapment is caused by little tumors???

It was interesting that they said pronation is a probable cause of Baxters and also of plantar faciitis. Do you have a wedge in your orthotics? I have to laugh at the commercials that claim getting those $350 over-the-counter ones will cure pf. They don't even have wedges available, not to mention they don't accept insurance. You did right by seeing a podiatrist for your foot problem.

Is it in both feet?

I'm trying out tramadol 100mg extended release. The regular 50mg immediate release doesn't last long enough and I get in trouble all the time when I'm too late taking the second pill which I need 4 hours later. It's funny that I'm fine the rest of the day if I get the second pill on time, often don't need anything until the next morning. The 100's don't release enough right at first, but they do last 12 hours, and I don't need a noontime pill. It probably won't help the heel pain much, but it's pretty good for fibro muscle pain.

Best wishes.
Alcie
 
 

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 8/30/2010 9:08 AM (GMT -7)   
Hi Suzi,

Sorry I am little late in welcoming you, have not been feeling very good lately! Anyway, I just wanted to tell you that I am sorry for the conditions that brought you here but I am glad you found us! We have an amazing group here and you have already met some of them!

I have terrible foot pain from nerve impingement from my lower back problems, so I can relate to a point. I also had to quit a job that had me on my feet most of the day!

But mostly, I just wanted to chime in with a hello and welcome!

Hugs,
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/30/2010 6:40 PM (GMT -7)   
Thank you Becky, Alice, and grain-of-salt! I went for my first therapy treatment today. It's a more powerful TENSS unit. They hooked me up and I watched "The Ghost Whisperer" for an hour and then went home. My feet do feel better. Funny thing is, I could feel the pull of my muscles in my legs, but not my feet. She said, "I'm hoping this will help that." Yeah. Me too.

I do soak my feet, and it does feel good. I use a salt with mint in it so I can have the aroma therapy at the same time :)

Gosh, ya'll. You have a lot of things wrong. I'm so sorry! I know just how you feel!

Suzi
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