UPDATE, out of hospital

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Date Joined Jul 2010
Total Posts : 200
   Posted 8/31/2010 9:30 AM (GMT -6)   
My sister posted on here when i was too sick about what was happening but i will give a brief explanation of what happened and how im going now:)

basically, my abdominal pain which they still aren't sure of the cause got incredibly bad and i was fainting and vomiting, i then became unable to swallow anything and when i did it just got stuck and came back up eventually, it was the most horrible feeling.. i came dehydrated after a few days and with all the pain and dehydration my body went into shock and i just felt terrible, i wasn't very with it for days but eventually i got slightly better, still in lots of pain and not functioning completely normally and just not very with it.

its been a month since it all started but still not feeling a lot better so i decided that this may never heal again so i have to live with it and if i learn to live with it then it does get better, thats even better but for now i want to deal with it, i have a list of heaps of coping strategies my mum and i put together and we are trying everything to make it easier, her support and the support of my friends is incredible.

although the last thing i wanted to do was go out and go to school today, i made myself get up and go just for 2 hours to see how i went and try and make myself feeel normal.. it was one of the toughest things i have done in a long time just to be there and put on that "im fine" face.. but i saw all my friends and they are so lovely and supportive, a huge line of about 40 girls waiting to hug me, my best friend was there and she just ran up screaming and then we hugged for about 5 minutes and she started crying, i dont know if you all find it but it makes you feel so much better and makes things seem easier for a bit when you know how much people care? i sat through 2 classes not concentrating or taking anything in at all, but atleast i got there.. i got many comments saying i looked like a completely different person, tired, dazed, pale, sick and just not with it, but hopefully with time things will improve and my strength will build up.

in term of answers to my health.. there haven't been a lot yet but the doctors are starting to think that they know what it might be, they have only seen the condition in very very few other people and said its not please and will continue to spread around the body if it is that, but they can't be sure of anything until they do the test which i will have in a few weeks. i am praying its not this but i guess any answer will be okay and i will just have to accept it and deal with it.

i haven't told anyone else this yet and i don't know if i want to, i just get scared about the way people will see me, so i thought who better to tell than all of you..
the day at my doctor i was checking me out and he touched my arm and it really hurt, felt like he had grabbed me really hard, but he had hardly touched me at all, he had a look and found a lump in my arm.. he did an xray and it is a small tumor, i am having a biopsy in 3 days to see if its malignant, if the tumor is cancerous, if it is. he said it is likely that all this pain in my stomach has been caused by it all along and they just haven't picked up anything because of the lack of tests that have been done, because they have told me its all in my head... sure i wanted them to find something so i could prove its not in my head.. but i guess i didn't want this. the doctor said we will just have to wait and hold onto hope until we find out. i am so fond of this doctor, im newish to seeing him but i think hes the right one and is doing alot of tests to find out what this is. i just wish i had found hiim earlier but i guess at least i found him!! he is so amazing and just understands everything and is constantly telling me how many adults couldn't go through this yet i hold up with a smile, and he always checks to see how im holding up emotionally and if theres anything he can do to help our family. this is really encouraging and just good to have. im so happy with him.

anyways, thankyou all who bothered to read my babble!!
hope you are all doing alright and finding reason to smile.

hugs xx

Post Edited (buttercup:)) : 8/31/2010 10:30:25 AM (GMT-6)

Regular Member

Date Joined Mar 2010
Total Posts : 186
   Posted 8/31/2010 12:15 PM (GMT -6)   
Oh Buttercup, I hate to hear all this.  Not good at all.  I can relate to you on wanting them to find "something" wrong just to prove to everyone that this is really NOT in your head... but of course you never want them to find something so major.  I am really sorry you are going thru this right now.  Please keep us updated.

Regular Member

Date Joined Dec 2005
Total Posts : 256
   Posted 8/31/2010 1:18 PM (GMT -6)   
I can't even express how much respect I have for the fact that you went to school in the middle of all this.

That said, you're very lucky to have so many people that care. I often feel like the sicker I get, the less anyone gives a crap.

Veteran Member

Date Joined May 2010
Total Posts : 594
   Posted 8/31/2010 1:22 PM (GMT -6)   

I am so sorry you are going through all of this...but I am really glad to hear from you, I have been thinking about you and wondering how you were! You are a very tough young lady and have already gone through so much, I know you can get through this too sweetheart! I know you are scared and that is okay. We all get scared! I am also very sorry that people did not believe you about how sick you are! Thank goodness you have a doctor now that you trust....who believes you and is working to find out what is going on! Please keep us updated and please know that we all care about you very much!!

Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 8/31/2010 1:47 PM (GMT -6)   
Oh Buttercup,
I am so sorry for what you have been going through.  I simply cannot understand why it has taken so long for testing to be done. 
I'm glad you were able to see your friends again today at school, but sorry that you were suffering in the process.  You are very right that support can make all the difference some times.
I know words cannot express how much I feel for you, but I want you to know that you are on my mind and in my heart during this challenging time.  You are so young...too young to suffer so much.
You are in my prayers!
Retired Mom

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 8/31/2010 2:00 PM (GMT -6)   
wow, so very sorry it took this long to find a good doctor, hopefully things will get
done and you'll be better soon...
Prayers and Hugz to you................for now just take it one day at a time...
gosh your strong...
healing Hugz

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3602
   Posted 8/31/2010 6:30 PM (GMT -6)   

I do wish you all the best and hope that everything works out OK for you! You are so young to have to face such problems! Please keep your family close buttercup, they are your strength and support!

I keep you and your family in my prayers.

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Regular Member

Date Joined Aug 2010
Total Posts : 77
   Posted 8/31/2010 6:42 PM (GMT -6)   
I will keep you in my thoughts and I wish you the best possible outcome for your situation. This is a lot to go through. Based on your talking about school, I'm guessing you are quite young. Is this high school or college? My pain started young as well -- at 16 (herniated disc). It's hard, because many doctors don't seem to believe that a teenager can be in chronic pain.
Scoliosis fusion w/rods - 1992; herniated disc - 1996; partial removal of rods - 1997; microdiscectomy - 1997; sudden inc. in pain - 2008; tried the following non-pharm treatments: PT, aquatic therapy, TENS, acupuncture, piriformis injections, selective nerve root blocks; other: depression, anxiety, add; current meds: lyrica, baclofen, vicodin, topomax, tramadol, welbutrin, ativan, ritilin

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 8/31/2010 7:06 PM (GMT -6)   
Hi Buttercup, how horrendous for you to have doctors think its in your head when you're vomitting and in such pain. Especially when you're young, its bullying of the worst kind!
I am so glad you've got the support of your mom and friends and now found a doctor who is prepared to actually do some tests and find out what is actually going on.
I had a friend in Ireland who had really bad vommitting and they really thought it was in his head, sent him to a psychiatrist etc then a year later some docotr did some new test and it showed up he had cancer in his small intestine which is a very unusual place to get cancer. Anyway he has now recovered after surgery, chemo etc but imagine if he had just listened to the first set of doctors and thought it was in his head!
Trust your instinct, your body knows if something is wrong. You trust yourself Buttercup, best wishes and a big hug, golitho turn

Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 8/31/2010 7:43 PM (GMT -6)   
((((((((((Buttercup))))))))))))). As always, you amaze me with your strength - both emotional and physical. As always, you're in my thoughts and prayers. For better or worse, hopefully you will have some answers in the next couple of weeks.


Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 9/1/2010 12:54 AM (GMT -6)   
Buttercup, I just wanted to wish you all the best with the upcoming test. I'm so happy to hear you have a doctor who wants to find answers for you and it sounds like you have great family support as well. And your friends? What a treasure they must be for you, to be so concerned...it really made me smile to read about all the love and support you do have That's a blessing!

I'll keep you in my prayers and look forward to hearing how things are going.

Hang in there...you're an inspiration to many, whether you realized that or not. :-)

DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

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Regular Member

Date Joined Jul 2010
Total Posts : 200
   Posted 9/1/2010 6:01 AM (GMT -6)   
Thanks everyone for all the replies, it means so much to have all of you thinking about me and to know people care and i guess just to let everything out :) you are all so amazing and supportive and since i came here it has actually made me feel alot better about things and its good to talk to people that can actually relate, my best friend has crohns so she can relate to me but i don't like venting to her or complaining coz i feel bad when i do, not that i don't feel bad doing it here but i mean everyone is here for each other and expects it and needs to do it :)

some of you asked how old i am, i'm just 15 and in year 10 at highschool and as hard as i find it with pain and everything going on, i love it! not many people say that but i actually enjoy it so much. and my friends are brilliant :)

Thankyou everyone so so much for your thoughts and prayers, i will keep you all here at healingwell in mine forever.

buttercup xx
15 years old,
Chronic stomach pain with no diagnosis yet and lots of other things.

When the going gets tough, the tough get going.

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 9/1/2010 8:22 PM (GMT -6)   
Buttercup, you have been through so much already in your life that I think you may be 15....going on 35. :) That is said in a positive way because very few 15 year olds could go through the things you are going through and keep such a positive attitude.

You are an inspiration to me!

All my best.
Retired Mom

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Regular Member

Date Joined Jul 2010
Total Posts : 200
   Posted 9/2/2010 9:21 AM (GMT -6)   
Thankyou so much retired mom,
your support means everything to me :)
you are inspirational too

Hope you are doing okay :)
15 years old,
Chronic stomach pain with no diagnosis yet and lots of other things.

When the going gets tough, the tough get going.

Screaming Eagle
Forum Moderator

Date Joined Sep 2009
Total Posts : 5005
   Posted 9/2/2010 9:19 PM (GMT -6)   
Hello Buttercup:)!

I'm running a little behind with my post...but wanted to let you know, that we are glad that they finally found out what might be causing your problems.

It was so nice and sweet of your sister to post here about your condition. .....Please be easy on her...as she meant well wink

Thank you for keeping us all up to date on yourself...and we truly hope you have betters days ahead as well.

It seems like there are so many members struggling here lately.... and it has kept the forum busy these days....but that is what it is for though! wink

Take care, and please keep us up to date.

SE wink
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