Update #2 on Mikel

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Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 9/2/2010 8:45 AM (GMT -7)   
I just got off the phone with Mikel and I hope I made it clear that though he thought he was going home yesterday he didn't get to.  He thinks for sure he'll be out tomorrow!  As you all must know, it's been a long and difficult journey for him. Mikel sounded like himself, but he's in lots of pain.  The hospital where he is staying is not giving him much of anything for pain so, he's had to, as he put it, "suck it up" which makes me so angry. He said, "You know, they just don't understand us Stac." And unfortunately for him at this point he's so right.
He is very eager to get online to talk to everyone!  I told him how you all have really been keeping in touch about him and he was so blessed. I heard such a lift in his voice when he said he'd be able to go to HW tomorrow at home. We'll see how he feels by the time they discharge him, he makes the ride and gets into his home! He's got a couple of kitty cats that are missing him too! Maybe we could have a special chat time in the next couple of days if he's up to it??? Anyway, that's the news on Mikel and it sure was good to hear his voice! Thanks everyone for your love and prayers!!
 

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 9/2/2010 11:10 AM (GMT -7)   
Thank you for updating us again! I miss him so much and have been so worried! It sucks that he is hurting so much and not getting help with that! Anyway....hope he get's home soon....sending healing prayers and hugs!
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 9/2/2010 12:50 PM (GMT -7)   
Awe Mikel so sorry that they've made you suck it up..That never should happen...
Bad Hospital very bad...but I'm glad you got the surgery and sure hope you'll be back soon...
been thinking of you...
Prayers and lots of soft healing HUGZ
((((((((((((((((((((((((((((Mikel))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 9/2/2010 3:47 PM (GMT -7)   
Thanks for the update. It's so sad that he is being under-treated for pain. I'm praying for you, Mikel.

Hugs,

Flower

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 9/2/2010 3:57 PM (GMT -7)   
Thanks to all of you who have sent your love, thoughts and prayers to this awesome man I am blessed to call Brother. He is a wonderful human being where love abounds. I am praying he gets home soon and they give him enough meds to get through this. Sincerely,
Stac/Catz4
DX’d-Syringomyelia C-1 to T-1, DDD, Diabetes Type II, Migraines, Chronic Muscle Spasms, IBS, Panic Disorder, ICC, Hypothyroidism, Bipolar Disorder, Fibromyalgia. Emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06. Frozen Shoulder and Torn Rotator Cuff in Left Shoulder. Surgery for shoulder recently, now in Physical Therapy.

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 9/2/2010 4:59 PM (GMT -7)   
That truly is a horrible hospital if they don't even care about making their patients tolerably comfortable after surgery! Sounds like a hospital team that is more worried about DEA inquiries then the actual "care" of their patients.

If you get surgery, any surgery, you are pretty much expected to be very sore, low in energy, and in a consistent level of atleast moderate severe pain. The body is healing and this causes pain, as does the tissue damage caused by the surgery. If pain wasn't an issue, I'm sure people would go home a lot sooner.

In some areas of the country, pain control seems to be well implemented. In other areas of the country, it seems that "preventing dependency and addiction" (even though chronic pain patients have been in countless articles documented to have a very low risk of abusing medications) is > than proper pain management.

I know someone might take issue with me on this, but it seems the bible belt states are infamous for under treatment of pain. Unfortunately for us, thise areas do have a lot of Teenages that abuse narcotics out of boredom. However, you really can't compare someone illegally abusing precription medications (you know the 17 year olds buying oxy 80s from some friend, and that friend probably stole it to begin with) to an actually pain patient that has a documented prescription record, documented conditions, has complied with state laws and doctors request, ect. For a lot of those areas its a "morality" issue. Well now, church leaders and statel eaders should also realize its immoral to let others suffer WHEN something can be done. Alright I'm getting off my soap box.
MRI revealed a bulging disc w/gel lost at L5 and showed the bulge touching nerves, causing sciatica. Diagnosed w/ Arthritis which is responsible for joint inflamation pain. Treatment: Nucynta 50-150 mgs every 6 hours (schedule II narcotic, Mu Opoid agonist and NE reuptake inhibitor), Celebrex 100 mgs, Klonopin .5, Epidurals, Radio Freq nuerotomy (sept 8th, 2010)

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 9/2/2010 8:35 PM (GMT -7)   
Sorry if my comment offended anyone. I am a Christian and a person of faith. I just get angry sometimes with the way the bible belt regions treat certain things, and pain management is one of the areas that well meaning but misinformed folks tend to look down upon.
MRI revealed a bulging disc w/gel lost at L5 and showed the bulge touching nerves, causing sciatica. Diagnosed w/ Arthritis which is responsible for joint inflamation pain. Treatment: Nucynta 50-150 mgs every 6 hours (schedule II narcotic, Mu Opoid agonist and NE reuptake inhibitor), Celebrex 100 mgs, Klonopin .5, Epidurals, Radio Freq nuerotomy (sept 8th, 2010)

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 9/3/2010 1:49 AM (GMT -7)   

Well grain of salt, everybody has their opinion and I too am a Christian who tends to agree with you. I live in the bible belt and up until a few months ago, I was on Lortab 10/500 x 4 a day. I was miserable. It was because of HW that I documented my pain and finally stood up to the doctor at my pm group and had the papers from Chronic Pain 101 to show how much pain I was actually in.  I feel better than I've felt in years. (which isn’t really saying a lot, but you get what you get) By now, the new meds are working well and by all means, I am not pain free by any stretch of the imagination, but I deal. Mikel is not in the bible belt and in fact is way up north where you'd think someone had the "forward thinking" one needs for pain management. So, what I've learned through all this is that it doesn't matter where you are who you are or anything else, you are going to run into a doctor who will not give enough pain meds to help. It's a shame, it's horrible, it makes me angry, but we deal and go on. I have a sister who is a doctor as is her husband. They are very careful with pain meds and it makes my sister really angry, but she has had a dear friend from med school that got into lots of trouble trying to manage meds after a surgery and the family got mad that the guy, who was a recovering addict, was getting "addicted" again.  It changed my sister and her husband (he is a urological surgeon) both.  I have another sister who is a nurse practitioner that does more drug therapy than the doctors do in many, many respect.  I was on Cymbalta which for me caused constipation and then a ruptured colon. I was also on Lortab at the time for my Syrinx. My sister the practitioner came to the hospital in the middle of the night while I was having emergency surgery.  When the surgeon was telling my husband about the surgery, my “dear” sister told the surgeon that I was a drug addict and she told the surgeon that she was a surgical nurse! Unfortunately, because of the woman I used to call sister, I was limited to how much medication I got.  The doctor kept saying, “your sister” this and that. There are many awful things that happened, but with a 12 inch incision on my stomach and the pain that went with it added to the sorrow knowing my sister, for her own agenda needed to tell lies; it was the most horrible time of my life.

So, grain of salt, we all have our issues with pain meds and whether or not we get what we need, but I know more horror stories of people who don’t get what they need that those who do, no matter where you live. For the record, what you said was not offensive to me personally, at all.  You simply sound passionate as if you have experienced this first person.

 

 


Stac/Catz4
DX’d-Syringomyelia C-1 to T-1, DDD, Diabetes Type II, Migraines, Chronic Muscle Spasms, IBS, Panic Disorder, ICC, Hypothyroidism, Bipolar Disorder, Fibromyalgia. Emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06. Frozen Shoulder and Torn Rotator Cuff in Left Shoulder. Surgery for shoulder recently, now in Physical Therapy.

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 9/3/2010 3:56 AM (GMT -7)   
Thank you very much for sharing your experience Stac. It definately gives me a different perspective, especially due to the location of the state. I am sorry to hear about your ordeal, as I can only imagine how much a stab in the back that was. I'm not sure why people are so bent on allowing own "personal" morality to FORCEFULLY dictate to the lives of others, especially when the issue is sensetive to begin with.

You are right in your comment concerning that issue that because I have been through a similiar incident, I'm very passionate against doctors or medical organizations intentionally trying to deny proper pain care over fear of addiction. Right now, I am being seen by a compasionate and understanding PM doctor, but a little over 2 years ago, I was being seen by the VA. There PM department put an actual ban on me being able to receive narcotics (even weaker ones like darvocet) from any PC provider within the VA system. They claimed I was faking my injury, the refused to see prior MRIs done, and told me it was all in my head - that I had a mental disorder that needed to be treated by mental health.

My current PM doctor has proven all this wrong as testing for Arthitis was positive and an MRI revealed that I had a progressively worsen disc that was badly bulged and touching a nerve. Although the medication he put me on does have some fairly undesirable side effects, its very effective for my type of pain, moreso than oxycodone actually. The side effects can be a bit unnerving but the benefits of the amount of pain relief received far outweight the side effects. Furthermore, I have not had any overuse issues in the 4 months ive been taking it. This also helped to prove to me that in general, pain patients are at a low risk for addiction, something some doctors haven't learned.
MRI revealed a bulging disc w/gel lost at L5 and showed the bulge touching nerves, causing sciatica. Diagnosed w/ Arthritis which is responsible for joint inflamation pain. Treatment: Nucynta 50-150 mgs every 6 hours (schedule II narcotic, Mu Opoid agonist and NE reuptake inhibitor), Celebrex 100 mgs, Klonopin .5, Epidurals, Radio Freq nuerotomy (sept 8th, 2010)

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 9/3/2010 6:08 AM (GMT -7)   
Mikel!!! Dear Friend, I hope when you fanally get home from your ordeal, you can read this post and see t5hat everyone has been praying and cheering for you back here at H.W.C.P.!!!!!!
I wanted you to see my name here too! Another month and a 1/2 to two months and I'll be coming up your way! Time to bring Mom back south w/ the ducks & geese! I'm definitly gonna make a point to come to the city (if you'll have me?) to see you!!!
Hang tough! The worst is over!!!
Big smelly, sweaty, Giant man hugs (still hot as hell down here! be glad it's only a cyber hug this time> P-U!!) comin atcha!!!
love Ya Dudeman!
Brother Pete!
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/3/2010 3:22 PM (GMT -7)   
Hey Mikel,
 
I'm really glad your surgery is over and that the pain will be improving day by day.  I'm also sorry about the lack of pain control you received.  I've been there and understand what a serious problem it can be after surgery.  The nurse who was incorrectly documenting my charts was claiming she gave me meds when she didn't!  I hope this was not the case for you and that you will receive proper pain relief once you are released (hopefully today). 
 
I am proud for you to have reached this point in your life.  When you first joined HW, you were unsure if you would ever find anyone to do the surgery and now you are on the way to recovery.  It seems such a sort time ago that you were fighting so hard to improve your T-cells to make the surgery possible. 
 
You are one special person and I hope that your recovery will be swift and as pain free as possible.
 
All my best!
Retired Mom

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 9/5/2010 11:33 AM (GMT -7)   
  Thanks everyone !!!!  I love you all !
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Dealing with healing now !!!

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/5/2010 4:39 PM (GMT -7)   
Welcome back Mikel. How horrible to be undertreated for pain. I hope you're back to full meds now? Or can get your PM team on board quickly to ease your condition. My friend who had the replaced hip said after the first week the pain is less than before the surgery, so I hope the same is true for you and you recover fast. Hard when you're dealing with other issues as well.
My thoughts are with you, golitho

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 8:05 PM (GMT -7)   
Good night Mikel! You are in my thoughts and prayers tonight! wink

Your a good Man, with a good heart!....Take care, you will make it through this! wink


SE wink

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 9/7/2010 9:32 PM (GMT -7)   
Mikel...

Wonderful to hear your sweet 'voice' again. Welcome back my dear friend. You are one heck of a Man!

Hugs,
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/8/2010 10:23 AM (GMT -7)   

 

   Dear Mikel,

     I hope you are doing okay today. I am so relieved you are well on your way in recovery. I wrote you an email and asked if I could do something for you. A gift, to give as a gift. SO, no pressure, but let me know. I would be so honored to work on the project I proposed to you. It would make me feel so good to do it. You mean so much to us!

    Lots of Love
          dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 9/8/2010 12:41 PM (GMT -7)   
Mikel,
Its so nice to see you on here again! I hope that you begin to feel better.
 
Mindy

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 9/8/2010 5:18 PM (GMT -7)   
And the love keeps on rolling in my dear and beloved Brother! I love you as always!
Stace
Stac/Catz4
DX’d-Syringomyelia C-1 to T-1, DDD, Diabetes Type II, Migraines, Chronic Muscle Spasms, IBS, Panic Disorder, ICC, Hypothyroidism, Bipolar Disorder, Fibromyalgia. Emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06. Frozen Shoulder and Torn Rotator Cuff in Left Shoulder. Surgery for shoulder recently, now in Physical Therapy.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/8/2010 7:33 PM (GMT -7)   
Good night Mikel!....we will be waiting here for you tomorrow morning! :)

SE:)

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 9/9/2010 9:36 AM (GMT -7)   
 Thank you all again my wonderful family , I could not have made it without you !!!  I'll see you all at Tina's baby shower !!!!!  Lots of Love Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Dealing with healing now !!!
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