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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/2/2010 8:51 AM (GMT -7)   
 
 
 
  
     Dear Friends,
 
     I am terribly sorry for being "sparse" at best this last week. I haven't even had a moment to sit and read up on what is happening with everyone. I hate to admit it but I am over extended and in over my head. At times, I wish there were 3 of me. I say three because being a parent already means you have mastered the skill of a double work load *sigh*
 
     The school has finally asked for all parents to under go extensive background check and full interviews at the main district office. Everyone, even if you are just in class to celebrate an occasion, part of bake sale, provide food for classrooms, chaperone, PTA or even carnival night.. you MUST undergo the process. Of course this is something I have always pushed for, especially after having one of the "chaperone" parents over to my home for dinner last year. Long story short the man was extremely hostile and went out of his way to say how "easy I had it". Then he dropped off his children (all 4 of them) at my home at 1pm for lunch and didn’t come to pick them up until 11:30pm while telling me (yes telling me!) that he needed to drop his children off the next morning. Even after I told him that it would be impossible and that I had appointments and errands, he still called multiple times to tell me all about how his needs were far more important than my own. I had barely known him but those 3 times!! He was very aggressive to say the least. I later found out he was moving out of the blue the week later and had already been question about his parenting and the state of his home. In any case, I am glad for the extensive background checks, but they are so time consuming!
 
     Umm, have to patrol, Ill come back in just a moment
 
     With the high school kids it is soda pop cans and waaaay to much cursing. The middle school kids it is bubblegum and candy wrappers. Surprisingly the elementary kids are the cleanest and pick flowers for me. Go figure.  rolleyes  
 
     Where was I? Yes! So between background documentation, ballet, volunteering, Pilot Program, physical therapy / doctor appointments, family / household care and trying to get my jewelry sales off the ground I have been in over my head! Speaking of jewelry.. I am so disappointed in myself for already missing my deadline of September 1st. Mostly because I only had two things left to do! Activate the card and re-take pictures of each set. Last two and easiest steps!!! To have dropped the ball after all the hard work was done, is a huge let down. I could just kick myself!
 
      Pilot program... My youngest little Bee (1st gr) was chosen for a reading & writing pilot program. During the year she will be pulled out of her regular class each day and 3 teachers (one "assisting / learning") work on a new way to enhance reading and writing together. In the afternoon at home she reads me 3 stories. Then tells me what the common "theme" of them is. 2 are books she writes during the day (different "subject" but common "theme") and 1 is printed book. At night here at home, instead of letting them pick out 2 stories for bed time. Little Bee has a selected story to read to us that is what the following (next day) days lessons will be centered around. The second book I have Miss Tess picking out. (Little Bee is a disappointed she doesn’t get to pick a "fun story"). Now, during this program she will be recorded and we will take her to other schools in our district and neighboring districts to teach the other teachers/ educators what the program is, how to do the program, what the desired result will be. The end result being that hopefully the other schools can begin their own pilot program next year. Our school starting out fully staffed next year. I know it doesn’t sound like much... but my Little Bee is the only child for this program and I want very much to help. It could go a long way for other children is all goes well.  Though it sounds simple, getting everything in order legally for Little Bee to be able to do this, took a lot of running around.
 
     Physically I am having a hard time. I am sitting right at about 6 & 7 (still better than my "normal") for most of the morning and afternoon. Now my right hip (which was already rotating towards the rear) is now getting higher and higher. The biggest problem is that when I sit it makes my ribs tender and sore. Not that it was easy to sit in the first place with the constant "flu like" ache in my hips when I sit... It just add even more frustration over the simple act of sitting. Walking is.. wobbly, uncertain, awkward. My knees are still doing good, just constant soreness on the outside left knee. Of course, even the new clothing I just got 2 months ago is "rubbing" already sore and tender areas in my hips to the point of constant itching and swelling. I am none to thrilled about what will happen when my doctors see me in a few weeks. If they haven't already gotten an ear full from the physical therapist by that point..... I am still enjoying 4hrs of sleep consistently. Only a couple of 3hr nights to report. Still within 5-10 waking periods per night. The pain scale is moderate. Thankfully it isn't until 4 & 5pm when the pain begins the larger hikes of 8 & 9. At this point, I have to get with it and schedule the new images. I have run out of excuses. I must admit I am rather curious as to what is happening in-between my shoulder blades and what is being damaged during the increase in rotation. It seems that things are progressing at a much faster rate than ever before and am curious to compare images from March with new images.
 
     Now that I have rambled on and on I will end this here. I hope everyone is doing okay, I hope to read up one everyone today. Sometimes I wish there were a way to get text-to-speech on the forum *sigh*
 
*warm hugg*
     dani
 
    
 
    

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 9/2/2010 10:27 AM (GMT -7)   
Dani,
How you do what you do is unbelievable! Darn it girl, done be so hard on yourself!! I stay in the same place pretty much all day and it isn't at the kitchen sink. And by the way, your jewelry is beautiful! Be nice to yourself and get that area between your shoulder blades checked out. That's what was hurting me when I very first got to hurting over the frozen shoulder so, go to the doc please. You are so loved!
Take care of you,
Stac/Catz4
DX’d-Syringomyelia C-1 to T-1, DDD, Diabetes Type II, Migraines, Chronic Muscle Spasms, IBS, Panic Disorder, ICC, Hypothyroidism, Bipolar Disorder, Fibromyalgia. Emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06. Frozen Shoulder and Torn Rotator Cuff in Left Shoulder. Surgery for shoulder recently, now in Physical Therapy.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 9/2/2010 11:07 AM (GMT -7)   
Dear Dani,

You are amazing! Sounds like you got a LOT on your plate! Don't apologize for being so busy to anyone except yourself! I am sorry you are so busy and hurting so much! Try not to stretch yourself too thin hun!!! You need to get the new images done....and I know that you know that so I won't harp on it....but you need to take care of you!!! We all love you lots and worry about you!! Anyway, going back to bed!

lots of love and hugs,
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/2/2010 11:26 AM (GMT -7)   

 

  Thank you Beckey

     *warm hugg* I really hoping this slow down soon. I have got to get the images in, but it seems like the next two weeks are packed full. Gotta figure something out. Outting it off is only going to get me into trouble.

   Stac,

     It sure is good to see you again. You were very much missed. I wanted to tell you that it isnt a big deal, in-between the shoulders. Well, the pain is uncomfortable, no doubt! It just likely means more progression. The images in March showed a secondary dextroscoliosis between my shoulders. I am a kinda worried about it and hope it has'nt gotten too out of hand. Just gotta get through the next few weeks and get images. .. I might try to find a way to cancel a day clear and get it out of the way

*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 9/2/2010 12:42 PM (GMT -7)   
You have been extremely busy! To accomplish all of that with your pain and so little sleep is amazing. Don't be too hard on yourself! You are definitely an inspiration. :)
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 9/2/2010 1:47 PM (GMT -7)   
Hey Dani,
Thanks for catching us all up!
I rememeber when my girls were younger and the relief yet anxiety of the new school year. New Schedules coming at you in all different areas. I tried to be as active as I could in their lives but there were times I just couldn't contribute. I'd pray...and now I know many of my prayers were answered in different ways than I could ever have imagined!
The extended reading group sounds awesome for Little Bee...must be a smart one! The love of reading is certainly a treasure. She's lucky to have you as a Mom:)
Again, sorry about your pain..it does get wearing. Hopefully you can find a few moments to get away and enjoy some U time.
Heather June
 

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 9/2/2010 5:06 PM (GMT -7)   
It's good to hear from you Dani!! i was just wondering how you might be getting along.
So sorry that your plate is so full and no time for you to rest. I don't know how you do it, but I guess when you have no choice, all the jobs must still get done and the little ones need watching, etc. I hope you get some much needed rest soon. Hang in there and know that we are all here for you. Hugs.
 
 
One day at a time!!

SUZANE

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/2/2010 5:53 PM (GMT -7)   
 
    
   Thank you so much for encouragement. I do need some much needed down time. I will be grateful for the three day weekend. It will be better once we settle into the new routine.. well, I sure hope so anyway!
 
      Hehe, well now that was the weird part. Little Rosie isn't what I would call "excelled" at all. She has very "average" grades. I would consider her "proficient". She and her sister both are very social little butterflies. Their "trouble" areas in the grade department come from socializing with their friends at the wrong times. Needless to say I was little dumbfounded when I got the call! I was sure they had my Little Bee confused with someone else.
 
     I of course agreed right away. The principal is more like family to us. She has helped me through some of the hardest obstacles I have had to face the last 2 years. She is a real blessing and I will do everything I possibly can to help her.
 
     Earlier today I had called in to ask about some last bits of paper work and was told they found a 5th grader for the program. Apparently there will be one child for each grade. But the children wont be together. They will be split up for 5 different times during the day. We will all meet each other as soon as they have a 2nd, 3rd and 4th grade student picked. I am kinda curious to meet the other 4 program parents.
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/2/2010 6:40 PM (GMT -7)   
....Ah the days of parenting!

That is a full time job in it's self, and then to have the medical problems on top of it...plus what ever life is throwing at you can be over whelming to say the least.

Dani, I have always admired your attention to raising your family first and foremost. Those little ones, are lucky to have a mother who recognizes the value of this....
...so you need not to apologize to the members here. No one here will be critical of you for this. We all need private time to get things done in life.

My children are all grown up...but I married into three young children, ages 5, 11, and 15, and I was 50yrs old at the time...and a step dad to boot!

It has not been easy...but I took on the whole package when I said "I do". Our 16yr old has been announcing her independence and the desire to be a full fledged adult...
without accepting the responsibility of one. It has not set well with the family...and not a very good example for the now 9yr old.

Thank God for counselors! One more night sneaking out of the house...and we were instructed to call 911...and give her a taste of what adulthood is all about. wink

I guess my point in all this is, ...that we all have responsibility's in life and we need to prioritize it the best we can....and not worry about what others may think.
In my books...children come first...as we prepare them for the future...and hope they don't make some of the same mistakes we made. It's all about love for them and whats best for them as well.

Dani, if you need some time to get things done in life...then by all means do so...and don't feel guilty about it. The members here are adults...and will certainly understand.

Of course we always know you will do all you can to balance all the balls in life...as you are a hard worker...and most certainly a multitask-er...something I have a horrible time with.

Take care, and we all certainly hope you have better days ahead.

SE wink

Post Edited (Screaming Eagle) : 9/2/2010 9:45:47 PM (GMT-6)


left forum.
Regular Member


Date Joined Jul 2010
Total Posts : 200
   Posted 9/3/2010 2:44 AM (GMT -7)   
Dani,
So glad you got the time to come let us know how you are going! Don't apologise about not reading and posting lots! You do so much and are allowed a break to rest and do everything else you need to!
You are wonderwoman!! you do so so much!!

You are amazing and an inspiration to me,

Hugs,
Buttercup
15 years old,
Chronic stomach pain with no diagnosis yet and lots of other things.

When the going gets tough, the tough get going.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/3/2010 2:56 AM (GMT -7)   
Hey SuperWoman Dani!!

You continue to amaze me ever time you share a little of your life with us.

I will not keep you because your thread has become so long so fast that I fear it will add stress just to keep up with reading it.

I wish I had you joy for living and I think I will try to take a small step today to be a little more appreciative, a little less judgmental and a little more understanding.

Have a wonderful day and thank you for keeping us updated!
Retired Mom

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 9/3/2010 6:51 AM (GMT -7)   
Holy Maccaroni! I thought I was busy till I read what your up to Dani! You are one amazing Lady! I'm so proud to call you family! I'm so happy for my Baby Bee! Hope you don't mind me calling her mine!?!?! I am Uncle Pete right? How exciting for her! I'm sure all the attention will help her learning tremendosely!!!
As for you! Please giove youerseff a break when ever possable! I took the whole day off yesterday w/ my dr. visit! The first lay around do pretty much nothing day in a long time! I feel so much better today because of it and ready to get back into the coal mines and give it hell!
Oh that jerk dropping his kids on you!!! He deserves a reality check> or a punch in the nose!!! Just what you need w/ everything else going on!!!
I've been thinking a lot about you and your Fam's lately. If you don't mind, could you e-mail me a phone # where I can call you to chat sometime?? i have the # you used when you were down here but if I remember, it belonged to someone else??? Just a thought! I know you are super biz and I will understand if you don't have time to talk but it would be nice to just hear your voice & my Bees too!
All for now, gotta zip~boom~ bang~ Go now!
Big Hugz to the whole Fam and much Love!!!
uncle Pete
PS> Please tell the girls I'm thinking about them!!!
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 9/3/2010 6:19 PM (GMT -7)   
Sweet Dani , you never ramble andI am alwaysinterested and happy to see that you've posted .You've been absoloutley amazing about how you've given with your plate so full .You are always in my thoughts and prayers and your incredibly special to me in so many ways . Your unselfish to a fault , so tend to you at every opportunity please my great friend , no one deserves it more . Love you Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery scheduled for August 23rd !

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/5/2010 5:06 PM (GMT -7)   
Hi Dani, your hip sure sounds worrying, I don't like the thouight of it crushing all your organs or I guess squishing them all to accomodate their lack of space. I really hope the doctors can come up with some plan to stop this spinal twisting progression. I guess thats the worry for you too.
Little kids and reading programs are so important, the joy of then reading to you is wonderful is't it. My 10 year old and I have just been reading the last volume of Harry Potter together. We do a page each in bed at night and have slowly read our way through the whole series. He needs my help to understand alot of the expressions. JK Rolling uses a lot of old fashioned ways of saying things, that the modern kid just never hears anymore. "Bristling with anger" the only one that jumps to my mind right now. She is wonderfully descriptive for me but confusing to him!

We love you dearly, it sounds as if you are an invaluable member of your local community, I sure hope they appreciate you as much as we do. As fo that father, what is he thinking? I hate parents who expect help bu never return it, I've come across a few in my time. You'll have to be strong and set deadlines or else type of rules or he'll just take advantage of your sweet nature, the horrid man!
Gotta go, best best wishes Dani, golitho

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 9/6/2010 9:18 AM (GMT -7)   
Wow Dani, I am exhausted just reading your post..lol How in the world do you do it girl? What a wonderful Mom you are and such a great friend to all of us here. I feel very lucky to have met you, I truly mean that. If you need to take breaks from here, you know we all understand. We know you love us, so take some time for you. Take care hun, and please give yourself a break sometimes.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/6/2010 12:51 PM (GMT -7)   
Dani...

Just thinking of you... and hoping you are doing ok today.... Hope you are having a good holiday w/ your husband and girls :)

Talk to you soon... --Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/7/2010 3:39 PM (GMT -7)   
 
     Okay.. I did it. I went in....
 
      I just got back from the spine center. I could feel everyone's stares when I went in. He noticed right away that my hip was rotating to the rear. In his opinion it is higher. He counted it out and it was only 2 months since I was last seen. The concern is tremendous "I don't mean to worry you but.." seemed to start off each sentence. They are going to have a meeting and decide what to do, what kind of images I need next and what options we have left.
 
      What was supposed to be 15-20mins, quickly became and afternoon event. I left my home at 1pm (the new center is 10mins from my home) and I just now got home (3:39pm). Everything was assessed from head to toe. The swelling, measured rotation, movement restrictions. Seemed to be some concern that I have been grabbing my ankles a lot lately... It just been hurting so badly, the pressure hurts so much. When the pressure builds and makes me sick to my stomach, I stand. Bend forward, Grab my ankles and hold my chest and legs together to relieve the "pushing" sensation and pain. I wasn’t told to stop doing it though. Was told "its okay to do as long as it is comfortable for you. I think you are decompressing and that is why it feels good to you." I have to go in again next week. But, it is done and now everyone know what has happened the last 6 weeks or so. One less worry on my shoulders. Relieved that I finally showed them what has happened.
 
     ..now that I am not sure if I am going to cry... I think I am going to finish up the rose quartz and dyed jade jewelry set. Begin the next project. I have a few ideas sketched out..
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 5:28 PM (GMT -7)   
Hello Dani!

OH Dear!....I knew there was something going on with you, that just was not right, as we have not seen much of you lately.

I honestly don't know where you find the strength to do it. This little sissy could not handle it at all! (ME)

Again you have the deepest amount of hope, and well wishes sent to you, from me and, every member here.


SE

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/7/2010 8:49 PM (GMT -7)   
Wow Dani, how scary for you to have to admit how bad its all getting. Grabbing your ankles sounds so wierd to give you relief! Do they have any suggestions to stop the rotation or is it all surgical? You must get so frightenend by your body letting you down.
I'm sending you a big hug too, sending lots of them today, it must be a bad week for people in general! But heres an extra special one for you, you're such a sweet angel. Always having time for everyone and so upbeat and chirpy. Keep your beautiful head up, we are all thinking of you, keep threading those beads, creativity is such a good release, golitho

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 9/8/2010 5:04 AM (GMT -7)   
Hi Dani,
I'm so sorry that you are hurting so! I wish there was something> anything I could do to help. Iknow that my back is nothing like yours but I can relate to the bending forward. I have spinal stennosis in my lumbar spine and when it's hurting, the only thing that helps is sitting and leaning forward as far as I can go (of course my big old belly gets in the way!) to relieve the pain. People have been asking me how that could possibly help my back pain for ever so I looked it up and sure enough it was stated in several sites on line! I'm sure the compression of your spibnal cord is tremendous compaired to mine but I wanted to let you know that I get it evan if it's just a little!!!
Love You!!!
Uncle Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 9/8/2010 5:55 AM (GMT -7)   
Dani,

I just read your last post here and it darn near broke my heart to hear your sadness and pain. It must be incredibly frustrating to see things constantly changing, but not in a good way. I really admire how you continually push your pain aside though to offer your care and concern to other forum members. You are a classy lady with grace and gentleness, and I appreciate you more than you could imagine.

Keeping you and your little Bees in my prayers.

hugs,
Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 9/8/2010 3:58 PM (GMT -7)   
I have been thinking about you and hope you can get some help and answers soon. You do not deserve all your going through.


Hugs
M
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few
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