Apointment today PCD

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 7:13 AM (GMT -7)   
 
  Well....I'm tired of this pain...so I will let the PCD take a look and see what he says.
 
    Maybe it is normal at this stage of the recovery, but the low dosage of meds is not cutting it for me.
 
    SE

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 9/7/2010 7:51 AM (GMT -7)   
SE, I'm sorry you're still having pain beyond what was expected. I hope it's nothing serious and I'm glad you're checking into it with your doctor. Better safe than sorry!

Hope you find a solution and are feeling better soon.

hugs,
Bunky Booh
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 9/7/2010 8:02 AM (GMT -7)   

Oh Michael, I am so sorry your pain continues to bother you. I hope you get some answers at the dr. I am praying for you buddy! Let me know how it goes with your dr.

 

Hugs


One day at a time!!

SUZANE

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 9:00 AM (GMT -7)   
Thanks Bunky Booh & Suzane!

It is not serious pain, but bothersome to say the least. I just cannot get comfortable, and my body eats up the pain meds very quickly (three hours, and then down hill)


The pain is broad based, and radiates out towards my hips. I know that I'm in better shape than I was, and have better posture now, but the pain persist.

SE

hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 9/7/2010 10:10 AM (GMT -7)   
Screaming Eagle......Wow why can't it just all go away for us. i know like you said that we are still recovering but Pain sure is an emotional thing to have to live. My son asked me last night why I am always so tired. I tried to explain how tired I get because I hurt all the time. He said ok I get it...Like when I had a cold sore, and it hurt all day long for a week. Boy mom I was tired to having my lip hurt. Now I know why you are tired. (Love him)

Can I ask why you are going to you PCD and not the surgeon or a PM doctor to treat your pain. I do know that my PCD did treat it for a while and then it was if he gave up, washed his hands and sent me to another dr. I remember for one appt with him, I was in so much pain just driving to the office. I was hunched over the steering wheel driving, crying and got pulled over. The police officer thought I was dying and wanted to call the perimedics. It was terrible.

In my opinion any pain is serious and should be treated.

Please let us know how you are doing.

Good luck!!!

Hydrangea
"lIFE IS NOT WAITNG FOR THE STORM TO PASS.....IT IS about LEARNING TO DANCE IN THE RAIN"
Diagnosed crohns Disease, Bladder tumor and inflammation, Herniated disc, spinal stenosis, facet arthritis, degenerative disc disease, siatica, Three laparoscopis, hysterectomy, physical therapy, trigger point injections, spinal epidurals,
Meds lyrica, norco, amrix,metanx,pentasa.
Spinal Fusion 3/20

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 9/7/2010 10:35 AM (GMT -7)   
  Hey Michael , Good luck my brother , I really hope your able to find the help your seekung man , you deserve it for sure !!
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Dealing with healing now !!!

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/7/2010 10:46 AM (GMT -7)   
Good luck on your appointment. I hope you find your answers and can get some relief!
Retired Mom

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 9/7/2010 1:13 PM (GMT -7)   
SE I am not surprised that you are where you are at. You really are still fresh from a major surgery with way too much of an activity level. Its criminal that your surgeon released you to return to work as early as he did, he ought to be shot for that call. I hope you will think long and hard before ever considering using him again.

You & Hydrangea both bailed & jumped ship and ran right back to work and both of you are suffering now because your bodies never got to completely heal or rest from traumatic surgeries. All may have looked healed from the outside but your innards were far from being healed. Ever person I have seen do this ended up paying for it one way or the other and only hurt themselves in the long run and its a shame.

Did you ever get any muscle relaxers? I know once you mentioned thinking of asking for some Flexeril. Its such an old type muscle relaxer, why not ask your dr for one the newer type muscle relaxers ans see how they may work. Take care.

Susie

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 1:23 PM (GMT -7)   
OK!...We just got back from the PCD!

Seems that I have possible nerve damage to the sacroiliac joint, and could be, because I waited to long to have the fusion surgery according to my PCD. He pressed me to have it two years ago, but I put it off, so that I could get my business sold first.

My Dr said there is a good chance, that I will be on pain meds for the rest of my life now. cry I hated to hear this, but he also said that I still have a chance to improve over the next few months, since I'm still considered as recovering from the surgery.

I showed him my inner thigh on my right leg, where it is still swollen and also the groin area...both are very tender to the touch. He said it may take a year for the swelling to go down, but that it looks like I also have nerve damage from the surgery. This I already knew, and can live with. As long as I leave that area alone, it does not hurt much, but if I mess with it, like scrubbing it during a shower, it is very painful.

He will take over my scripts for meds now, but with a new twist. Here in this part of KS, they are very strict with pain meds and writing scripts for them. We had an Idiot PM here that was just convicted on several counts of Murder, as several of his patients overdosed on pain meds. The government is coming down hard in all states now nationwide. Since it is very hard to get into one of these Pain Clinics in this area, many of the PCD's are now doing their own pain management, but having the patients sign a contract like the PM's.

I signed one today, and have no problem with it at all. He upped my meds to X4 a day now, but kept me on the same strength of med. It is marginal, but I would rather be on the low end of the meds, and have room to go up, when, and if needed.

Hydrangea, to answer your question, The surgeon fused my spine, and it appears that it is doing well, but they are not responsible for long term pain management, especially if you have nerve damage. Generally my surgeon cuts a patient loose after six months, if they require long term pain management.

I will have to say that my PCD is not happy with the type of work that I do, and asked how much longer before I could retire. He said that the job, and my health, or lack there of, was not a good mix for one with back problems. I have to agree, but have no choice at this time. All I can say is that, my wife and I are working on the problem, and hope to have a solution soon.

I see my PCD again in sixty days, and he will see if an adjustment is needed at that time.

SE

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 2:52 PM (GMT -7)   
I almost forgot!....Thank you....Straydog, Hydrangea, Tmjpain, Bunky Booh, MIkel, retiredmom for all of your comments! Good stuff! :)

SE:)

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/7/2010 2:57 PM (GMT -7)   
Hey Michael...

Glad you went to the doctor. I always thought you were on the low end of the pain meds... I know you were trying to come down on everything, yet I know you want your pain to be covered, too! Anyway, I'm glad he upped them a bit... and, like you said, you can make adjustments over time. Just don't let it go too far if you are miserable.

Since you are still in recovery mode... I hope you still find things improving.. and hope some of the nerve stuff will settle down.

Re: the work situation... that's a tough one! Like you said, sometimes there just isn't a choice at the moment. We've found ourselves there on more than one occasion, trust me! I hope, though, a good solution will develop over time for you.

Hang in there, my friend! And take care of yourself....
--Tina (Little Big Momma) LOL
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 6:22 PM (GMT -7)   
Thank you both, Little Big Mom! & Pebbles! smilewinkgrin

Tina, I hope you are so right about the recovery getting better. I do not want to wind up with lots of pain the rest of my life. My PCD told me before all this started, that I may have to live with some pain.

So, I'm not totally surprised at this point. What I did not expect, was the feeling that the fusion was going well, and pain coming from a totally different area. This is my first lesson with a Sacroiliac area, and I know very little about it.

I described the pain to my PCD, and then he ask me to point to it. He soon told me what it was, and educated my wife and I on it a little. It didn't take me long to look it up on the internet, and the pain symptoms described it perfectly....
it all sounded so familiar to me.

Well, we will see what the world of pain has to offer in the next few weeks or so! Again, thank you for your concern.

SE wink

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 9/7/2010 7:27 PM (GMT -7)   
Michael, I'm glad you had your appointment and that some good has come from it. I know it must have been a real blow to be told you might be on meds forever, but it's a small price to pay if it allows you quality time that is relatively pain free.

I'm sorry to hear about the nerve damage...I suffered from that when I had my Nissen Fundoplication for GERD in 2004. One of the trocars holding the incision open was pressed up against a nerve for the whole surgery and basically "dented" the nerve. It took about a year and a long dose of Gabapentin before the damage was healed, but I wouldn't wish that on my worst enemy. At one point, when the doctors still weren't sure why I was having pain in the centre of the breastbone, they called in a thoracic surgeon, who planned on cracking open my chest to find the problem...whew!!!!

Have patience with the healing process Michael...it takes time and you have to give it time. I know you have a crazy work schedule, but is there anything at ALL that can be done to make it easier for you? Equipment that would help? An extra body? I hope that you're able to work out something regarding your business, so you have the chance to rest and recuperate and then ENJOY life!!

Take care of yourself or you'll really be scrambled eggs!!

hugs,
Bunky Booh
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 7:42 PM (GMT -7)   
smilewinkgrin Bunky Booh! smilewinkgrin You tickle my funny bone every once in a while! smilewinkgrin smilewinkgrin smilewinkgrin

I remember something about eggs, but it slips my mind at the moment! rolleyes

You are one of many rocks in my life....OK maybe a pebble, but I know you care just the same wink

While I do put in a lot of hours at work, the Boss and the men have been very protective of me, and I'm not doing anything to risk my recovery other than putting lots of hours there.

The business of mine was sold back in Jan and we were so grateful there was a buyer to take over, especially when it was at its peak of worth. It was a nice payday, and much needed to help me get through my time off during my recovery time.

My biggest problem, is that I hang onto the past when I was in good health, and was a very hard worker. I'm afraid that is when I did most of the damage to my spine. Silly foolish little man! smilewinkgrin

Take care, and so good to see members here that really do care....some of the best pain medicine I have had all day! smilewinkgrin

SE wink

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 9/7/2010 7:46 PM (GMT -7)   
Hi SE,

Sorry to hear the bad news from the PM doc, but I think at least a part of you probably knew going in that you might have to be on pain meds forever. But I wouldn't give up hope yet. You still do have some more months of healing to do. Maybe things will get better yet! Either way, I'm glad that you went back to see your PM, so you can hopefully get some better control over your pain.

hugs,
Skeye

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 8:00 PM (GMT -7)   
.....and then there is Skeye! smilewinkgrin

Thanks young lady! smilewinkgrin Actually...I'm seeing my PCD, and he will manage my pain for a while. We love this Dr....the whole family does!

He is certainly no push over, and will not hand out meds like candy. He will keep me on the low end of the meds, and that is just fine with me. I was just a little more than uncomfortable with my pain.

I will take your advice and hold out hope, as I recover, and the Dr said the same thing, but said there may be a good possibility that pain meds will follow me to my end.

Take care Skeye, and good luck to you my friend.

SE wink

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 9/7/2010 8:08 PM (GMT -7)   
Ah, whoops. Yes, SE, you are quite correct. What did I say about having eye problems again smilewinkgrin? Guess the old eyes are off today. I actually use my PCP for my pain management as well. I did see a regular PM for a little while, but I had issues with him (and so did my PCP for that matter) and my PCP was more than willing to take over my pain control (he actually encouraged me to dump the PM, long before I did because he wasn't pleased with how he was treating me). I'm so glad I did. He has been perhaps my biggest advocate. I don't know what I'd do or where I'd be without him.

hugs,
Skeye

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/7/2010 8:22 PM (GMT -7)   
Hi SE, so what I'm understanding is the nerve is damaged not from the surgery bt from not having the surgery earlier? Then why is it swelling and hurting you there now? Sorry, I just don't get it!
Nerve pain is the pits, is there hope that it will heal or settle over time? Sorry I'm a bit confused with it all. Small percentage of hope or not much hope?
 
The surgery itself is good though? Everytime the word surgery is mentioned I groan, it seems to cure one thing and create yet more problems....My heart is with you, lets hope that this nerve eventually heals itself and n the meantime the meds give you some much needed rest. golitho

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/7/2010 9:00 PM (GMT -7)   
Good late evening Golitho! smilewinkgrin

What is swelling, is my inner right thigh, very close to my groin. I don't know why it is, but none the less it is. That area is also painful to the touch. My scar runs from my belly button down to my little friend along the right side of this big belly smilewinkgrin

My PCD said he thinks that a nerve was cut while making the opening to access my ...as Stray Dog says my Innards smilewinkgrin

So while trying to fix one problem, another was created, and is quite common when entering from the front. I'm still a little foggy on all of this, and I'm sure there are other members here who know what this Silly man is trying to say. smilewinkgrin So you will have to forgive me for my ignorance in some of this. So right now I'm not sure if the swelling in my thigh is from the nerve being cut or from the recovery from the trauma of the surgery. Anyone can jump in on this if you have an idea what I'm trying to convey to the members here. wink

Now to the back problem!...my PCD wanted me to have the fusion surgery a couple of years ago, and like an Idiot (you all don't have to agree with this self description) smilewinkgrin ....I put it off!....one the pain meds were doing a fine job at the time, ....and two...I was trying to sell my flourishing business. Thus...the big mistake...we all think! rolleyes My PCD said he believes it MAY be possible that I simply waited too long and damaged some of the nerves related to the Sacroiliac nerve. (I'm sure that wasn't stated right)

This is really over my head and I'm still learning. So, what I think we have here is nerve damage from the surgery itself, and nerve damage from waiting too long to have it.

Golitho, my pain is in my back, and in the front where the incision was made or very close to it. I hope this clears up some of the confusion. I do want to say that the original point of pain in my back seems to be either gone or almost gone...and the back pain I now have is much broader across my back and extends outward into what feels like my hips...into the sacro area. Does this make sense now?...or am I still way out there on a limb? Thank you for your reply and questions.

OK!....I'm headed to bed...as my own little fog has set in! :)

SE:)

Post Edited (Screaming Eagle) : 9/7/2010 10:03:36 PM (GMT-6)


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 9/8/2010 6:43 AM (GMT -7)   
Hang in there Michael , you are a strong man and you can do anything you put your mind to . There's nothing you can't handle bro , I'm praying for you , stay strong my friend !!! Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Dealing with healing now !!!

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 9/9/2010 3:15 AM (GMT -7)   
Hi SE. I'm glad that your appointment went well. It's great that you have a doctor that you trust. I think that that is so important. I'm happy that hopefully your pain will be more under control.

Hugs,

Flower
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 9:43 AM (GMT -7)
There are a total of 2,732,997 posts in 301,074 threads.
View Active Threads


Who's Online
This forum has 151228 registered members. Please welcome our newest member, Acro1010.
363 Guest(s), 13 Registered Member(s) are currently online.  Details
notsosicklygirl, teacher2many, PeterK, tickbite666, Wanda1225, Serenity Now, smlafleur, JEN02, Paxton, pmm73, NewDay, Mustard Seed, Meshawmama


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer