I'm so scared of my surgery on Tuesday

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Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 9/12/2010 8:50 AM (GMT -7)   
Hello HW Family,
 
I'm having my bladder surgery on Tuesday to correct incontinence that has been going on for so many years and I'm scared to death.  My current pain levels and depression/anxiety levels are through the roof.  I'm less scared about the actual pain from the surgery than of the pain in my back from the procedure itself.  You see....they do most of it from the inside and the rest from incisions in the creases of the legs and perhaps the top of the pubic bone area too.  If I'm laying on a table and asleep, I can't tell them when they are killing my back.....I just feel it afterwards.  Since I know how bad I have felt for the last few days, I'm terrified about having them positioning me for surgery and then adjusting to the pain from the back manipulations.  That area gets worse every day!  Part of me wants to call it off, but I know that the incontinence will only get worse if I don't fix it and the back will never get better unless I have them go in and take out the bone that did not fuse and then add a cage and try to create a better fusion.  I just cannot deal with that kind of pain again. 
 
I'm going to beg my PM (who will be doing the anestesia...yeaahhh!) to please have them monitor my position during the procedure and to please help with the back pain as much as possible.  I'm also going to remind the surgeon and any nurse that will listen that my back pain is unbearable and can be significantly increased if they are not very careful with the positioning. 
 
I'm just plain terrified to have this done!  I know I need it.  I know I'll do it, but I dread it with every part of my being.  Everybody says I'm a healthy "young" woman, but I feel like pain is killing me one day at a time....emotionally, physically, and in so many other ways.
Retired Mom

damouthy1
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Date Joined Sep 2009
Total Posts : 663
   Posted 9/12/2010 9:08 AM (GMT -7)   
Awww Mom, I am so sorry you are going through this right now. I have to admit that I would be terrified too. I wish I had some great words of wisdom to ease your fear, but I think its human nature to be scared when we have to have surgery. It's also scary to think about more pain. You will be in my thoughts and prayers and I just know that everything will turn out just fine. You are a very strong lady and you will overcome this too! Please keep us posted as you know how much all of us care about you. Hang in there and take care of you!
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 9/12/2010 10:49 AM (GMT -7)   
Gee you are way ahead of most then if your PM dr is handling the anesthesia, who better to know your pain than him. I think if you speak with him about your concerns he will do all he can to avoid future problems. It is always scary having surgery of any kind and I think when CP is involved it tends to push us a little over the edge at times. The best you can do is try to slow down your stress factors as they will only add to increasing your pain level. You may not have the problems you are anticipating. Big deep breaths. Take care & good luck. Susie

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 9/12/2010 2:01 PM (GMT -7)   
RM,

I hope that you get the chance to surround yourself with loved ones before the procedure. Whether its a long phone call to a old friend or dinner with family, I found that time with loved ones before something like this really helps :)
MRI revealed a bulging disc w/gel lost at L5 and showed the bulge touching nerves, causing sciatica. Diagnosed w/ Arthritis which is responsible for joint inflamation pain. Treatment: Nucynta 50-150 mgs every 6 hours (schedule II narcotic, Mu Opoid agonist and NE reuptake inhibitor), Celebrex 100 mgs, Klonopin .5, Epidurals, Radio Freq nuerotomy (sept 8th, 2010)

hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 9/12/2010 2:04 PM (GMT -7)   
Good luck, we will all be thinking about you!
"lIFE IS NOT WAITNG FOR THE STORM TO PASS.....IT IS about LEARNING TO DANCE IN THE RAIN"
Diagnosed crohns Disease, Bladder tumor and inflammation, Herniated disc, spinal stenosis, facet arthritis, degenerative disc disease, siatica, Three laparoscopis, hysterectomy, physical therapy, trigger point injections, spinal epidurals,
Meds lyrica, norco, amrix,metanx,pentasa.
Spinal Fusion 3/20

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/12/2010 4:45 PM (GMT -7)   
Thanks guys. You always make me feel better. I'm just really dreading this procedure.

I'll keep you guys posted.

Thanks!
Retired Mom

Riccardo
Regular Member


Date Joined Mar 2010
Total Posts : 36
   Posted 9/12/2010 5:40 PM (GMT -7)   
Dear RM:
 
Best of luck to you.  You sound (seem?) like a sensational person with a good heart and spirit.  I am literally saying a "Hail Mary" as I write this.  I have never been very religious, but dealing with my constant pain is making me think it might not be a bad thing.
 
It's great that you are keeping your pain doctor so informed.  It never occurred to me that in my 7 surgeries, it might have been helpful to do what you are doing.
 
Love and best wishes,
 
Riccardo

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 9/12/2010 6:12 PM (GMT -7)   
Hi Mom,

Is this the TVT surgery you're having done? I had it done in January 2008 and I'm so glad I did. I had been scheduled to have it done earlier, but the surgery was cancelled after an hour of the doctors trying to get a vein to start an IV. After not even being able to insert a central line thru a vein in the groin, they called it quits...I was devastated.

Anyways, surgery was done about 3 months later, and it was a pretty easy surgery in terms of pain, etc. I worry too Retired Mom, because I have structural problems with my hips, and so when they put them in the stirrups, it's pure agony, because my hips don't bend like that. Now, they always put me to sleep before positioning me, so I don't feel it.

In all honesty, I've never had tremendous pain in my hips after a surgery, but it's possible that because I'm focused on the new pain, I overlook the old. This surgery isn't all that painful - there's one tiny incision done "inside" and you will pee blood for a couple of days (sorry, I know that was graphic), but there isn't a lot of real pain. Recuperation was relatively easy and while any surgery tends to flair up my Fibro, it wasn't as bad as other flares I've had.

I had the surgery at 11am, and was home by 4pm. Within about 3 days, I felt "normal" again.

Good luck to you...I'll be praying for you, and hope you'll be back posting soon!

hugs,
Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 9/13/2010 12:31 AM (GMT -7)   
Dearest Mom , I do know the fear your feeling , and I hope there'll be someone to go with you to the surgery and be by your side . You are a wonderful person and I'll be praying hard for things to go right for you and that your pain levels will be low . Please keep us , your family posted on your condition , we love you here and care very much how you are doing . I'll be thinking of you !! Lots of Love , your friend Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Staples out , a little redness , adjusting and hoping for the best .

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 9/13/2010 6:27 AM (GMT -7)   
Mom,

Surgery is a scary prospect for anyone, and when you throw in CP it can make things that much more daunting. I will be praying for a successful surgery and comfort for you. I think talking to your PM doc about the positioning is a good idea. You are very lucky to have you anesthesia administered by your PM doc.

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Alcie
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Date Joined Oct 2009
Total Posts : 4643
   Posted 9/13/2010 7:37 AM (GMT -7)   
Right with you on the back issues. Mine's a disaster.
I always ask to talk pre-op with the anesthetist as well as the anesthesiologist, because the anesthetist is never told anything in my experience. I also make him/her wait to start pushing the sleep med until I get myself settled on the table. I've been zonked while half sitting up a couple of times. They're always trying to rush their job because the surgery schedule always too packed.

If you are nervous ask for some pre-medication to help you relax. It'll halp your spine too! I refuse Versed routinely because it just makes me feel awful for a couple of days, but a little Valium helps a lot because it's a great muscle relaxant. (I also don't like the idea of amnestics, which is mostly what the Versed is for.) But ask ahead of time!! Often you can't get anything pre-op if you don't tell them the day before that you need it.
Alcie
 
 

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 9/13/2010 3:31 PM (GMT -7)   
Dear Mom
I hope you are feeling a bit better regarding your surgery tomorrow. I wanted to tell you I was thinking about you and I hope it goes well for you.
I can understand how you are so worried about it as I just saw a gyne dr. regarding my bladder problems and he recommended the surgery for me. But because of all the pain I am having I have decided to forego the surgery for now.

Know that we are all thinking of you as you go forward with this tomorrow.

Hugs
SUZANE

One day at a time!!

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/13/2010 4:42 PM (GMT -7)   
Thank you all again. I've just sent my sweet daughter to her grandmother's to stay and we'll be leaving here at 5:30 AM. I was just told NOT to bring any of my pain meds to the hospital, so we'll see what they do.

Thanks for the advise on the anesthetist as well as the anesthesiologist (since I really didn't know anything about there being a difference). I'll keep that in mind.

Tina, I'll keep you posted on how this thing goes and which exact procedure they do. If it works well (I pray it works well) and isn't too awful bad, then I'll be glad to share the experience with you so that you might consider it. I know how long I waited when I should have done something years ago. It's hard to consent to have someone cut into your body when you know there could be negative results and surgeries haven't exactly been my friend in the past.


On a slightly separate note: I just couldn't resist telling you guys this... my reumy ordered a nerve conduction tests on both hands and arms for a neurologist...no consult, just test...so anyway, I called them today to set it up and told them I was having bladder surgery tomorrow and would have to wait a while because of that. She suggested Wednesday would be good (as in the next day)....duhhhh????? I said "excuse me, but didn't I mention I was having surgery tomorrow?". Then she just moved on to say, "Ok, what about the 24th?" This is follow-up, so we'll do it on the 1st of October, but I can't even understand what these people are thinking. What exactly are we thinking when we want someone to just have surgery, get up, walk out, and go to another town for a nerve conduction study the next day. Then I go to PM on Thursday. It's no wonder I'm starting to feel crazy about all the Dr apts. I think even the receptionists are crazy.
Retired Mom

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 9/13/2010 6:00 PM (GMT -7)   
Thinking of you and praying for you.

Hugs,

FLower

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 9/13/2010 7:11 PM (GMT -7)   
Hi RM,

I'm coming in a little late here. I'm not sure I have anything more to add regarding your positioning during your surgery/preventing further back pain, other than perhaps to request that they use extra cushioning. My real reason for posting was to wish you the very best of luck tomorrow. I hope that they surgery goes smoothly and is a big success! Hopefully you will only have minimum post-operative pain in both your groin and your back.

I will be thinking of you tomorrow. You are in my thoughts and prayers. Get a good night's sleep & try not to stress yourself out about tomorrow too much. Don't forget to bring comfy clothes for after surgery & lots of blanket and pillows for the car ride home!

bug hugs,
Skeye

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/13/2010 7:41 PM (GMT -7)   
Hi RM, I don't know if you'll get a chance to read this before the surgery, sorry I missed replying earlier. I know what you mean with reception staff, they're for the birds half the time. You say school hours and they say 8am or 3pm orsome time not at all school hours inclusive! Obviously don't have kids.
Look best of luck with this surgery, often its the pre worries that are worse than the reality. I know when I'm in the moment I'm a lot more capable than when I'm thinking of it all. I really hope this is the case for you. Having your PM involved has got to be a good thing, he will know how to position you surely, but hopefully will fill you up with muscle relaxers and pain killers to ease you through the other side.
I was really concerned last year when I had to have my ovaries removed and come off my RA meds to have the surgery but I was fine, I flew through it all. They gave me amazing pain relief and follow up pain relief until my meds kicked back in again.
I have my fingers crossed that all will go well, best of luck, golitho

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 9/13/2010 8:50 PM (GMT -7)   
Hi RetiredMom:

I just wanted to wish you well tomorrow! You will be in my thoughts and prayers.

Lorie

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 9/13/2010 9:37 PM (GMT -7)   
Mom,

I will be praying for you tomorrow. May you be blessed with low pain levels!

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/14/2010 12:31 AM (GMT -7)   
Thank you all so much!!! I'm up, bathed with the new pre-surgical body wash they give now (that was new to me) and ready to go....I guess. I still haven't waken my husband up. We'd look really silly getting there this early, but I was having nightmares so it was time to move on and get up.

I hope you all have a wonderful, painfree day.

I'll catch up with you as soon as I can........:)
Retired Mom
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