Dear Mr. J,
Good morning My name is Dani. It is very nice to meet you. The Healing Well Community is a great place for friendship, support and knowledge. We are always glad to welcome newcomers.
I am terribly sorry to hear of all your trouble with regards to pain. Even though many of have diagnosis (some, like myself, have evidence of serious problems but no diagnosis "Idiopathic") our pain medications and therapies only "take the edge" off. In other words, we will never be pain free. Of course the goal is to get the pain down as much as possible... often times it is just attempts to restore quality to life.
You know I just gave these first two suggestions to another person this morning, but I think they are suggestions that you might benefit from as well. Have you given throught to going to a teaching hospital? Often times, they are a long drive from home... but worth the extra 2 even 3 hours drive to get answers. I still have to drive 2 hours to see one of my doctors. Thankfully, the others have opened up wellness centers here in my small town. They have 2 to 3 days that they are at the small center.
This might help...
When I first began to have pain I had a hard time understanding that my doctors couldn't "fix" it. I was young and very angry. I had reached a point in my life where I finally had everything I ever dared to dream of. Everything was so wonderful and I had waited for and wished for it my whole life. I still have a wonderful life... the only difference is that I just happen to be sick.
My doctors, all those specialists... They didn't have answers, they couldn't control the pain, they all kept saying they are trying hard to find answers... Finally at one point I was told flat out that I would be "Likely be in pain the rest of your life.". That they were "sorry". That they were unsure "what" was causing my progressive deformities and that "we may never know what is causing it.". They would monitor me closely and try to keep the pain down as much as possible. So.. my first stop was the pain psychologist. These are mental health professionals that help patients with chronic and terminal illness. She quite literally helped me to rebuild who I was and my life. It might be something for you to check into. Lets face it. We are not going to be pain free. We are not going to get who we were back. So, instead redefine who you are with chronic pain as a part of who you are.
I hope more than anything that you are able to find the answers that you need. Again, it was very nice to meet you. Hang in there and stay strong!