* * * HELP!! Bad nerve pain in feet

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jimm
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Date Joined Feb 2011
Total Posts : 7
   Posted 2/22/2011 4:27 PM (GMT -6)   
I have very bad pain in my feet, went to a neurologist, they want to do a bunch of test other that the normal physical tests she did in the office, blood work being one. I have neuropathy symptoms ie: burning, sensitivity, numbness, throbbing pain. The pain is bad at night and I soak my feet in ice water to relief the pain. The Dr suggested nerve pain med:

Lyrica

Neurantin

Tegretol

Lymbalta

I read the side effects and man I dont want to take this stuff.

My question is, what can I take naturally that will help with this nerve pain in my feet? I tried ALA up to 1800mg and nothing, took that with B1 and B12, nothing. I will be getting blood work don't per the Dr this week. My normal blood tests done last week by my family Dr came back normal.

Thanks!

Post Edited (jimm) : 2/22/2011 3:55:50 PM (GMT-7)


Ides
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   Posted 2/22/2011 5:15 PM (GMT -6)   
I take Neurontin - 600mg three times a day to control my neuropathy pain. I have neuropathy in both feet and up mid-calf in my left leg. Mine was caused by Crohn's disease. A biopsy showed that the nerves were dead and gone.
I have no side effects from the neurontin. Without it, I want to take a saw and cut off my feet.

I tried Lyrica but it did not relieve the pain. I know some that have had great relief from it though. Each of us is different.

One technique I found helpful at night was to wad up several pillows at the bottom of the bed to create a tent like space at the bottom of the bed to keep the covers off my feet. I found covers touching my feet made the pain much more intense. Eventually I bought a 18" foam cylinder and used that because it stayed in place better.
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Alcie
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   Posted 2/22/2011 6:49 PM (GMT -6)   
These all seem to help some people, (I presume you meant Cymbalta) Unfortunately I'm one of those who had nothing but side effects from them, and I took them all and a whole lot more!

I have fibromyalgia, all sorts of things with arthritic, scoliotic spine, radiculopathy, degenerating discs and such.

The only meds that have helped are tramadol and diazepam which I can take together, and Flexeril which gives me serotonin syndrome if I take it the same day as tramadol.

I've just been put on 100 mg B6 a day, which may help with neuropathies, although I've read negative reports also. It's usually found in B complex vitamins only at the 2 mg level, which isn't enough. Worth a try.
Alcie
 
 

straydog
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   Posted 2/22/2011 7:01 PM (GMT -6)   
Hi Jimm, welcome to Healing Well's chronic pain forum. I am sorry to hear that you may have neuropathy in your feet, I know the pain can be terrible. I urge you to reconsider the medications the dr has offered you. Regular pain medication has very little effect on neuropathy pain or any type of nerve pain. Many people get a great deal of relief with these medications. All medications come with the potential of side effects. No one can say if this will happen with you or not, as Ides said, everyone is different. If you read the side effects on regular Tylenol you would never take it again, lol. Sometimes a person may have some side effects and they go away in time. So, please don't throw all of your options away. No one likes to take medication for sure, but sometimes this is the only way we can live a decent life.

Again, welcome aboard and keep us posted on how you are doing.
Moderator Chronic Pain Forum

purplereading
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Date Joined Nov 2010
Total Posts : 92
   Posted 2/23/2011 1:24 AM (GMT -6)   
One of the docs I used to see uses nutrisuiticals also, and said to try magnesium for nerve pain. You could try it.

stumped by pain
Regular Member


Date Joined Feb 2011
Total Posts : 23
   Posted 2/23/2011 8:58 AM (GMT -6)   
Hi Jimm welcome,
I have the same feelings in my leg.I have FBSS,degenerate disc dis. I have tried those meds and they didnt work for me. Im taking cymbalta lowest doase and havent had werid side effect but did when PM upped it.
My pain and those sinsations the PM tells me r from the FBSS. My hubby is dieabetic and has it as well and got to say we have tried everthing over the counter. I would as i have with hubby suggeste that you might try see if you can find one that will work for you. like has been said everyone is different. If you do find something that works please pass info my way. thanks stumped.
hope you find some releif today

Jim1969
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Date Joined Jul 2009
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   Posted 2/23/2011 12:44 PM (GMT -6)   
There are lotions and creams on the market that are suppose to help with nueropathic pain. I have seen them at various pharmacies. I do not recall their names nor can I say if they work or not.

I do want to point out though that ALL medications have a vast listing of POTENTIAL side effects. Just because a medicine has side effects it does not mean that any given person will experience them. The only way to know how any medication will effect you is to try it.

I myself take Cymbalta for diabetic foot pain and I have never had a single side effect from it. I have also been on Nuerontin and Lyrica and never had any side effects from those meds either. If you can not find any relief from OTC products then I do suggest you give them a try. My personal suggestion is to try Cymbalta or Lyrica as either of these meds seem to have a better track record of helping with nerve pain better than Nuerontin and will do so at a much lower mg dose. If you do try any of them though be sure your doctor starts you out at the lowest dose and gradually builds it up until you get the relief you are seeking. This will eliminate or minimize most of the side effects. It may take a few months and a few increases in dosage to know if it is going to work or not. Also if you find the medication is not working DO NOT stop cold turkey. You have to gradually reduce the dose back down to the starting dose or you are likely to have some unpleasant side effects.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Lindaloo
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Date Joined Sep 2006
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   Posted 2/23/2011 2:49 PM (GMT -6)   
I HAVE TERRIBLE FOOT PAIN ESPECIALLY AT NIGHT AND EARLY MORNING.  I HAD FIBROMYALGIA AND ALSO HAVE SOME NEUROPATHY FROM THE RECENT CHEMOTHERAPY TREATMENTS I HAD TO GO THROUGH. 
 
I HAVE BEEN ON LYRICA AND FIND IT TO WORK VERY WELL.  I AM AN RN AND HAVE READ THE SIDE EFFECTS AS WELL AND HAVE EVEN EXPERIENCED SOME OF THEM, BUT THEY WERE TRANSIENT.  THE LYRICA IS A GOOD DRUG AND LIKE SOMEONE JUST SAID, IF YOU READ THE S E OF TYLENOL YOU PROBABLY WOULDN'T TAKE IT EITHER.  YOU HAVE TO TRY IT FOR A MONTH AND THEN DECIDE IF IT IS FOR YOU.
 
ALSO THERE IS VOLTAREN GEL THAT IS A TOPICAL GEL THAT HELPS WITH THE FOOT PAIN AS WELL.  YOU NEED IT TO BE PRESCRIBED BY YOUR DOCTOR THOUGH.
 
HOPE I HAVE BEEN OF SOME HELP.  BEST OF LUCK TO YOU.
 
LINDALOO
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

spinal soldier
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Date Joined Dec 2009
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   Posted 2/23/2011 4:45 PM (GMT -6)   
hey jimm, i was told by a doctor of chiropratic medicine at the Edgar Casey Institute in Virginia Beach, VA that if i took (i also have foot neuropathy) Inositol, a B-vitamin, at 3 grams per day in divided doses it may ease up. it did. now i take a low B-complex with inositol and choline. DL-phenylalanine might help periphreal neuropathy. the big bad side effect with Lyrica and Neurontin is weight gain and a craving for carbs. same with Cymbalta but not as bad as the first two i think but Cymbalta is hard on the liver, more so if you drink or use acetaminophen. i think Lyrica is a good drug and a good thing you can do is use several agents in low dose. the protocol now is a combo of meds. the tricyclic antidepressants: amitriptyline, nortriptyline, desipramine, doxepin, and imipramine your MD did not list but these drugs are considered frontline analgesics with DPNP. Lamictal (lamotrigine) can help and it may help your pain by binding with a certain opioid receptor. Tegretol is a high side effect drug but Trileptal (oxcarbazepine) has the same actions with less bad effects. Gabitril (tiagibine) is used as a add-on. Effexor (venlafexine) is used for DPNP often, it's action is like Cymbalta (SNRI). Klonopin (clonazepam) and Ativan (lorazepam) are used for DPNP (diabetic peripherial neuropathy pain). the amino acid GABA, L-Tyrosine, L-Glycine, L-Glutamine. there is a product by NATURE'S PLUS called; DLPA-complex, other than DL-phenylalanine it has white willow bark extract and bromelain an enzyme in pinapples. also in a herbal medicine book i have it recommends a tea (infusion) of: blue violet, catnip,chamomile, gotu kola, licorce, rosemary and white willow. the opioid/norepineprine reuptake inhibitor; Nucynta has helped some. best of luck to you!

jimm
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 4/1/2011 7:46 PM (GMT -6)   
Thanks all for the replies.

How long did it take for the Inositol to work in?

JCG32
Regular Member


Date Joined Dec 2010
Total Posts : 62
   Posted 4/3/2011 5:30 AM (GMT -6)   
I have tried many and am on meds you stated. For myself I try to not read about the side effects because mentally it sets in too much fear. For me with meds it is best to start very slow and build up gradually. For a few days I may feel yuck like when I started Cymbalta I thought I would throw up for 2 weeks but that went away. So some meds it just means a short time of feeling like crud.
As for supplements I take fish oil/flax,vitamin c which my pain doc suggested,magnesium,multi,calcium with d.

Alcie
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Date Joined Oct 2009
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   Posted 4/3/2011 11:13 AM (GMT -6)   
Some of the information on inositol is out of date, as one of the forms (isomers) is no longer considered a B-vitamin, and another is not considered an essential nutrient because the body makes it. Since some of the forms are also not digested by the human body, and others are readily available in fruit, I think I'll opt for the fruit.

I'd take fish oil if I could, but all the brands I've tried give me the reaction I get when I consume sulfite. This leads me to suspect that since fish are often sulfited right on the boats, maybe the oils contain a lot of it when they are made into capsules. I didn't tolerate flax oil, didn't like the taste either. I do tolerate krill oil, but haven't seen any effects in my blood work or how I feel.

I seem to get more benefit from just eating nice green salads, what vegetables I tolerate, a few meats since I don't tolerate beans or soy products well. Greens are the only source I have of vitamin K, which seems to make me feel better than anything else. I had to have expensive K pills for a while and noticed they helped, but it's cheaper and more healthy to just eat real food, avoid snack foods, convenience food.
Alcie
 
 

jimm
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 4/17/2011 6:28 AM (GMT -6)   
OK, I had like 6 blood test done ei: b6, b12, ana, rf, esr, hgbalc, fobte.. all came back good. Next on the list is some kind of electo muscles test that take like 2 hours and a MRI of the lower back, think I will opt for the MRI as I think the problem with my neoropathy pain symptom in my feet have have something to do with the nerves in my lower spine that feed into my feet. Any thoughts from others as the lower spine being the source of my foot pain being that other tests have came up clean? Its amazing that in this day and age you have to do your own research online to help find a cure for yourself instead of doctors telling you straight up whats wrong.

spinal soldier
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Date Joined Dec 2009
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   Posted 4/17/2011 6:04 PM (GMT -6)   
some doctors can do that but i would estimate 15% so sometimes it takes looking around and going from idiot to idiot. first of all; if i had to pick one of all the doctors i have ever been to as far as finding out exactly whats wrong i would pick the neurosurgeon that did my fusion surgery, thats one that comes to mind out of 25. with neuropathy in your lower extremities and normal blood sugar it may be RSD. as far as ways to control this type of pain they either don't work or have horrible side-effects. i do not know how out-dated the research on Inositol is but i do know that after taking it as directed by this DC from the EDGAR-CASEY INSTITUDE who was also a kineseologist which was 3grams per day in divided doses (3000mg) for 2-3 months and then back off to 500-1000mg on top of a good B-complex which applies to in the beginning as well. the B vitamins work in a team in many reactions and the Inositol may make your hair thicken in and get vibrant and you get a energy increase. it reduced my neuropathy by 40-50% after 3 months at 3 grams. i do not know about combinding some of these things with SSRIs or SNRIs or Lyrica/Neurotin but the amino acids: L-tyrosine, DL-phenylalnine, GABA, 5-HTP, L-glycine. high omega-3,6. ALA, Taurine. finding the right med cocktail is hard but many options are out there so keep at it.

straydog
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Date Joined Feb 2003
Total Posts : 10600
   Posted 4/17/2011 7:34 PM (GMT -6)   
Jimm your dr is telling you the truth about the low back possibly affecting your feet. It is called radiculopathy, meaning you could very well have some nerve involvement going on, possibly a pinched or compressed nerve. That sure can affect the feet. A nerve test is often done to check for this, however, I have seen nerve involvement not picked up on the nerve test. So, if the test comes back normal that does not mean a lot. The nerve test are not 100% accurate.

Let us know how it goes.
Moderator Chronic Pain Forum

Alcie
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Date Joined Oct 2009
Total Posts : 3080
   Posted 4/17/2011 8:04 PM (GMT -6)   
Jimm -
I'm having nerve pain - needle-like stabs in both my feet, from heels to toes. They're from my spine. I also have dull nerve pain in left hip and thigh, right calf. These are also from my spine.

I've had spine MRIs that show a herniated disk, extraforaminal protrusions and annular tears, all of which can be the cause of the radiculopathy, as noted by straydog. I know this is the cause of the pain because I've had injections in my spine that has stopped the pain. Unfortunately the pain comes back. It's not a permanent cure. It worked for nearly a year at first, then for a few months, now only for a few weeks.

As straydog said, the nerve tests didn't show much.
Alcie
 
 

jimm
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Date Joined Feb 2011
Total Posts : 7
   Posted 5/2/2011 5:25 PM (GMT -6)   
I have an MRI scheduled for this Fri.. Also, I have had a pain in my right side for over a year now, some days a barely notice it and some days it takes your breath away. Had 2 ultrasounds done and they found nothing. It seems to be at the edge of my rib cage and I also feel it around the back of my right side, they checked everything during 2 separate ultra sounds and nothing. Thinking of having a second MRI done on my mid section. Here is a pic of where the side pain is. I wonder if my neoropathy pain in my feet and this pain tie in together somehow? Had both for nearly the same time

http://img811.imageshack.us/img811/3616/ribkg.jpg

NikiS
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Date Joined Mar 2011
Total Posts : 129
   Posted 5/2/2011 5:46 PM (GMT -6)   
Hi Jimm, I am no doctor or nothing, but I went through something similar after my son was born. My arms and legs went numb and I had a bad prickling feeling and burning sensation at times in them. What helped me the most (believe it or not) was steroids!!! They tried a slew of other things at first and quite by accident found out that gave me FULL relief... I don't know if this would help you or not, but if they haven't given it a shot yet, I would see... it could also help to figure out what the problem was. It took me almost 2 years now to realize that I had Lupus... and the symptoms were very UN-lupus-like at first and there are a host of other autoimmune disorders that often start with that prickling, tingling, numby feeling. Have you had an H1N1 vaccine recently? If so, what you are describing sounds very close to CIDP or Guianne-Barres Syndrome which the vaccine can induce (in fact, that is what they first thought was wrong with me last year as I did not have any real pain--just the frustrating pricky feeling, numbness and all that)... but they can do a nerve-muscle test for that. I would get a good neurologist involved and possibly a rheumatologist or endocrinologist if you cannot get any answers soon. I would hate for you to have to go through this many years as I have trying to find out what is wrong.

Are you tired a lot by any chance? Do you feel a pricky feeling? Is it worse at night when you lay down (even start itching real bad?) Do you have any urinary symtoms (real thirsty, frequency..etc..?) Do you have a lot of unexplained numbness in your hands/feet or other areas at times? chest pain? Dizzy? Ringing in your ears? Low potassium??!!! Do you have any unusual rash or sores anywhere? (Scalp, mouth, face, chest?!) (Rash on face may even just look like a bad sunburn across your cheeks and nose especially and possibly chest). Do you have bruising for no reason anywhere on you? Swelling in your lymphnodes? Swelling in your hands/feet, wrists, ankles or anywhere? do you have any abdominal pain? If you are answering yes to a lot of these questions--GET A RHEUMATOLOGIST before you go through all the things I have over the past 2 years not knowing!!!! It will only get worse. Pain meds help a lot, but real relief comes from steroids if you are experiencing what I have!!! (not low doses either--higher doses of steroids)... you may have to get them to give it to you IV in ER or doc's office to start with if so... You may not have this at all... but want to be helpful as a lot of what I saw you describe is very similar to what I have gone through recently!!! Feel free to answer/or ask more (you don't have to answer all those questions to me but ask yourself... ) and if you have more questions I will keep an eye on this thread and try to answer what I can from MY own experience--not that it is what everyone else goes through or any kind of real medical advice. But I would sure like to help if I could.

Either way, I really hope you get some relief soon. It is miserable to feel bad for so long--and I am with you on all those meds--I can't stand anything not natural unless I have to.. and I sure had to recently break down and take 2 things: steroids and pain meds so that I can get over this!!! All the best, Nicki nono

NikiS
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Date Joined Mar 2011
Total Posts : 129
   Posted 5/2/2011 5:52 PM (GMT -6)   
One more thing, Jimm. They never saw any thing on tests for me until more recently when I went into a full blown flare--and I have had the severe abdominal pain. Have they ultrasounded your liver? Pancreas???!!!! Have those checked out if not... What you are describing sounds so much like autoimmune disorder to me... could be any number of things--but for it to last this long does not sound like just a simple nerve impingement--the description sounds so much like what I have been through and an MRI surely would have shown up pinched nerves by now or any of those typical things...

Try steroids if you can't get any other answers. If you get relief.... then you better beat your way to the rheumatologist.... more than likely it is autoimmune issue... (in case you are unfamiliar with AI disorders... it is where your immune cells start killing off your good cells in your body instead of disease cells--your immune system basically goes into overdrive so the steroids help a lot by slowing it down from eating you up alive!) (Ha-ha!) Not that bad... but it really helps a lot to slow down the symptoms and when it is "systemic" or causing issues all over your body... more often than not I think it is an AI from what I have experienced myself (but then again--I am NOT a doctor... so the best ones to see are doctors that BELIEVE you and care about you!!!) Let me know how it goes! Nicki

Jim1969
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Date Joined Jul 2009
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   Posted 5/3/2011 4:04 AM (GMT -6)   
Out of curiosity have you ever had a nerve conduction study done? If not it is something to consider as it may help locate where the pain is really coming from.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

NikiS
Regular Member


Date Joined Mar 2011
Total Posts : 129
   Posted 5/3/2011 6:44 AM (GMT -6)   
YES! Do it. that was what i was talking about for guianne-barres syndrome or CIDP too. it showed i didn't have it--but that helps to figure out what is wrong if not too.

jimm
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 5/7/2011 1:46 PM (GMT -6)   
Just had an MRi done, need to see the neurologist for details but my doc said something wrong with the L4 L5, wonder if thats whats giving me the neuropathy pain in my feet?

NikiS
Regular Member


Date Joined Mar 2011
Total Posts : 129
   Posted 5/7/2011 2:58 PM (GMT -6)   
could very well be... I am glad they are trying to get to the bottom of it! hope you are having a low pain day! Nicki

straydog
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Date Joined Feb 2003
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   Posted 5/7/2011 11:00 PM (GMT -6)   
Jim69, if you have something showing up at L4-L5, yes that can cause the pain in your feet. The nerve conduction test is an old test, some drs still order them. Not as many drs order them now because of they are about 75% accurate in dxing a pinched nerve in the lower extremity. I saw lots of normal nerve conduction tests done and when the person actually had surgery, once opened up they saw where the nerves were compressed/pinched. Meaning the test can come back normal but that doesn't mean there isn't a pinched nerve.

I saw someone mentioned steroids, they have been used for years to help with inflammation. I just recently was given a steroid shot trying to get some the pain down in my neck. It has helped a little, not as much as I would have liked for it to do.

Let us know what the dr tells you about the MRI. You should also ask the dr to give you a copy of the written report, you need to get copies of these reports to build your own home file.
Moderator Chronic Pain Forum

jimm
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 5/27/2011 3:09 PM (GMT -6)   
I ordered an inversion table to help with my l4 l5 issue, Im hoping that will help with the neuropathy in my feet. I also bought a product called Nervefix, been taking it for about 11 days. I get the table tomorrow, fingers crossed!

Take a look at the ingredients in Nervefix and let me know your thoughts.
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