I am so sorry to read about what you have had to live with. It was hard to read about what the surgeon told you. 14 months.... when each day feels more like 5 days... 14 months is an eternity. You should really press your doctor to help combat your sleeplessness. That will help your overall pain during the day if they can get you to have at least a good 4+ hr rest. I am right at 4 hr finally, it makes a world of difference in my morning pain levels.
With regards to clothing and hair.. I have had to change how I dress as well. It gets really tricky. I am one heck of an internet shopper now. My mother in law makes me skirts as well. Do you know anyone who likes to sew or a good tailor who can give you discounts?
I have a hard time with my hair as it is very long. For some reason my stubborn side refuses to cut it.. it makes drying it straight really tricky. Do you have long hair or short hair? If it is short, perhaps one of those drying caps might help? If it is long, perhaps having it straightened (chemically straightened) will help, so you just brush it and do not have to dry it. I need to have my hair straightened again..
I am so sorry you have to deal with so much pain every day. I can tell you are fed up and at your wits end. Tramadol can be increased to 300 mg in a day. It has an Extended Release formula as well. Is it the only medication you are taking for pain? I wonder if adding in a muscle relaxer might help? I take Baclofen and it helps me quite a bit. I love that it is resistant to tolerance. One less thing for me to worry about
I hope you are able to get some naps in. Know you are in our hearts here!
You know, it is really rude for anyone to tell a chronic pain patient that they have a low pain tolerance. Yet we all hear it at some point, by someone! The reason being that you are in pain everyday. Each new month brings a little more damage, a little more pain. If someone without pain, were to wake up tomorrow morning with your "normal" pain, they would likely pass out. You see, you are becoming accustomed to each new level of pain. You go through a few weeks that are really hard, then become accustomed to the "new level". Then you slowly try to work around the "new 'normal' pain". A few more weeks go by and it is the same cycle. Little more damage ~> more pain ~> new normal ~> increased coping mechanism. I think many times folks refer to this cycle as a "flare" but really when it comes to degenerative problems.. it is an increase in damage. That is what they are feeling. That is what you are becoming accustomed to each day. More damage.
I just do not see that you are asking for too much. I really don't. You have all the tests / imagery and confirmation of the source(s) of your pain. At this point, anyone can look at the facts and properly treat you. If there was anyway that you could just get a feel for some pain management specialists in your area it might be worth th eeffort. You know, just when you happen to have some time.. it might be a good idea. Of course I completely understand wanting to try to work with your current doctor. I can tell you are trying hard to communicate what is happening to her/him. I really hope she/he hears your concerns.
I am 30, will be 31. I remember getting pretty darn angry last year and tossing out half my closet. And darned it all! I have the best of intentions of donating it all, I just cant seem to bring myself to do it! I just stare at it in the garage and move it to the side... well, now I wear skirts all the time. I never thought I would be a long skirt kind of gal I am still learning to be comfortable. The hard part is that many times something looks great in the little pictures on the internet, but when it arrives I find out it is poorly made or thin fabric!
I had to giggle at your bed head. I hate that! Now my hair always smells like baby hair because I use my daughters "Johnsons De-Tangler Spray".
*warm hugg* dani