So sorry to see someone at your age having so much pain and issues to deal with and not alot it seems from your post support from family.
You have been given some great advice and I only wanted to touch on something here,with the amount of nausea have you had any kind og digestive work-up? Any kind of endocrine studies done?
Im asking here because of your tolerance or fact that your not getting meds that do any good and look like were talking a wide range of differing meds from your list and Im thinking there may be a reason for none of them working such as absorption issues,the inability to breakdown and make use of those meds by some malabsorption problems or lack of a certain or particular enzyme.
I am NOT a Doc only a lowly nurse but better then that like everyone else here a longtime CPer.
You certainly have tried many things drug wise and hollistically speaking as well and if your not getting any reaction from meds or adverse ones only I would suggest looking for the whys there.
You also mentioned some brain injury thing? I think I read that sorry have some stm loss here and if you did then I want to add that folks with TBI also have been known to have problems with their brains processing the pain correctly and using medications to their potential.
Good luck to you in your search for answers and I dont think anyone here will be offended for your seeking forums that have more ability to answer technical questions. We may have been medical persons in our previous life but we dont give medical advice here just experience unfortuanately and I say that because I wish none of us had to have any experience with pain to share. LOl
Good morning. It is good to hear from you. I hope this morning you are feeling a little more rested. I have been on the 2 to 3 hours sleep cycle for many years. Only recently am I enjoying 4 hours of sleep with only 4-ish waking periods per night. You need a sleep study done. No two ways about it. You have got to get to the source of the problem right away. You have tried many medications at a very high dosage. So that has already proven ineffective. Time to take a deep breath and get a referral to get a sleep study done. Chances are there is another factor as to why you are not sleeping.
Yepp! Nausea is my #1 symptom when my main is uncontrolled. My doctors told me many times that it was normal, but I had only met a handful of people who get nausea from severe pain. I get very tired, swollen, nauseous, I cant seem to communicate very well and the day gets away from me. I usually end up sleeping 30mins after every hour or so of being away. Those days are long. I call them the "Extreme Express". Really, when you are on the express, all you can do is hold on for dear life while it races down the track. Absolute craziness.
You know... your doctor is right. She already adversely effects your health. Cannot allow her to make things even worse. To the family as a whole, to you in particular, to your treatment plan and your relationship with your physician. Try to find alternative means of transportation. If not make sure she stays in the waiting room. Really, try to ask another family member or your father. It will mean of course that you will have to schedule your appointments on days that your father or other family member can do it.. but really the wait would be worth the trouble at this point.
You know, I think secretly, if we were all honest, there isn't a single one of us who hasn't wanted to toss our meds out and be done with it! But as you have already noticed it does more damage than good. Just because you do not "fell" the medications working, does not mean they are not doing their job. I have many medications that I take that I don't "feel" but I know that each one has its purpose and function within my body. You also have to keep searching for a balance. A balance that works for you and your life style. Even if something is only helping 1% of your pain. If you have done just 2 things that help 1% of your pain, then together that is 2% of a pain reduction and well worth it. Hope that made sense.
You asked some specific questions so I will answer them....
QUESTIONS1. Does nausea come with pain?Yep, for me it does.2. What else can I do to manage pain (see * at bottom for current practice)Exactly what you are doing. Just have to build on them. Remeber even 15 reduction is better than nothing.3. Are some people more tolerant to all chemicals and medications?Yes, very much so. Also, just because you don't "feel" different while taking them at the time.. does not mean that they are ineffective. Many times something needs to be built up in your system for a month. Other times, a doctor will want you to exhaust ALL mild / moderate treatment before switching to more aggressive treatments.4. Is there somewhere I can have a long professional conversation with so I can tell my entire story and see what I should discuss with my doctor? I need a condensed more course of action approach then this current one which has gone on for way too long.University Hospital or Mayo Clinic. You really do need to check it out. Here..~~> University Hospitals ~~> Mayo Clinic 5. Is it really even safe to say I suffer from Fibromyalgia with no family history and being a very young male?Fibromyalgia diagnosis is a process of ruling out many other things. Often times fibromyalgia patients go through a year of excluding other possible causes before getting a proper diagnosis. Here, check this out..~~> Fibromyalgia
Post Edited By Moderator (Momto8kids) : 8/31/2012 5:48:55 AM (GMT-6)