Need ideas for dealing with postoperative muscle pain (myalgia)

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Alcie
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Date Joined Oct 2009
Total Posts : 4897
   Posted 6/12/2011 2:28 PM (GMT -6)   
It seems to make no difference if I refuse meds prior to surgery.  The anesthesiologist always comes up with something I do not tolerate.  Thursday I refused histamine releasers, succ, and some other specific drugs and was given one anyway.  I woke up with extreme, severe, horrible muscle pain, could only shiver and moan. 
 
Hours later I was sent home in pain, took more Zofran for nausea.  It didn't get better overnight and was so bad yesterday evening I was doubled over, thought it might be a diverticulitis attack.   I called my family doc who had me take paregoric (I'd like to give that stuff to the anesthesiologist!) and half a valium.  That got me enough relief for a little sleep, but the back, abdomen and neck muscle pain never go away and get bad when I get near 4 hours on Vicodin plus Valium.  Breathing is difficult, like having bronchitis.
 
I'm not allowed NSAIDs for 2 weeks because it was sinus surgery, and it's still bleeding a little.  I can't take my regular tramadol because I get serotonin syndrome with adding Vicodin, don't tolerate much else.  Tramadol alone isn't enough for surgical pain.  Ice bag helps the nose and face pain, which isn't anything compared with the post-op myalgia!  My TENS helps where it's on, but pain's everywhere.
 
I called anesthesia, but have to wait until they get around to it to find out what meds were used.  I can't find any remedy online for this continuing pain.  It was supposed to go away, but it's been 3 days and still awful.
 
I'd appreciate any suggestions for stopping the pain.  I've got to have shoulder surgery soon.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/12/2011 2:41 PM (GMT -6)   
Hi Alcie, sorry to hear you are having trouble..

I'm a bit confused with you saying you can't take Tramadol with Vicoden...This isn't usually done since it's two 'short acting' pain medicines and most Dr.s don't prescribe those at the same time to be taken together.....but those two together do not cause Serotonin Syndrome to my knowledge..

Tramdol in very high doses...or mixed with MAOI's or certain Antidepressants can cause this..but not with narcotics..

Unfortunately it's going to be best for you to contact the Dr. first thing tomorrow morning as looking for a remedy online as you say you are doing...is not a good choice...or if you have meds leftover from other appts. to not mix them without asking/telling a Dr.

I would think the ice will help and then if it is 'myalgia' which is muscle pain... then perhaps the Dr. can prescribe a muscle relaxer like Flexeril, Robaxin, or Skelaxin..

I hope that you can get some answers tomorrow...sometimes when I'm having a really high pain day I get all snuggled up in bed and try to find a great movie or tv show to help take my mind off of it...at least for a few hours..

Sending some hugs (( ))

Post Edited (Snowbunny21) : 6/12/2011 2:46:50 PM (GMT-6)


CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 6/12/2011 3:47 PM (GMT -6)   
Alcie, I'm sorry that you're having such a bad time right now *gentle hugs*

On tramadol and narcotics - I take oxycontin as my maintenance medication and I've been given oxycodone IR AND tramadol in quick succession as breakthrough medication while in hospital. My pharmacology isn't as good as SB's but I have no knowledge of them causing serotonin syndrome either.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4897
   Posted 6/12/2011 3:53 PM (GMT -6)   
Dear Snowbunny,
Thanks for the suggestions. This afternoon's the first I've been able to do anything but make tea and ice bags.

Wiki on Serotonin Syndrome: "Antidepressants: Monoamine oxidase inhibitors (MAOIs), TCAs, SSRIs, SNRIs, bupropion, nefazodone, trazodone
Opioids :tramadol,pethidine, fentanyl, pentazocine, buprenorphine oxycodone, hydrocodone" and lots more

I normally take tramadol for fibro muscle pain. And, yes, I get SS if I take 2 at a time. It's not much good with post-surgical pain, so I switch, at least 12 hours off, when having surgery. I've had SS from taking them the same day, not even together. Vicodin isn't as nice as tramadol, not good with fibro pain. I can't take Flexeril with tramadol, but might be able to with Vicodin - good suggestion! I have all 3 since pain doc had me trying them for fibro. I am getting some relief with Valium, Rx PCP. I do run my meds by him and pain doc.

Since I already talked to PCP, ENT, Anes, I have no recourse but to the 'net. That's where I found this pain syndrome has a name, also that nobody's posted a cure I can find. I'm hoping Anes will get back to me Monday. I knew anesthesia could cause problems for people with fibro, and also people like me who are post-polio. I get a double whammy from having both. Maybe it'll just go away like it's supposed to but hasn't.
Alcie
 
 

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4897
   Posted 6/12/2011 4:08 PM (GMT -6)   
Dear CRPSpatient,
Thanks for the hugs. I just wish I had a breakthrough med. I've had some fibro flares recently that haven't been much fun. I was just getting started with Topamax, 1/4 pill, from pain doc, which I see you take. I had to stop it temporarily because it has side effects, supposed to go away, but didn't want to confuse pain issues for this surgical recovery. It was helping a little with pain, but I've thought all the others were too, neurontin, Savella, Lyrica, Cymbalta, ... I'll give a fair try soon.

Tramadol is pretty good at raising serotonin for me. That's why I like it. Vicodin sure misses the spot for that effect.

I've got some bone spurs in my shoulder, also impingement, bursitis, tendonitis. So I need to get that fixed, but don't ever want another postoperative myalgia episode!
Alcie
 
 

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/12/2011 4:11 PM (GMT -6)   
I totally appreciate your experience with the Tramadol and any effects of SS...I say this with care...just be careful with using Wikipedia for anything of importance as it's a website that is posted by random people from around the world...anyone can write on there...just like here...we are just regular folks and never take the place of Dr.s...

But obviously I'm not wanting you to take medicines together that would effect you negatively and always speaking to your Dr. about anything you take in solo or combination and not going by what I or anyone else says:)

Have you tried the nerve pain medicines for Fibromyalgia? Like Lyrica, Cymbalta or Neurontin? Have you seen a Rheumatologist to help you treat this?..

I am sorry to hear you have another surgery coming up:(...Just take it one day at a time...

Are you saying you don't have a Dr. working with you taking these medications? Like a Pain Mgmt. Dr. or your Surgeon? Just please be extremely careful as I mentioned if you are taking medicines from previous Dr.s or appts. and make sure they all know about one another and the medications...

Wish we could do more for you...still sending those hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4897
   Posted 6/13/2011 9:05 AM (GMT -6)   
Dear Snowbunny,
You're right that wiki isn't always reliable. One should read multiple sources, check the references. Maybe Vicodin isn't considered by most to cause SS, but tramadol does, and I've gotten clonic spasms from taking both the same day, not even together.

I always talk with my docs about my meds. Pain doc, rheumy, PCP, allergist .... I've had bad experiences with ALL the fibro meds. Long-lasting pain meds don't seem to work. As for forum posters, there are occasionally suggestions to consider that aren't easy to find elsewhere, but again should be checked out.

I am waiting to hear from the head of the anesth. dept. about what meds I was given. I talked to patient support, referred there by operator mistake, and asked if there is some way I can make myself more clear about drugs I don't tolerate. Going in with too many papers assures that none of them will be read. She said I may be able to get a letter from the anes dept head. I'll ask him when he calls.

This morning, day 4, severe muscle pain seems less, only nausea, low back muscles and right biceps cramping. Expected pain from sinus surgery isn't bad, although I had another nosebleed. I'm still hoping someone has a solution to postoperative myalgia, in case I get it again when I get the shoulder repaired.
Alcie
 
 

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/13/2011 11:05 AM (GMT -6)   
Thanks for more of an update...glad the muscle pain is a bit less...I don't know about you...but nausea is sometimes worse than pain for me...blechhhh...

I'm hoping that you can get some help soon!...

We have a reprieve in our weather today from it being close to 100 the last week...so had my windows open...soooo nice:) Boosts my spirit too..

Hope today can be a little better..

Hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4897
   Posted 6/14/2011 8:58 AM (GMT -6)   
Day 5 post-op myalgia. 
I thought things were going better yesterday, but last night was another doozie.  Every 2 hours all night the muscle pain woke had me up looking for relief. 
 
I'd tried going back to my regular tramadol during the day, thought the post-op syndrome was over.  This morning has me on the heating pad, wondering what more I can do.  Vicodin with 1 mg valium in between doses helps, but I'd really like to stop taking them.  Pain doc today suggested NSAIDs, but they're not allowed for 2 weeks.  He also said muscle relaxants, but Flexeril has given me serotonin syndrome in the past, and none of the others has worked, except diazepam, which he doesn't like me to take.  My PCP disagrees, says 1 mg diazepam is not going to make addicted.
 
Anes called - I was given Versed (had given refusal in writing), rocuronium (and I had asked for no histamine releasers). 
 
 
I've had several ops, never had paralytics before.  I need to write up something asking not to have them given to me again.  My lists of allergies and bad reactions with a one line refusal to have sulfited meds and no succ just didn't get the point across.  Maybe a list of what I DO tolerate?

delilady
New Member


Date Joined Jun 2017
Total Posts : 1
   Posted 6/1/2017 12:30 PM (GMT -6)   
Hi
Had surgery to remove golfball size cyst from liver and cyst from billiary tree. Surgery seems to be a success with no pain or infection at incision site, However now I cannot eat without severe stomach spasms that can spread to my side and back. My surgery was a month ago and I have lost 12 pounds because I can only ingest about a ounce or two of food at a time. I am on diezapam which helps after 30 minutes meanwhile I end up on the floor in a ball of muscle spasms. I am getting desperate for solutions. Doctor has passed me to GI doctor for another endoscope but I am not convinced that there is solution there. I am thinking it has more to do with post operative myalgia. Has anyone else had this experience?
what was recourse? I know I have to eat but I dread it. Before this I was a foodie kind of person. I actually own a restaurant. I am getting close to giving up!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14991
   Posted 6/1/2017 12:41 PM (GMT -6)   
Hello delilady, you have brought up a thread that is 6 yrs old. I suggest that you start a new thread so more members will see it. They tend to not look at these older threads.

I will lock this thread & look forward to your new post. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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