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pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/25/2011 8:59 PM (GMT -6)   
Hello all, been a while since I have been in, very busy with stuff.  I have recently started to feel bad in the morning and throughout the day and the doc thinks I may be withdrawing from my current pain med (Vicodin 10/325) so he today prescribed the Methadone suggesting that it will carry me through till morning and beyond till i start building up my other med again in my system.  I am very nervous about trying it.
 
What say you all?
 
THANKS IN ADVANCE !!
 
s.
 

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/25/2011 9:00 PM (GMT -6)   
b t w...its a small dose 10 mg

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/26/2011 1:34 AM (GMT -6)   
Hi s...

I can understand why you would be nervous about trying something like methadone...it would scare the sox off of me. But I also would sit down and talk with my doctor or whomever you are comfortable with on your medical team. Maybe a nurse, PA or specialist. ... someone who has knowledge of the drug. I've not used it before but if my doctor suggested it I would have to take a while to think about it for a bit. I do trust him though.

For me, and possibly others, the one thing that invokes fear trying new medications is the connotation they have. Meth is a bad word, just like Oxycontin. But these are perfectly good medications taken for the right reason and with doctor's supervision. Unfortunately the media and 'druggies' have messed it up for all of us. Let one famous person have an issue with a 'Hot Pill' and it's bashed for weeks. Never mind the thousand and millions who take these, do well and do not abuse them.

Stepping down from soapbox now..lol
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a few other side dishes
~~~~~
Wrinkles should merely indicate where smiles have been.
Mark Twain

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/26/2011 4:37 AM (GMT -6)   
PieceofCRPS (I like your screenname!) tongue
 
I'm sorry you are not feeling too well... and suffering through what they they think are "withdrawals".  That's the thing w/ a short-acting med (like Vicoden).  You have many "peaks and valleys" as I like to call them.  On the "peaks" - your pain is controlled and so forth.... but as you come down to the "valleys" - you start feeling lousy and suffering those withdrawal symptoms until you take that next pill.
 
If you felt like sharing some more info - that would be great.  Have you tried other medicaions?  Anything else "long lasting" or extended-release?  (I'm sorry if you've shared this before.... I just don't remember). 
 
I have been on methadone in the past, a couple of times.  10mg is the *usual* starting dose.  I think I was on 60mg at my max (but don't quote me at that).  I also always had a breakthrough med w/ the methadone. 
 
All that said, it was not the medication for me.  It did not help adequately control my pain issues - even at the higher doses. 
 
Methadone can have side effects that scare people.  But some swear by it for pain control.  Others won't even try it or it didn't work for them.
 
Again, I *personally* would exhaust other options before trying Methadone - but poCRPS - that's just me.  You gotta do what's best for you.  If your doctor thinks this might help you.... you might give it a try.  Give it a few weeks and just see if these symptoms you are having improve. 
 
What are you nervous about w/ trying it??  Any other info or questions - please ask away!  Regardless - I wish you luck and PRAY this works to help your pain.  Let us know how you are doing.....  Good luck!!
--Tina
Pain Issues: DDD; fibromyalgia; migraines; carpal tunnel syndrome; tendonitis
Multiple Health Issues: Disabled due to POTS (heart condition); dysautonomia (dysfunction of the nervous system); hypothyroidism; adrenal insufficiency; chronic hypertension; chronic fatigue; sleep apnea; anemia; Vitamin D deficiency; etc etc
Meds: Too many to list....
Personal: Mom to 6 boys and twins girls

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/26/2011 8:50 AM (GMT -6)   
Hello, I am nini53 aka Kathy, I had a wonderful experience with methadone 10mg, methadone has at least a 24 hour life, thats one of the best things about it.  I was forced off methadone due to the stigma it carries.  Methadone is inexpensive and at least for me was the best pain medicine I have been on ever.
 
I wish I could find a doctor who would prescribe it again.  But those days are over at least in this area.  Again everyone is going to have a different experience with any med.  But I would not fear it.  There is nothing to fear if taken the way it is prescribed.  Hope it gives you the relief you need.
 
Take care.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11396
   Posted 7/26/2011 10:17 AM (GMT -6)   
I am in agreement with others as taking it as a last resort type of medication. You may very well be at this point, I don't know. It is not a drug for short term use, it is strictly long term use only. Granted it has the half life to deal with which can be dangerous to some. It is a cheap medication and can control pain very well for some people. We have some people here at the forum that have been on it and one in particular has been on it a very long time and is on a hefty dose. In fact she has not been able to wean off of Methadone to try another pain medication. I know of two attempts. Thats another downside to it. I suggest that you use the search feature here at the forum and and look at some of the info, it has been discussed at length here in the past and you may find some helpful info there. If you have not been tried on many of the of the other pain meds I would talking with my dr about trying something different. But, thats just my opinion, I tried it and was not able to tolerate it.

Its is your decision of course and I wish you well in whatever you decide. Please keep us posted on how you are doing.
Moderator Chronic Pain Forum

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/26/2011 7:46 PM (GMT -6)   
Hello all, thanks so much for the feedback. I have decided to not take it. I have also decided to try cut the amount of Vicodin I take in half. Today was my first day to 1/2 it and I am feelin gpretty crappy and my pain level is higher than normal a tthis point but I have been on my feet a lot today.

For a little history, I have a vrush injury to my right foot, I have no trouble at all reaching a level 8 on the pain scale every day. I started on very mild drugs like ultram (i think it was) then went to Vicodin 5 then 7.5 then the 10 which i actually started breaking in half and have been taking my prescribed 4 dosed broken into 6 - 8 smaller doses (for the last 6 - 8 months and my pm doc approved this) throughout the day as this is what controlled my pain the most.

So have to admit I had forgotten how bad my pain was prior to Vicodin and I am not welcoming it back too much this evening. Surely there must be another drug out there in between what i have and i what i just got.


Warm Regards,
Su

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1173
   Posted 7/27/2011 12:25 AM (GMT -6)   
Su - do I take it from your username that you *have* CRPS?

If so - have you been tried on any of the nerve pain meds - Neurontin, Lyrica, Topamax?

It might also be worth thinking about low dose methadone afterall. It works a little differently from most of the opioid medications - it still has the opioid effects, but also acts as something called an NMDA-antagonist (tramadol actually does a similar thing). The NMDA-antagonist effect is thought to have some importance in managing CRPS pain.

It actually gave me the best pain relief I have ever experienced. My problem is that I'm very sensitive to the GI side effects of most opioids, and my nausea and vomiting with it was so severe it almost put me in hospital :(

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/27/2011 12:57 AM (GMT -6)   
Yes, that is my diagnosis.  It is directly caused by the crush injury to 5 years ago and other than some mirroring to my left foot and pain in my right ankle leg and hip, it has not spread to other areas.  I did try other non opoide meds in the beginning, most caused chronic headaches or other symptoms and I just could not tolerate them.
 
I have  considered the stimulator, have been approved by my insurance but have refrained from it because of my job where I do alot of bending twisting lifting etc...
 
 
Su
 
 

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/27/2011 7:43 AM (GMT -6)   
Thank you ! I shall speak with my doc about the stimulator again.

I realize the difference between Methadone and the street drug, I just kind of feel like my doc made a huge jump from Vicodin 10 - 4 per(in 8 or less doses) to Methadone and made it clear that is it worked better I could switch over.

My pharmacist, when I asked what i take when I start withdrawling from the Methadone what do I take to get off of that?. he said you dont,,,people go on it and never get off of it...

this really made me aware of drug addiction and I am very fearful...

regards,
su

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11396
   Posted 7/27/2011 11:42 AM (GMT -6)   
SU, that was the point I was trying to make about Methadone, it is a very difficult drug to get off of once you start it. I would also talk to my dr about trying one of the medications that is used for nerve pain, such as Cymbalta, Neurotin or Lyrica. Those tend to work better for nerve pain over regular pain medications. Many people tend to not get much relief from the typical pain medications when it comes to nerve pain.

Have you done a trial with a stimulator yet? I would like to suggest that you use the search feature here at the forum and read up on the SCS Units. There is a wealth of information here on the units and it is current information, including different mfg that makes the units. You are correct about your work activities being a potential problem with a unit. This is why I suggest that you do some reading here at the forum. The search is at the top and just type in SCS units. Migrating leads are a problem and some of our members have undergone numerous surgeries due to this problem. Take care.
Moderator Chronic Pain Forum

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/27/2011 8:32 PM (GMT -6)   
Hi
I was tried on Nerontin and Lyrica and could not tollerate it. I just did today get a new topical I am trying that was made for me containing 3 drugs.
I am going to continue to reduce the Vicodin to half of what I normally take where as i will not be withdrawing through the night and morning hours....I can manage my pain somewhat by restricting my activity. I will just have to see how this goes. I dont want to spend the rest of my days taking a withdrawing from pain meds

Su

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/27/2011 8:43 PM (GMT -6)   
....this is exactly what I am talking about....I have withdrawed from my current meds so many times and it sucks...early on I kept stopping it, convinced I was better, only to find out i was not after a few days of hell...I only stopped cold turkey once,,,lol,,,thats all it took to know never to do that again.

I don thtink i would ever have a serious problem with any drugs as I am determined to use alternative methods the most and relying on drugs the least and I am very aware of it on a daily basis.

Sounds like it is a great drug for patients who has unbareable pain all the time all over their body

Su

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1173
   Posted 7/28/2011 4:12 AM (GMT -6)   
Su - have you ever tried Cymbalta, as Straydog suggested, or even Topamax? Cymbalta is another of the antidepressants and I do know a lot of CRPS patients who've gone well on it, though personally I couldn't tolerate the side effects. Topamax has been good for me though.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/29/2011 6:06 PM (GMT -6)   
Yes, I have tried most drugs. I just do not tolerate very much. I have been reducing my pain meds to half this week so the withdrawl feeling i have been getting is gone and I am holding up oK for now. My pain level is definately higher than it was when i was taking twice as much but I am coping.

Su.

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1116
   Posted 7/29/2011 9:11 PM (GMT -6)   
I have to disagree with some of the others regarding methadone. Methadone is an excellent pain medication. In fact, that was it's first use and it was discovered that it reduced/eliminated withdrawal symptoms in heroin users so it became widely known for it's ability to manage withdrawal symptoms and cravings in addiction, more so than for it's pain management properties.
That all being said, I was on methadone when I had CRPS in my shoulder, hand and arm....it was by far, the most effective medication of the 17 or 18 different ones that I was , including fentanyl patches.
The big "problem" with methadone use for pain management is the horror stories that people have heard or read about on addiction forums and they have become exaggerated over time and wide spread. Using methadone for pain treatment and using it to control withdrawal symptoms are two different ball games. You can't compare one to the other. To do so is unfair and ruling out a medication that might very well be the most helpful when it comes to managing pain because of passed on stories on the internet.
The only difference in stopping methadone and stopping any other opiate is that the withdrawal symptoms start a bit later than they do in other medications and they can, not that they will but can, last longer....in most other opiates, withdrawal begins shortly after the missed regular dosing of the medication. In methadone, it doesn't begin for 12-36 hours after the missed regular dose...depending on the individual.....and it can last a bit longer than it does for other opiates. In other words, most of the worst of withdrawal symptoms will begin to ease up by day four with other opiate pain medications, with methadone they may not ease up until 7 days or  10 days. During that time though, symptoms are improving with each day. Methadone is stored in the fatty tissues of the body, which is why the withdrawal is a bit protracted....
Methadone is a great pain medication, it treats both neuropathic pain, and mechanical pain, is the cheapest medication out there on the market today, simply because of the fact that it has been around for many decades now....
Like any medication there are side effects, but titrating up or down in doses, slowly over a few days to a week at a time, minimizes side effects and also minimizes withdrawal symptoms. Any opiate medication , needs to be titrated up or down when increasing or decreasing dosing or you will experience side effects.
I was on methadone for several years, and had no problems whatsoever stopping it when I felt that I didn't need it anymore- and I would highly recommend it again to someone who's doctors felt that it was worth trying for pain relief.
While I know that some people have had negative experiences with methadone, I think that most times that has to do with doctors not titrating slowly enough or giving a patient too high or low a dose to start the methadone to begin with....the key to using methadone is go low and go slow....as my pm doctor has said. And I know from experience that that is the only way to use methadone as a pain med. It shouldn't be increased or lowered more than once every 3-7 days , and if that rule is followed most patients do quite well on it. And have no issues coming off it either.
Anyway, these are just my two cents , for what they are worth.....
Sandi
 

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/30/2011 5:42 AM (GMT -6)   
Sandi, thank you so much for your input. All of your info is great but one thing you said really caught my attn. You said you had CRPS - id it better? or are your symptoms improved?

Thanks a bunch !

Su

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1116
   Posted 7/30/2011 6:00 PM (GMT -6)   
Hi Su,
Yes, I developed it after an anterior shoulder reconstruction. It initally started in my right shoulder, which also became frozen, then spread to my arm, and hand, eventually to my fingers. I dealt with it for 7 years plus a few months. It was agonizing and there were many times when I begged my doctor for amputation because I didn't think that I could live that way anymore....I had multiple stellate ganglion blocks, etc, and meds up the wazoo, but nothing really helped much for long.
I got pregnant with my oldest son, was still taking meds, and took myself off all of them, except methadone, because of all of my doctors recommendations that I stay on it...but I took myself off that too, once he was born...in the meantime, lowered my doses as much as possible.
There is something about the pregnancy hormones that for some patients will effect the RSD/CRPS and while it didn't get rid of it completely, I have far less pain than I did prior to the pregnancy, and I was finally able to start using my fingers, hand and ultimately arm and shoulder again after all of those years. It was painful to learn to use those again but I did it.....and I think that helped. That's part of the reason that PT and OT are so vital to helping RSD/CRPS patients , because the disuse actually makes things so much worse.
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

chanterelle
Regular Member


Date Joined Apr 2011
Total Posts : 99
   Posted 7/30/2011 7:27 PM (GMT -6)   
Unfortunately it did not give me any relief whatsoever. Felt as though I were just eating candy or something. I sooooo wanted it to work!
:-(
Back injury 2007 with 3 herniated discs, IT band syndrome, myofascial pain, DDD.
Rotator cuff injury both shoulders.
Diagnosed with Celiac Disease February 2011.
Diagnosed with Fibromyalgia April 2011.
Insomnia forever but worse the past few years due to pain and discomfort.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2021
   Posted 9/3/2011 11:55 AM (GMT -6)   
Hi Su, just wondering how you have been doing? Did you decide to try the methadoe after all?? or what pain

meds are you on now? how is your pain level?? Sure hope you are having some better days now. Let us

know how you are doing when you get the chance.

Suzane
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