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Date Joined Aug 2010
Total Posts : 664
Posted 9/26/2011 2:18 PM (GMT -7)
So we have 11 days until the big day. I cleared our schedules meaning only necessary appointments for me and no after work appointments for the family unless absolutely necessary. I hoped that in keeping things as relaxing and low-key as possible with 2 pre-teen to teenage boys and dogs, I would have the best possible chance of having the best pain day for the wedding.
I am getting my trigger point injections next Tuesday as well. I just fear that with the increasing pain and side effects from Lupron, there will be a med change that may cause some issues. My PM doc listens well and will most likely hold that off until after the wedding.
Finding lately that being more positive and focusing on the good days tends to bring on more good days. There are times of depression but not allowing them to control things helps. Does anyone else find this?
Staying stress free is going to be difficult. All the things we planned are great, but there are always issues that come up around any type of event. Hopefully, it will be nothing too difficult to handle.
I haven't been able to post much lately, but I have been reading as many posts as I can manage. The newer members here all seem to be settling in well and providing some support and strength as well. Its good to see so many posting each day! The forum is growing!
Hope to be able to post some more this week and that all are blessed with low pain and happy hearts. Someone told me this week two things, that worrying is like praying for what we don't want, and there are good days, and gooder days. Ha ha. Apparently a person with a severe chronic illness and paralysis said the last one.
Bless you all,
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Date Joined Aug 2011
Total Posts : 79
Posted 9/26/2011 3:43 PM (GMT -7)
I have 3 beautiful children. They are now 21, 19 (20 in Nov.) and 17 (18 in Jan.). ALL of their lives they have been told: "YOU can not control other people nor can you control many circumstances in your life. However you CAN control how you let other people and unwanted circumstances affect you. If you choose to let them bother you, they will. Regarding people, NO ONE will EVER have THAT kind of control over ME. I suggest you choose the same mind set." And, they all have. Keeping a positive outlook DOES make for less stress and happier days. And, dare I say, when I don't let others get to me, it ticks them off and, well, I get some evil enjoyment out of it. LOL!
I am unable to come up with a clever signature. I don't even really have a true diagnosis. I am on percocet and robaxin for chronic hand pain. So, in lieu of a dx and all, I'll just say that I am the daughter of an awesome and mighty KING, THE King of Kings and it is only through Him that I am allowed to live each day.
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Date Joined Mar 2011
Total Posts : 804
Posted 9/27/2011 9:55 AM (GMT -7)
I dont want to sound like Pollyanna, but stress and depression which to me go hand in hand are very much a part of how the pain is from day to day. I have recently had a rough patch, its been raining and or cloudy and dismall for over a month now. I gotta tell you the humidity and the rain is making my life miserable.
Unfortunately there is no controlling the weather, finally I got so tired of being housebound by the weather I have just had to get out, I have a raincoat with a hood, and off I went. It has been so long since I have walked other small walks or housework. I have had to build up how far I can walk over a period of time. I am on public transportation, the neartest Metro bus stop is about
maybe a little more than 1/4 mile from where I live. I can now walk to it, get on a bus, and go see my other daughter or my best friend.
In doing this I have really gotten better on a mental level, when you get out into the world, many times I see people who are so much worse off than I am. This makes me grateful and aware of how bad things could be.
Also, as my kids will tell you, I talk, and I mean I talk, I will start up a converation with anyone unlucky enough to sit next to me on the bus or train. I dont even care if they dont speak english, smiling and nodding is all the encouragement I need.
So yes, I believe a positive mind gives positive vibes to the body. I will stay home today, tomorrow is payday, so I am out of here to spend some money, this to gives me great pleasure.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson
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Date Joined Jan 2011
Total Posts : 374
Posted 9/27/2011 10:19 AM (GMT -7)
I have severe depression & anxiety that I have been treated for way before I had my back pain, but even when I didn't have this chronic pain the depression would often leave me feeling tired and achy--sort of an all over pain. Now that I have the chronic back pain and still have the depression, I can definitely tell that the two play into each other. The depression and anxiety increase my pain level and can make me feel exhausted. In turn, the pain and make me depressed or anxious! It's a lovely cycle. :P
Obviously, just having a positive outlook isn't going to get rid of all our pain, but I think it does really help. When I get in a funk and severely depressed or angry, I tend to feel really awful pain-wise for several days.
I'm having a mixed day today. I have been having really bad sleep interruptions due to pain, and that leaves me feeling tired and depressed--which means my pain is even worse. lol! So hopefully we can get some improvement if we have a good outlook.
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Date Joined Aug 2006
Total Posts : 7255
Posted 9/28/2011 8:43 AM (GMT -7)
I'm so happy for you and will hope it's a very special day for you.
Seems like you got most of the things under control and that's about
you can do. Make sure to try to get some rest breaks in, or schedule them
in. Many many well wishes for a wonderful day will be thinking of you.
more well wishes...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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Date Joined Aug 2008
Total Posts : 3055
Posted 9/29/2011 1:45 AM (GMT -7)
Just a quick note to let you know that I think about
you.... and I hope your wedding goes absolutely beautifully. Remember to cherish each moment because the time will fly by (so take lots of videos and pictures). I'm so happy for you, because I know you've waited a long time for this. I hope the day is as stress-free and as pain-free as possible.
This just made me realize my Anniversary is in a week, lol.....
Many hugs, my friend. --Tina
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