neurostimulator review for CRPS

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ldriccia
New Member


Date Joined Oct 2011
Total Posts : 1
   Posted 10/2/2011 7:14 PM (GMT -6)   
I am having the Medtronics neurostimulator taken out this Wed.  It was implanted in May for CRPS in the left foot.  Met with technicians 5 times who only advised me to "play with the settings," but I never got effective relief to comfortably walk without pain since day one.  Additional back pain, chest jolts, controller discomfort, stimulation in too many areas, have convinced me that mine was a failed procedure.  Doc wants to revise the fallen lead and reposition the 2 and add one more, stitch style again, but I would rather deal with the foot pain than have the pain that has resulted from this surgery.  It hurts to even recharge the battery and I cannot wear pants comfortably.  I believe any further work done near my spine will not result in good spine health and future treatment on my back.  Medtronics customer service said they do not recommend chiropractic treatment, severe twisting, or deep tissue massage for the back or hips.  I asked the tech rep, surgical doc, and my own PM doc to have their patients call me with their success stories having the neurostim, but no calls!  I don't think that was too much to ask, so I accept that this surgery did not work for me and I will have to work on dealing with the pain that lives in my brain. 
I also met another lady who had the neurostim implanted for her CRPS in her hand which has now traveled to her arm and shoulder.  She has had very negative results with the therapy and was told, as was I, to give it time.  I have had back pain since the surgery and still do 4+ months later.  I cannot wait to have it removed and can only hope there are no repercussions to my spine.
For those of you who look at Medtronics website and their inspiring success stories, note the disclaimer "individual results may vary."
I admire all you people who live with chronic pain...
****

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1136
   Posted 10/2/2011 10:58 PM (GMT -6)   
Hi ldriccia, and welcome to Healing Well. I'm sorry that you have need to be here, even more sorry that it is because of the beast that is CRPS. I've had it for 12 years now - started in my right knee with an injury and surgery when I was 14, and it's since spread everywhere. Parts of my story are on this message board, also here and here

Can I invite you, if you feel about to, to give us a bit of an introduction post? How long have you had CRPS? What other treatments have you tried?

I'm sorry you've had such a bad time with your stimulator. Did you have a successful trial before your permanent implant? Were you getting any of those problems of undesirable stimulation during your trial. I have had a lot of problems with my SCS (mine is ANS, not Medtronic). I've had three revision surgeries, I have nerve root damage from my last op (wasn't my doctor who did the surgery...), I have mild CRPS in my back and scarring and discomfort everywhere, but I wouldn't be without it for the world as it's the only thing to give me relief from the allodynia.

All the best with your surgery

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 4974
   Posted 10/3/2011 7:36 AM (GMT -6)   

 

           Good morning Idriccia!

                Welcome to the CP forum!

       Were sorry you are having troubles with the SCS unit. Many of our members have had trouble with them, but there are a few success stories with them. Are you taking any pain meds? Laura, had quite a few questions for you as well. Hopefully you can give us some more insight about your history, and maybe where the Dr's plan on going from here with your treatment.

      We wish you the best with your surgery this Wed, and please do report back and let us support you.

     Take care,

      SE wink


Moderator Chronic Pain Forum

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