Hi ldriccia, and welcome to Healing Well. I'm sorry that you have need to be here, even more sorry that it is because of the beast that is CRPS. I've had it for 12 years now - started in my right knee with an injury and surgery when I was 14, and it's since spread everywhere. Parts of my story are on this message board, also here
Can I invite you, if you feel about
to, to give us a bit of an introduction post? How long have you had CRPS? What other treatments have you tried?
I'm sorry you've had such a bad time with your stimulator. Did you have a successful trial before your permanent implant? Were you getting any of those problems of undesirable stimulation during your trial. I have had a lot of problems with my SCS (mine is ANS, not Medtronic). I've had three revision surgeries, I have nerve root damage from my last op (wasn't my doctor who did the surgery...), I have mild CRPS in my back and scarring and discomfort everywhere, but I wouldn't be without it for the world as it's the only thing to give me relief from the allodynia.
All the best with your surgery
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, oste
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio