severe back pain after epidural

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jessiebain
New Member


Date Joined Oct 2011
Total Posts : 4
   Posted 10/6/2011 6:38 AM (GMT -7)   
20 years ago I gave birth to a beautiful baby girl. I was only 19 years old and the Epidural was a "no brainer". Ever since that day I have had back pain in epic form!! No insurance and no Dr. can seem to find a problem! I have since had another child and have a very busy life with no time for pain. This is not in my head but Dr's. try to make me feel this way. Am I the only one? If not, please share your comments and let me know what I can say to a Dr. that doesn't make me feel like a "pill popper"!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 4996
   Posted 10/6/2011 8:13 AM (GMT -7)   

 

         Good morning jessiebain!

               Welcome to the Chronic Pain forum! When I first read this post, I seemed to remember a discussion about a special problem that can arise from any type of injection, but especially with the "Epidurals"

      That condition is called "arachnoiditis" Has your Dr ever mentioned this possibility of this? If not you may want to do a little research on it, and I'm hoping that one of our members "mrsm123" will see this, and maybe comment on it, since I believe it was her that knew quite a bit about it. Also, you may want to look up "Epidural Fibrosis" as it is mentioned in the link I provided below.

     The best thing to tell your Dr and or PM, is that your in pain, and ask them what they suggest for relief. Never suggest a certian med to them, unless you have that type of relationship with them, and that takes years of trust that you have to build up with them. You may ask if they have a non-narcotic med, or if they are willing to try a depression med that is used for nerve type damage. "Cymbalta"

      We are not Dr's here, so we cannot really give you a diagnoses, but what we can do is share our own personal experiences and support you. Feel free to visit us often as you want!

       I do have a question for you...what is your pain on a scale of 1-10?...and have you ever been refered to a PM (Pain Management Dr)?

     I will go back and do a search and look for the link on the arachnoiditis, and post it here for you, if I can find it.

        Please feel free to take a peek at the "Chronic Pain 101" listed at the top of our home page. It has some excellant articles, and I'm sure you will enjoy them.

       Good luck, in your search and again, "Welcome"!!! wink  

       SE wink       

 

             I did find this link, where mrsm123 talked about this special condition that can be caused from the "Epidurals"

            http://www.healingwell.com/community/default.aspx?m=1744188&f=16&p=1

       Also: Take a look at this website!http://www.arachnoiditis.info/content/the_adhesive_arachnoiditis_syndrome/the_adhesive_arachnoiditis_syndrome_12.html

 


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Post Edited (Screaming Eagle) : 10/6/2011 9:01:02 AM (GMT-6)


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1120
   Posted 10/6/2011 9:37 PM (GMT -7)   
Hi Jessie,
No, honest, you aren't crazy and you are not imagining things either. It is not common but injuries to the nerve roots, or the cord covering itself do happen with epidurals. The covering of the spinal cord, called the dura can continue to leak once the anesthetic canula is removed. The nerve roots can be injured because the anesthesiologist can accidently hit the root on the way to the canal itself.
What type of symptoms are you having? Aside from pain? What type of pain is it? Mechanical or nerve type of pain, with shooting pain, numbness, tingeling, loss of sensation or motor coordination?
A neurologist who specializes in spinal conditions may be who you need to see.......not a general neuro but a board certified spinal neurolosurgeon.
This doesn't mean you need surgery, but he is the best one to help you find out what is causing your ongoing pain.
Best of luck to you,
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

jessiebain
New Member


Date Joined Oct 2011
Total Posts : 4
   Posted 10/6/2011 10:21 PM (GMT -7)   
The pain is in the middle of my back. Like dead center. It's a pain that feels deep down in the spine! I can stretch, my husband has massaged it, nothing relieves the pain. It's dull and sharp at the same time. I can pop my back pretty much at will, but, that doesn't help either. I told a GP about it but he told me there was nothing that could hurt like that in the center of my back like that. I'm one of the unlucky who lives on my husbands SS check and cannot afford health insurance. So, really I'm just looking for someone that might have some ideas on how to just make it better when it flares, which is about once every couple of months. I stay down for about 3 or 4 days when it starts. Then, it dulls enough to make it through the rest of the time. Thank you very much for reading my post and ANYTHING you can tell me will be greatly appreciated!

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1120
   Posted 10/7/2011 12:47 AM (GMT -7)   
Hi Jessie,
Neuropathic pain ( pain caused by damage to the spinal cord or the nerves in the cord) in your case , usually responds really well to some of the old tricyclic antidepressants, Lyrica, Neurontin, and even Cymbalta are all really helpful in easing that type of pain. Ice and heat, massage may help to loosen tense muscles, and ease some of the pain too.
The other option that manages pain caused by damage to the nerves is is Methadone, which while it is a pain medication, it has something about the way it works in the brain that also works really well in easing neuropathic pain. And the best part, is that it is dirt cheap, because it has been around so long. In fact, it is probably the cheapest out of all of the various pain medications around today.
Opiates don't necessarily work well in managing the pain caused by damage to nerves. They do help some people, so I don't want to discourage you in trying to see if they might help but they aren't the most effective ways in that kind of pain.
Another option is a spinal cord stimulator, which in placed near the covering of the spinal cord above the area of damage, and it masks the pain by stimulating/tingling sensations.
Do you have a local hospital around you? If you do, they may have a sliding scale clinic on the premises, which is a good place to start looking for someone who can help find out what it is that is causing your pain, and then come up with a good plan to start treating it.
My email is attached to my posts, so if you would like, feel free to email me.
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 10/7/2011 2:06 AM (GMT -7)   
Mrsm has some good advice. There are anti depressants that can be used for nuero pain. There's also Lyrica, which does have some side effects but I've also read that it had some excellent results and its non narcotic. There's also TENs units that might give additional help There's 3 narcotics for nuero pain called Nucynta, Bustran, and Tramadol. Also you have 24 hour anti inflamatories like Mobic that produce less stomach issues and might work as an adjuvant in reducing some of the inflamation.

The thing is you have a lot of options open to you and your best apporach is to make a detailed list of what has worked, what hasn't worked and that you are open to whatever the doctor feels is the best approach for a dealing with this issue.

I guess what I'm trying to say is that when you goto the doctor, explain that you you need his direction because your own and other doctors direction hasn't provided the relief you need. That basically leaves full decision to the doctor and keeps you from coming across as someone that already has the answers, and in the process should minimize coming across as a "pill popper" as you called it.


OP, there is no shame what so ever in using pills to alliviate the pain. Its a hard reality to accept, and it takes a while (I struggle with it to this day, I cannot tell you how many times ive wanted to throw my meds off the balcony and say "its all in my head"). However pain is real and its effects on our physical and mental health can be damaging. Therefore we need to treat the pain in order to not only give comfort back to our lives, but also as a legitimate health concern in prolonging a happy, active, and healthy life ;)
MRI revealed disc bulge and test injections revealed RA. Radio Freq procedures helped for months, but pain is up and im having the procedure done again. Currently on 75 mgs of Nucynta (tapentadol - A MOR + NRI) 2 to 3 time per day and Soma 350 as needed.

jessiebain
New Member


Date Joined Oct 2011
Total Posts : 4
   Posted 10/7/2011 6:05 AM (GMT -7)   
I really appreciate the responses to my posts. At least now I don't feel like I'm crazy! I was just kinda nervous about going to a Dr. because I happen to live in an area where there is so much drug abuse I don't want anyone to think of me that way and when a Dr. tells me that there is nothing wrong once, then that ,in my case, was enough. I will,however, try again. Thanks again for the advice! I will let you know of my progress.
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