Living with MRSA

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bbyblueyedcargurl
New Member


Date Joined Jan 2012
Total Posts : 6
   Posted 1/4/2012 2:16 AM (GMT -7)   
Im 26 and living with mrsa. I've had mrsa since 2009. I get a break out every couple of months. I've done everything from bleaching towels, washing cloths in hot water, cleaning hands constantly. Staying away from hospitals. First break out was on my stomach and I thought it was just a in grown hair or a zit. But it kept getting harder, never came to a head, got really hot and got to the point where it hurt to move. I ended up in the ER because I let it go on for months. It was the worst break out I ever had. I've had more then 10 break outs since then. My doc is so use to me needing the antibotics now. I can now figure out when I'm getting once due to the syptoms I get. I ended up being allergic to the main antibotic Bactrim. I broke out in hives and ended up in the ER. I have no idea how I got this. Could be from a gym, tanning, hot tub, sharing a towel. My doctor and everybody else know very little about mrsa. I hate that its become so common for me that I hardly even think about it anymore. I just go to the doc as soon as I get an out break. I do stay away from people when I get this, keep it clean and covered. I also warn people that i do get it. I feel they have the right to know but i feel like they look at me like i have some horrible disease. My doc told me once u get mrsa, it never goes away. U have it for the rest of ur life. Does anybody else have to deal with mrsa often?

Keith Walker
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/4/2012 2:29 AM (GMT -7)   
Hi there.  I have had mrsa three times whilst being in hospital, however im not aware of any breakouts after my wounds cleared up. I must admit i had no idea that once you had it you have it for life.  I thought everyone has the bug within them?.
Its terrible what you have to go through.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 843
   Posted 1/4/2012 3:22 AM (GMT -7)   
Hi Bbyblueyedcargurl. I don't know much about MRSA, but I wanted to pop in to welcome you to the Chronic Pain forum. I wish I knew more about MRSA. It sounds painful though. I hope that you get the answers that you need.

Hugs,

Flower

bbyblueyedcargurl
New Member


Date Joined Jan 2012
Total Posts : 6
   Posted 1/4/2012 8:45 PM (GMT -7)   
Hello, My doc said mrsa lives on our skin, and once u get a break in the skin the mrsa may enter the wound. Once that happens u never get rid of the mrsa. Thats why docs want u to cover any break in ur skin with a band aid. So no infections affect it like mrsa. I'm not sure she knows much about it. I think mrsa is still a mystery to doctors. When I go to med checks or ERS in the past they act very quickly. There are also 2 types of mrsa, the kind u get in the hospital which is caused by surgery (which is more critical) and there is the kind where u get at gyms, tanning beds, sharing towels. U can get it from touch and from breathing it in.
Thank you flower :)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11656
   Posted 1/5/2012 6:27 PM (GMT -7)   
Hi bbyblue and welcome to Healing Well's chronic pain forum. I have not heard of anyone getting the community-associated MRSA repeatedly either, wow. What kind of symptoms do you have which each outbreak? MRSA is actually carried in our noses not on the skin, around 25% to 30% people are carriers. We also carry staph under our fingernails from what I had read about it. Does your dr do a wound culture on each outbreak, I sure hope so to insure which strain of staph you have. Staph infections are very difficult to kill the bug out and resistent to most antibiotics. I am surprised that Bactrim is being used and perhaps this is why the bug keeps re-appearing as it is not strong enough to kill it. Another thought is have you ever consulted with an infectious disease dr while having an outbreak? If not this may be something you may want to consider.

If I were you I sure would not be using a public tanning bed thats a perfect place to pick it. Talk about a breeding place for it. I have gone to tanning salons and watched how those beds are not cleaned as they should be because the owner does not want to spend much money on cleaning solutions. You seem to know the tricks on what to do and not to do. Actually there is a lot of info on the web about MRSA if you do a google search.

I sure hope the new year brings you few outbreaks. Take care and keep us posted on how you are doing.
Moderator Chronic Pain Forum

Ssinss
Regular Member


Date Joined Jan 2012
Total Posts : 66
   Posted 1/6/2012 2:22 PM (GMT -7)   
I have mrsa to, you never know when something is going to happen. You might think you have a spider bite and the next thing you know you have a hole in your leg. I have had to watch my body, I often shower with antibacterial soaps, harder on the skin but I prefer lotion over antibiotics, pain and creams. Recently I was amazed to find out that I know more about mrsa than my local health department and ER. Our home town ER is fairly useless unless you need something stitched or a transfer to somewhere that does know what they are doing :) There is a theory out there, that for some people it actually colonizes and sits around waiting for a chance to attack. Some people are lucky to have been cured with their antibiotic others wont.
I had IV therapy at home with a pic line, but still have outbreaks.
http://www.cdc.gov/mrsa/definition/index.html
It is always changing as they learn more about it. One common suggestion is to up your zinc intake? It can't hurt, it is cold season.
I do sympathize and hope you can keep the outbreaks at bay! I try to keep up with what the CDC says.
The best of luck. Do you have many polka dots as well? smilewinkgrin
Have you tried the cream *runs to the bathroom to check the name* Mupirocin. Totally topical, makes me sneeze a little in the nose.

bbyblueyedcargurl
New Member


Date Joined Jan 2012
Total Posts : 6
   Posted 1/7/2012 8:30 PM (GMT -7)   
hello, I also use antibacterial soap but I still continue to get mrsa so I dont think thats helping much. I'm pretty good at catching the sores pretty quickly. It is amazing how much more we know then the doctors do. Just goes to show we cant always rely on them for everything. I heard about the colonizing thing. They say it colonizes in ur nose. I will check out the zinc thing, im bad about taking vitamins. I know mrsa also likes to attack u where ur immune system is down so I try to stay healthy :) but sometimes that doesnt even do any good. I'm not sure what the polka dots are?
Is the cream Mupirocin the one u rub in ur nostrils? im at work so not sure on the name but that sounds like it. The first time i got mrsa i was prescibed it but my doc no longer prescribes it. My doc trys to keep me out of the docs office as much as possible. Like I said I feel like i'm treated like i have a horrible disease. I think shes worried about me making others sick. ugh :( Good luck and thank u for the tip :)

Ssinss
Regular Member


Date Joined Jan 2012
Total Posts : 66
   Posted 1/7/2012 9:54 PM (GMT -7)   
Polka dots, many little spots of MRSA related infections, I have them here and there. I know what you mean about the Dr's office, sometimes if I go to the ER I get a pretty bracelet with MRSA in big black marker letters. WOOO (sarcasm) The nose is the worst, because its a humid place, I have had some luck with benedryl or pseudophed to keep it a little dryer in there. A--Choooo. Eyes water with a qtip full of cream, much sneezing, makes me wonder how much of the antibiotic cream stays. Do not take any tiny pimple for granted, wash hands, antibacterial, we are our best defense. I really found that with this just awful tasting zinc and vitamin C chews from Walmart, they are probably all over, that it helped current outbreaks very much. Try and keep your stress down, for some reason that seems to make mine pop out more. I should be getting some in 1... 2....3.... :-) Muprocin can be put anywhere your having active sores and is far better than over the counters which for chronic MRSA just do not seem to work.
Keep in touch and best of luck.

thatguy3
New Member


Date Joined Feb 2013
Total Posts : 1
   Posted 2/8/2013 12:39 AM (GMT -7)   
i suspected that i have had mrsa for a few years now, and every few months its a pain in the ass. although have not had it tested, i am almost certain because my brother had gotten it while on an extensive hike (of all places!.. he may have gotten it from another hiker), and passed it to me. its kind of a scary thing, but if this is the new staph, wont most of the population eventually get it anyways? i know this post is kind of old but i want to share my temporary cure i found, to help other people find relief in their lives.. here is what works for me

USE WITCH HAZEL as soon as you suspect it may be more than just a pimple. it is an over the counter product, a natural smokey smelling liquid. apply a few times a day. witchhazel is an "astringent" , which basically tightens the skin, and seems to dry up/squeeze out the bacteria. within a couple days you should notice it subsiding, but it still seems to take a week to completely heal. i know it sucks, good luck

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 5120
   Posted 2/8/2013 12:53 AM (GMT -7)   
Welcome thatguy .We would love for you to post a new thread of introduction so we can all welcome you to the forum.

Posts on older threads get lost and everyone may not see you.

Vickie
" The best thing to hold onto in life is
each other"

Disabled since 1998 on SSD
DX: lft knee TKR. 6 rt knee surgeries for meniscus repair. Pars defect L-5 ,ddd at L3-4 S1. disc collapse at L-3 with nerve impingement. legally deaf,rt shoulder repair 06. post encephalitis/migraines
MEDS: methadone,xanax,lyrica,zantac,maxide,K+,lasix,prempro,flexeril,indocin

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3344
   Posted 2/8/2013 1:02 AM (GMT -7)   
MRSA has been around for quite along time, it is like allot of bacterial infections, it has become immune to most antibiotics and thus very very hard to treat.  Back in the mid ninties Vancomycin was the antibiotic of choice to treat it, and at that time it was strictly IV. But now there are strains that are also resistent to that!  Allot of times they will or used  to swap the nasal cavities for people that were MRSA to see if they carried it in there nasal and sinus cavities. Staph is a pretty common bug, and most people will have it at some time in their life, it is just when you get the antibiotic resistent strain that it really becomes a problem, and more and more bugs are becoming that way. Now days when people that get infections they really need to get it checked out, because if it is antibiotic resistent,  it can sometime become a life or death ordeal, because it is so difficult to treat!
 
White Beard.
Moderator Chronic Pain
I retired from the USAF, in Sept, 1991. I went back to school and became a licensed RN in 1994, I worked on Oncology and Med Surg , I became disabled in late 1999 and was approved SSD in early 2002! Diagnosed with: DDD, herniated Disk at T12, L3/4; C3/4 Posterior Articular Joint fusion Nov 2010; C5/6 ACDF Sep 2009; C6/7 ACDF Mar 1985; Ulcerative colitis; Chronic Pain; Complex Sleep Apnea; and host of other things! I am White Beard with a White Beard!

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 2/8/2013 2:15 AM (GMT -7)   
I am a MRSA carrier.  I've tested positive the last few times I've been admitted in the hospital.  The hospital I go to tests EVERYONE who is admitted so they can try to not pass it on to another person whose immune system is lowered by meds or illness.
 
The last time I was in the hospital, they gave me IV antibiotics, then when I went home I had to continue antibiotics, shower with hibiclens, and use antibiotic gel in my nostrils.  The doctor said hopefully when I'm tested again it's gone.
 
I've never actually had an outbreak, but I let nurses know just so they make sure to wear gloves and wash their hands before they leave my room.  If they look at me funny or treat me different because of it, I don't care, or haven't noticed.
Becky (aka Monkiray77)

Crohn's, Anxiety & Depression, Migraines, Chronic Lower Back and Right Leg Pain , Pulmonary Emboli (twice) & Pneumonia

Surgeries: 2 Bowel resections, appendix & gallbladder removed, July '11 Adhesions removed to prevent more obstructions

Meds: Humira, Warfarin, Prevacid, Prozac, Verapimil, Pravastatin, Calcium, Vit D3, Vit B12, Lortab, Zanaflex, Clonazepam

texasgal
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/22/2013 5:25 AM (GMT -7)   
i'm very concerned about mrsa right now. i've had it twice and required months of iv antibiotic therapy. i'm awaiting blood and wound cultures right now and i'm afraid i've got it agian! i don't know if my body will tolerate the therapy again because i'm in such a weakened state from illness and surgury. both previous times i've had it have required hospital stays and central line placement, home health care and a lot of stress for my family. i've been told that once you have mrsa you have it for life. does anyone know if this is true or if there is a treatment that can cure this infection? i am so anxious as i wait for lab results....i don't want to go through this again....i'm afraid i won't last through the treatments. all advice is appreciated.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11656
   Posted 8/22/2013 8:21 AM (GMT -7)   
Hello Texasgal and welcome to the forum. We ask all new members to make their own intro post post so that all of our members will see it and be able to give you a proper hello & welcome aboard. Posting as you did I am afraid not many people will see your post.

So sorry to read that you have been so ill.Hopefully when you get the results back from the dr it will be something else. Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15613
   Posted 8/22/2013 8:48 AM (GMT -7)   
Well, this is going to sound weird. My dog developed an infection after being cut while being groomed and was put on antibiotics. They didn't work so other antibiotics were tried. She has staph, strep, pseudomonas, MRSA, and another infection going on and they all built up a resistance to all the antibiotics available. The vet did everything he could and said he hoped she didn't get worse.

I started scouring the Internet and saw a study in the Netherlands, I think, that showed that probiotics could clear up MRSA and other infections. It made sense since antibiotics kill all bacteria...even the good bacteria we need. I started giving her probiotics made for dogs and it cleared her up! I couldn't believe it and I had spent over $4,000 at the vet.

So, probiotics won't hurt you and they very well could help you...a lot! My dog suffered for several years and I cleared her up in a month or two. I did keep her on probiotics after it cleared up and she never had another problem with I factions.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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