chronic pain-right labia

New Topic Post Reply Printable Version
43 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/18/2012 1:22 PM (GMT -6)   
i've had chronic pain many yuears right labia-they did ultrasound right over it and said there was vericose veins-did sclerotherapy there but didn't relieve pain-had hysterectomy to help but still in pain.bladder sling to stop incontinece but pain never left-can't sit-had to go on diability.I started having pain after tear stitched up after birth of 3rd child and got worse over the years causing me to limp-pain shoots down leg at times.My back tested fine.Mri showed some vascular prob;esms inpelvis so i had hysterectomy but pain bad still.They now said may be nerve damage from injections and go to pain clinic but have to wait-there is a 2 year waiting period for health insurance after you go on disability.I just want the pain to go away.I have to put kleenex between my labia or muscle rub to sit through church on a donut.can't go far in car-a couple blocks at most and pain gets excruciating.tried neurontin but can't function even on low dose.Please help if you can-I am desperate for pain relief.

di43
Regular Member


Date Joined Jan 2012
Total Posts : 90
   Posted 2/19/2012 1:29 PM (GMT -6)   
Hi October3

I`m so sorry about what you are going through.

I don`t know how much help I can be but wanted to tell you my story. I have very bad pain around the vulva/vagina areas. With me I haven`t found anything wrong, I have been diagnosed with vulvadynia. I have tried most anti-depressants, nerve medications and muscle relaxants. I have had no help from anti-depressants or nerve medications, valium helped for a month or two. It took me four years to find anything that would touch the pain, I had to go to a pain specialist and he was the only person who would put me on opiates. After that my quality of life has improved a lot. I can now go to work and function without just thinking about how much pain I`m in, I have days now where the pain is minimal. Having said that, I still have days where the pain is unbearable and the medication does little or nothing to help, but most days things are a lot more manageable. I don`t know what sort of medications would work for you as everyone is different, but please don`t give up on finding something that will help. During the four years I didn`t think I would make it through but finally I found someone who could help. It`s a very good thing you`re going to see a pain specialist. I`m sorry it`s such a long wait. In the meantime I would suggest you keep going back to your GP and insisting that you are in unbearable pain and can`t go on. I also found a GP who was very sympathetic one day between visits to the pain specialist when I had a severe attack of pain and he gave me medication without hesitating, it is rare but not impossible.

Let us know how you get on. Hang in there.
Love Di xx

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 2:03 PM (GMT -6)   
Thank you.I really appreciate that.It gives me hope.Some days I just want to give up.

di43
Regular Member


Date Joined Jan 2012
Total Posts : 90
   Posted 2/19/2012 3:24 PM (GMT -6)   
I know that feeling and still have it even though things have got better. When the pain is bad I just want to curl up and sleep. I was at my wit`s end looking for treatments that would work and sick of having to go back to the doctor twice a week just to be told the same thing every week, they don`t know why I have pain like that, they`ll do more tests and try another medication. I pleaded with them to give me something else once I`d tried all the other alternatives and they just said they didn`t want to because I was young and they didn`t want to give me narcotics if they could find another solution to prevent that, even though I said straight out to them I`m in so much agony at the moment and it`s been going on for so long that I don`t think it could be cured and I honestly didn`t care if I got an addiction because it couldn`t be worse than the pain. Now I know that I should have mentioned `dependency`as there is little evidence of people having addictions to pain meds if taken as directed. But when I saw the pain specialist he was so sympathetic and he said that he didn`t want to make what I was going through sound trivial but he said pain medications are like shoes, there are many models and if one doesn`t fit you try another one until one does work, and he said we will find something that works, that gave me hope. Then after I saw him I`ve been lucky to have found a few other doctors who genuinely care. They are out there but hard to find! I know how hard it is to fight for yourself when you feel like this.

One thing that might help a little is xylocaine if it`s an outside area hurting, it`s an aneasthetic gel, it`s with prescription in the US, but I don`t see why a doctor would not give you that if you asked to try it. I had some success with it, it completely numbed the area but after awhile it only worked for about half and hour and wore off and did nothing the second application. Have you tried muscle relaxers like diazepam or xanax? I`m guessing the doctors would be more likely to give you them and they may give you some relief. Can you see a gynaecologist in the meantime?

Keep posting. You are in the right place for support here especially when you can`t cope. Love Di xx

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 3:31 PM (GMT -6)   
Thank you.Is xylocaine the same as lidocaine ointment? I will ask for that.Liodcaine worls somewhat at times-it's 45 a small tube.I will ask for the muscle relaxers when I go in 2 months.I will try anything since the pain won't let me sit down.Thanks for the help,I greatly appreciate it.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11420
   Posted 2/19/2012 3:41 PM (GMT -6)   
Hi October and welcome to the chronic pain forum. I am sorry that you have to be here but very glad that you found. Everyone here suffers with pain of some kind and understand what it is like living with chronic pain, we all speak the same language about pain.

I cannot imagine what your kind of pain is like. I am assuming you do not live in the US since you said there is a 2 year wait to see a dr. Is it that way on all specialists? What are you suppose to do for care and treatment during the long wait? My heart goes out to you over such circumstances.

I just wanted to pop on and tell you hello and welcome aboard. I do hope you can get some kind of relief real soon. Take care...Susie
Moderator-Chronic Pain Forum

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 3:45 PM (GMT -6)   
Glad you are doing better,That gives me hope.Lortab worked for me once and cymbalta but can't cymbalta till nsurance kicks in.Doctors are getting crazy about narcotics-they all tell me to go to pain clinic whixh wants 300 dollars up front cash! So I have to wait.But thanks fro ansering me like that. I would have necver guessed after having kids wouldn't be able to sit down.You wouldn't believe how many doctors don't know what to do and asct like nobody else has this problem.Thanks again.

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 3:48 PM (GMT -6)   
i'm in us and when they put you on disability there is a 2 year wait to get health insurance such as medicare.I don't know why so I can't get to doctor unless i pay cash or Marry Donald Trump and that idea won't work.

di43
Regular Member


Date Joined Jan 2012
Total Posts : 90
   Posted 2/19/2012 3:48 PM (GMT -6)   
Yes it looks like xylocaine is the same as lidocaine, but I`m not sure. You can get a 5% version which was more effective than the 2% for me. Oh you poor thing, that`s awful. I have problems sitting too but I can sit, it just gets bad if I sit for hours at a time. I`ll be thinking of you. Take care xxx

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 3:49 PM (GMT -6)   
Thank you for your help.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11420
   Posted 2/19/2012 3:57 PM (GMT -6)   
October, I have never heard of the type of problem you are having either. I just cannot imagine what you go through. You must be on SSD and yes, it takes 18 months before Medicare kicks in, I am on SSD too. You know some drs will give a cash paying patient a discount since they do not have insurance, I am not sure what your dr does for his/her patients.

Pain mgt drs are expensive especially when they want to run tests or do procedures on us. It gripes me at what some of these drs charge for an office call only.Can you qualify for Medicaid until Medicare kicks in? You may want to check on that, just a thought....Susie
Moderator-Chronic Pain Forum

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 4:10 PM (GMT -6)   
thanks straydog.Doctors do charge a lot-some 150. My husband took a big pay decrease with the bad economy and makes low pay now but he makes just enough to disqualify us for medicaid.He is right on the edge of the cut off. Thanks fpr the help,I'm writing it all down ona list here.I am desperate for relief-I can't even sit through church and i'm in my 40's.I'v had this severe now for 2 years,had to leave my good job that I loved.Thanks again to all of you here.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11420
   Posted 2/19/2012 4:19 PM (GMT -6)   
October, if you are not getting any kind of help getting your scripts at a lower price then, please look in CP101, there several places to contact that offer assistance to people on limited incomes, no insurance and that sort of thing. A lot of the drug companies offer assistance too, so check on this it may save you some money...Susie
Moderator-Chronic Pain Forum

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 4:21 PM (GMT -6)   
thanks also to d43-i just put the last of the licoanie on-they want 45 dollars a tube and my husband is broke now.I can't put my legs together and i wake up at night in pain.writing down all your help,ty.

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 4:24 PM (GMT -6)   
cp 101,ty straydog,will look into that soon.

di43
Regular Member


Date Joined Jan 2012
Total Posts : 90
   Posted 2/19/2012 6:07 PM (GMT -6)   
I also wake up in the night sometimes in agony and sometimes can`t move, it takes me about half an hour to get up and I have had times when it`s taken 2 hours to get up, so I can sympathise. 45 dollars a tube, that`s outrageous! I wonder if they make another brand that is cheaper. I`m not in the US so I don`t know how it works there but it sounds like it`s very hard with the insurance and expensive medications. Also it sounds like it is harder to be a pain patient in the US, I think there are more rules about pain pills from what I`ve read on this site. Though in other countries there is stil the stigma of being a pain patient and doctors are very scared of pain pills.

Another thing that helped me for a little while was valerian, you can buy it at health stores, I got it in a tea form and it worked a bit like a muscle relaxant, it was also good for sleep. You can get it in tablets too. I find heat helps a lot so hot water bottles and baths are very comforting. If heat helps could you get a heat patch to help you sit through church?

Take care, Di xxx

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/19/2012 7:09 PM (GMT -6)   
Thanks I'm going to try that tea. And heat patch idea is wonderful.Never thought of that.When it gets real bad Iput icy hot on down there for church.That gets dangerous.I take a lot of hot baths too.Thanks agin.

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 447
   Posted 2/19/2012 11:46 PM (GMT -6)   
October3,

Hello, and its nice 2 meet U, welcome :) I can empathize with U & pain in that region. I had an Hysterectomy & Bladder Lift (w/sling)2004. Then in 2009 my colon tore thru my vaginal wall & then the colon + bladder fell out of my vagina. This was severely painful. So I then had 2 have a complete reconstruction. Putting in more sling 2 not only lift my bladder but 2 also lift my intestines.

I have given birth too 7-kids, & sadly enough the destruction & damage from so many pregnancies & vaginal births. Pleez don't get me wrong, my kids & grandkids are my life.

I have unbearable pain (with my bladder, urethra, urination, intercourse still from all this...I have been diagnosed with Pelvic Trauma & Dysfunction.

For the past 6-months I have been doing Biofeedback weekly, in which, this has NOT helped me in anyway. I couldn't function @ all if it wasn't for my Doctor prescribing a compound that is made into pain-relief suppositories for inside the vagina.

I'm sorry if I wrote too much... Perhaps U can find the same pain relief. Good Luck & keep coming back to the healingwell site.

Serenity

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1173
   Posted 2/20/2012 12:18 AM (GMT -6)   
Hi October. I can't imagine the pain you are experiencing, but I just wanted to welcome you here to the HW forums.

*gentle hugs*

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/20/2012 4:36 AM (GMT -6)   
Serenity,can you please tell me what those suppositories are called so I can ask the dr for them when i go.I have a bulge too-I sometimes wonder if it's my colon but they say they don't know on the right labia area-did your colon bulge out your labia area?

di43
Regular Member


Date Joined Jan 2012
Total Posts : 90
   Posted 2/20/2012 2:20 PM (GMT -6)   
Hi October

Also another tea that helped me was Raspberry Leaf Tea, it was a bit harder to find, though it`s stocked in health stores. It tastes a bit funny, like pepper, but if it helps you`ll start associating the taste with comfort like I did! The only thing bad was I had to drink a lot of it to get the effects, but still when it finally helped a bit it was relief, it was one of the only things that made it possible for me to work for awhile and sit at a desk all day. You can get it in a leaf form and tea bag form and the leaf form is better as you can make it as strong as you like. It has qualities for helping period pain and with birth contractions (if I remember the second correctly) so probably worth a try.

Just wondering what you meant by icy heat and it being dangerous? I`m not one to judge, I have scars from overusing my hot water bottle for pain relief, but just curious! I`m also interested in that suppository, I never knew such a thing existed.

I don`t know much at all about the US system but if you`ve had to give up work doesn`t that show your doctor that you`re not coping because of the pain? And if he can`t give you anything shouldn`t he be able to find you another pain clinic with a lower waiting list (unless they`re all like that). I apologise if I`ve just repeated something already covered because I don`t understand the system. Also if tramadol helped I wonder if your doctor would either put you on a higher dose of it or try buprenorphine or suboxone, an opiate which doctors seem to `prefer`as it apparently has less abuse potential. But given the situation in the US doctors could also be scared or not allowed to prescribe this too, but just a thought. Though be careful about how you go about asking for it as you don`t want to mention specific drugs. I did have some luck with this drug at first.

Well take care xx Di

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/20/2012 2:50 PM (GMT -6)   
Hi Di,I discovered the muscle rub icy hot by accident.Someone mentioned to me that she had terrible nerve pain in her hands and when it got real bad she applied muscle rub on it so one night out of desperation I applied it to my right labis.After the intial burning wore off it actually helped.But I have to be careful not to get it into my vaginal area or I'm on fire! I use it sparingly when i have to sit for awhile like at church,otherwise I wouldn't be able to go at all. Tramodil didn't work for me at all,lortab did but doctors here are paranoid from the drug addicts so they tell everyone to go to pain clinic and they are costly-have to wait till April.It's amazing to me so many women like me have these problems yet not enough is being done and I am so glad I found you here because I can't talk to others about it since it's embarrassing.And doctors act like nobody else has these problems yet many do.I will try that raspberry tea too-I'm writing it all down.I'm desperate for relief.I hope I can help you too when i get to dr in april i will tell you when something works so you can try it too.Ty from OCTOBER3.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3307
   Posted 2/20/2012 3:12 PM (GMT -6)   
I know this is primarily a thread concerning the problems of a woman, but with that said has anyone tried googling numbing or desensitizing creams or ointments. There are allot available that are non prescription, and are allot cheaper than those mentioned at prescription prices. One of many that is listed is called derma-plant and is nonprescription numbing cream, there are many that are available and most if not all are benzocaine or lidocaine based.

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/20/2012 3:30 PM (GMT -6)   
Thanks white beard.I'm gonna go call my pharmacy-wal-mart and see if they have that derma plant ointment.I hope so,ty from october3.

october3
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 2/20/2012 3:44 PM (GMT -6)   
yes white beard,wal-mart has it and it's cheap-tired of trying to come up with 45 for lidocaine ointmnt that i ran out of.Thanks again-will go get that derma plant ointment soon.
New Topic Post Reply Printable Version
43 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, October 26, 2014 4:25 AM (GMT -6)
There are a total of 2,251,530 posts in 250,457 threads.
View Active Threads


Who's Online
This forum has 157592 registered members. Please welcome our newest member, hurtinghanna.
232 Guest(s), 8 Registered Member(s) are currently online.  Details
hypoHashimoto, hairy debbie, TeacherAxel, Daxter, 2frogs, emmajdunn, paulroy, hurtinghanna


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer