Update & Nucynta?

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fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/6/2012 10:33 AM (GMT -7)   
Happy Friday everyone! Saw my PM this morning and MRI showed I still have a bulging disc and my arthritis has spread and is now from L3-S1. He told me to stop the Percocet since it's not helping and prescribed my Nucynta 75mg three times a day, but I cannot find this medication anywhere. All pharmacies have told me it's on back order...just lovely! I guess I will have to continue the Percocet until someone gets the Nucynta in.

He told me to continue taking the Baclofen 10mg 4 times a day and also prescribed me Arthrotec.

I'm also to have bilateral epidurals done on April 19th.

I hope everyone is as pain free today as possible- I know I am in extreme pain, especially now from driving from pharmacy to pharmacy.

*hugs* to everyone! Sorry I've not really been on here lately, been dealing with a TON of things.
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/7/2012 5:25 PM (GMT -7)   
:( No one has replied to me.
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 4/7/2012 6:35 PM (GMT -7)   
Your not the first person I have heard of saying they had problems getting Nucynta right now. I did a Google search and could not come up with anything so I can't begin to tell you what the problem is or when it might be remedied.

As far as replies go please keep in mind that this is a holiday (Easter) weekend. Things tend to slow up a bit on weekends anyway here and when it is a major holiday it can get real slow.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 4/7/2012 6:36 PM (GMT -7)   
Sorry....weekends....especially a holiday weekend like this being both Easter and Passover....can be a busy time for everyone..So it's nothing personal Fireflyhillary...

Yea, there are a few medicines like Opana and Nucynta and some others that have been on back order and harder to find.

Have you tried Walmart, Sams Club, Target and BJs? If you use the Pharmacy at a big box store like Sams where I go, you do NOT have to be a club member to use the Pharmacy.

But sometimes the larger stores have a better supply for medication...

Did you call the Dr. to let them know that you can't find it anywhere? I would make sure you do this so he knows you are still taking the Percocet and in case you run out quicker than usual because of this..

Hopefully you can get this sorted out quickly..

Many people have had great success with Nucynta....I usually never pay much attention to how medicines have affected others as we are all unique and what works or doesn't for me, will be completely different for you or others.

So....hopefully the epidurals will provide some relief for you. Unfortunately arthritis is one of those things that doesn't get much better once diagnosed. Many of us with spine issues have this which is a bummer...

Hope you are able to enjoy some of the holiday weekend!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 4/7/2012 8:58 PM (GMT -7)   
Hillary

I have been reading your posts....so sorry about your lack of medication issue. It is so frustrating!!!

Call your doctor on monday and see if they are open, and tell them that the medication you want me on is on back order. Now what?

Please keep us updated.

Happy Easter
Betsey
Age to a woman is like krypronite to Superman.

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/7/2012 9:31 PM (GMT -7)   
Thanks everyone for the replies! I called my Dr's office two times on Friday after my appointment to tell them that the medication is on back order and no one has it & they said "No one else has complained about it & we write prescriptions for it all day." How in the world can I be the only one having problems getting it?!? I've gone to CVS, Rite Aid, Walgreens, Walmart, Target, Kroger, and called several others. One place told me they are expecting a shipment in on Monday and to call back them, so I am praying this place will have it. I'm calling them the minute they open.

I tend to forget that weekends can be slow here and didn't even put two and two together that it's also Easter weekend, so sorry if it seemed like I was complaining, just really need the support right now.

I'm having a really hard time with my husband right now, and April 29th will be our 1st year anniversary and I could care less. He has been so mean to be and treats me like I am his child. We split nothing, I have to buy my own groceries, gas, pay co-pays for Dr's and prescriptions, etc. We don't even share toilet paper! I am unemployed and collecting unemployment, but that runs out at the end of this month, so he will have to give me money to live and I am dreading that so much. I feel like I am married to a ****. This has been making me SO depressed and I know it's why my pain levels have been super high. He stresses me out night and day and is constantly putting me down. I am a good person and do not deserve this treatment, but I am unfortunately stuck with him right now.

OK, sorry to go off on something completely different. I appreciate everyone here so much. I hope everyone is having a good Easter weekend!
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/10/2012 9:00 PM (GMT -7)   
Quick update: Told to stop the Arthrotec as it was giving me really bad side effects and I've been in bed sick from it since starting it on Saturday.
The one pharmacy that said they have Nucynta did have it today and I started it tonight. It seemed to help, but doesn't last all that long, which I hear is a common complaint. I'm hoping to get good results with this medication and hope that I will feel better from it tomorrow after taking it again.
Hope everyone had a good weekend!
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/10/2012 10:50 PM (GMT -7)   
Hillary....

I'm so sorry to hear of your issues with your husband.... I can't type as much as I would like to, because this iPad kills my hands... but no one deserves to be treated so terribly. Have you guys tried counseling? Does he know how much you hurt over the things he does?

It's so hard to have medical issues...and then have Personal issues on top of that. :(

You ARE a good person and deserve better treatment.... A marriage should be a partnership with each person treating the other with respect...

Hang in there, hon. --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/11/2012 1:56 PM (GMT -7)   
Thanks Tina! Things have actually gotten better since I posted about my husband. We had two long talks and things have improved and he is treating me much better and being really nice to me. I think things had just bottled up in us both and we never really expressed it until then. He knows that counseling will be in order if things get bad again.
*hugs*
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 4996
   Posted 4/12/2012 1:26 AM (GMT -7)   
Hello Hillary!

Hey!…I'm so sorry I missed this post and did not get a chance to support you. shakehead You are so Bubbly and Happy most of the time, and I had no idea you were having hubby problems as well. I agree with Tina here, and she usually has some good advice for our members concerning this type of problem. A non supporting spouse is understandable at times, because they have no idea what CP is and how we suffer, ..however!….what you describe here is abuse in my books (mental)….and it may be over for now…but I suspect it will happen again…..it looks like your husband has a deeper issue that needs to be dealt with professionally…and the sooner the better. Please do seek some sort of counseling.

I'm curious as to what dose of Percocet's you were on….and then your Dr said to quit cold turkey? Maybe the Nucynta is supposed to take the place of it…..I have no knowledge of this med…so I'm of little help on it.

….but what has me concerned is the Percocet reduction….and it's a IR med. Have you tried Oxycontin?….or at least a higher dose of the Percocet's? Usually if a med is not as effective as it used to be, Dr's will up the dose….or possibly try the ER form of it like Oxycontin. Can you fill us in with a little more information please?

Again, I'm sorry you were not getting support when you needed it.

Take care,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/12/2012 7:53 AM (GMT -7)   
SE- Don't worry about not seeing this post before...My husband and I are doing great right now and he knows if his abusive behavior starts again that we will be going to counseling.

I was on 10/325 Percocet's twice a day...he told me to stop it when I started the Nucynta and I've not had any withdrawal symptoms as I'm sure it's because they are both opiate's.

I have not tried Oxycontin, but would like to...but as it's not been brought up by my PM I am not going to bring it up as I don't want him to think I am drug seeking. He switched me to Nucynta because I've been on the Percocet for years and the dosage went up to 10/325 months ago and has never helped.

It took him this long to change my med's because he wanted confirmation that there was something wrong and for some reason they had problems getting the results of the MRI I had in 2010, so he ordered another one, which pretty much showed the same thing....bulging disc and arthritis, but the arthritis had spread.

Thanks for your concern!!! :)
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 4996
   Posted 4/12/2012 7:59 AM (GMT -7)   

 

       Hillary...that is a very low dose, but I think it was a good move on his part to switch med's on you....hopefully it will work. Has he mentioned surgery yet? ...maybe PT?

 ...also if you continue to suffer...get back in there and let him know about it. wink  

   SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/12/2012 3:03 PM (GMT -7)   
Yeah, the dose I was taking of Percocet was low, but I had a heck of a time getting it increased and that's when he switched me to Nucynta. He is doing bilateral epidural's on the 19th and said if that doesn't help he will need to do a discography, but he really doesn't want to do that as it's very uncomfortable.

PT has not been mentioned- is this recommended for arthritis?

I will let him know if I continue to suffer....woke up very stiff and achey this morning, but think because it got down to 39 last night and when I woke up it was only 63 degrees in the bedroom and I did not have enough blankets.

*hugs* You are great SE!
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 4996
   Posted 4/12/2012 8:08 AM (GMT -7)   
 
   ...no..no...I was thinking that the PT might help the bulging disk. smilewinkgrin
 
         Good luck on the Epidural's..and I sure hope they use sedation on you if you need it.
 
    SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/12/2012 8:13 AM (GMT -7)   
Yeah, that's what I figured you meant- it seems like the arthritis is worse than the bulging disc pain wise.

I am getting sedation for the epidural's, thank the Lord! ;)
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.
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