Pain pump for cervical spine

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Sister123
New Member


Date Joined Aug 2012
Total Posts : 3
   Posted 8/6/2012 2:06 PM (GMT -7)   
I am interested to talk with someone who has a pain pump for cervical spine pain. I have had 4 fusions on my clerical spine and have been in chronic pain for 12 years. I have taken morphine the entire time and it is much less effective now than in the past. I am seeing a very reputable PM doctor that thinks the pain pump will help me. I have had the trial (an injection of 2mg) and it gave me about 40% relief for several hours.

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 4996
   Posted 8/6/2012 2:16 PM (GMT -7)   
 
        Hello Sister!...and Welcome to our chronic pain forum!
 
            We do have a few members with the pump, and one of them is a moderator here. Please keep checking back and she should see this post. I do want to ask if you only had morphine admistered in the trial run of the pump? Was it an inpatient trial...or did they allow you to go home with a pump? The more you can tell us, the better members will b able to respond to your questions.
 
    My Dr seems to think I'm headed in the direction of the pump as well...so I will be interested in how you do with it, if you decide to continue on with the final pump.
 
      Take care, and again...Welcome! Enjoy the forum!
 
        SE wink
Moderator Chronic Pain Forum

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Screaming Eagle
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Date Joined Sep 2009
Total Posts : 4996
   Posted 8/6/2012 10:33 PM (GMT -7)   
Bump!
wink
Moderator Chronic Pain Forum

Weekly Quote!

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straydog
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Date Joined Feb 2003
Total Posts : 11510
   Posted 8/7/2012 2:30 PM (GMT -7)   
Hello Sister and welcome to the chronic pain forum. I have a pump, have a Medtronics pump for lower back pain. I have had mine since 2005 and it has helped me a great deal. We ran out of options with oral medications, I had done the gambit with that.

Do you have a date scheduled for the pump to be implanted? I am assuming that you have ran out options for treating your neck pain.The pump has its benefits and it drawbacks like anything else that we deal with, living with CP.

I see where you pulled up an old post that was started by someone that has not been here since the time those posts were made. I think we may have confused you about the pump not helping his cervical pain. That is true, the pump was being implanted for his lower back pain. To get the pump to work correctly, the catheter has to be placed in the correct area that it is trying to control the pain. It cannot be implanted to help with both neck & back pain, has to be one or the other.I hope I have cleared that up for you.

If you have any questions please feel free to ask, I will do my best to answer them the best I can.Take care.....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Post Edited (straydog) : 8/7/2012 2:42:56 PM (GMT-6)


Sister123
New Member


Date Joined Aug 2012
Total Posts : 3
   Posted 8/8/2012 6:12 PM (GMT -7)   
Thank you for your reply. Yes, I was trying to talk with someone that has the pump for cervical spine issues. Yes, I believe the catheter will wil be place a tiny bit higher. My trial was 1 injection of 2mg. of Dilaudid. haven 40/50% pain relief in my cervical spine even though the injection was done in my lower spine. I am seeing a very reputable PM doctor who does a lot of pumps. I will be speaking with him on Friday. I am so excited about the prospect of ending some of my misery and enjoy my life again. Thank you for your encouraging words.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11510
   Posted 8/9/2012 12:02 AM (GMT -7)   
Glad to read that your dr has quite a few pump patients because unless a dr really knows about pumps its all pretty much a wash. A dr can either make a pump a success or a failure. There are lots of different meds that can be used in a pump, along with combos of different meds.

I believe you are the first person that has come to the forum that will be getting a pump for cervical pain. I do hope you will keep in contact with us and let us know how you are doing. Take care....Susie f
Moderator, Chronic Pain Forum & Psoriasis Forum

minns_hope24
New Member


Date Joined Sep 2012
Total Posts : 7
   Posted 9/15/2012 7:19 PM (GMT -7)   
I am considering a Pain Pump, I have Cerebral Palsy and Chronic Pelivic pain. I have had Chronic Pelvic pain for almost 5 years, and have been to 4 GYNs and have 2 Exporatory Laporoscopmies. I am sick and tired of being in pain and the doctors dont know what is causing it. I have been all the way up to 60mg morphine 2 times a day and was still in pain. I also have Scoliosis, would the effect having a pump inplanted?

thanks
minn :-)

Post Edited (minns_hope24) : 9/17/2012 11:39:26 AM (GMT-6)


straydog
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Date Joined Feb 2003
Total Posts : 11510
   Posted 9/17/2012 3:10 PM (GMT -7)   
Hi Minns and welcome to the chronic pain forum. Minns I have a pain pump implanted and will be glad to answer any questions for you that I can. I am not real sure what question you are asking right now, perhaps if you are a little more clear about what info you are needing.

Take care......Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

minns_hope24
New Member


Date Joined Sep 2012
Total Posts : 7
   Posted 9/20/2012 9:59 PM (GMT -7)   
I guess what my question is, because I have Scoliosis and its a curve to the spine would that effect the cathiter line? Are you glad you have the pain pump?? Do you feel its improved your life?

Thanks for Advice,
minn

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 9/20/2012 10:16 PM (GMT -7)   
Sister 123... I too have been suffering for 12 year or more!

I am fused C3-C5 & C5-T1

My PM is also bringing up the pain pump or SCS issue to me also...

Please let me know what happens with you..
Posterior cervicothoracic decompression and instrumented fusion (three level fusion) for spondylosis and stenosis with severe radiculopathy.. surgery performed 3/31/11

ACDF... (three level fusion) 4/1/12

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11510
   Posted 9/21/2012 11:15 AM (GMT -7)   
Minns, on the cervical spine I am not sure where they would put place the catheter. Has your dr recommended a pump? Your dr could answer this question for you. You know a trial is done before a pump is implanted to see if the pain is reduced.

I have had my pump since 2005 and yes, it has made a difference in what I could not do before the pump. I was pretty much in the bed all the time and that is no longer the case now. I had no quality life at all. Now, I am able to do much more than before. I have a lot of limitations like anyone else but the point is I have a life. You still have pain with a pump, you are not pain free, not unless you were so loaded up on meds and then you would not be able to function. You must have meds for BT pain or have a PTM that goes with the pump that will give a bolus. If a dr says no to either of these, this is not the dr you want managing your pump because he does not know what he is doing or talking about. I do not take BT every day, mainly because I have a fairly good size dose of meds in my pump and I do not want to get my body use to more meds on a daily basis. I like not having to watch a clock waiting on whether its time to take a pill or deal with the highs & lows of pills wearing off. I am able to get out & drive my car with no problems. I am not loopy or anything like that. If a person were like this then they are either getting too much meds from the pump or the meds are too strong for them.

A dr can make these pumps a success or a failure. My dr that implanted mine had no clue about them, he was very limited in knowledge of pumps and the meds & dosages used in them. They truly have to be a pharmacist or have that knowledge to to be effective with a pump and to make the pump a success. The first two years with mine were awful, but that changed when I got a new dr. She ended up doubling my dose and the prior dr said I was at my max dosage, lol. The dose he had me on is where they start you out at come to find out. My meds for BT pain is three times what he had me on. He really meant well but he just did not know what he was doing when it came to pumps. There was 45 of us that left his practice with pumps because he went out of business. We were all referred to the same dr. She had to make drastic changes in the pumps of 44 out of 45 patients, what does that tell you.

If I can help in any way let me know.....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

minns_hope24
New Member


Date Joined Sep 2012
Total Posts : 7
   Posted 9/22/2012 10:26 PM (GMT -7)   
Hi Susie,
 
My PCP recomended the Pain Pump she said that it would be a better option for me, because the 60mg of morphine 2 times a day that I was taking was making me feel like crap. She said it would be a better choice for the Chronic Pelvic Pain. Since all 4 of the gynocolgist, cant find out what is causing my pain. But then I think I only 24 and I want to have a child one day. I've read that you can have the pump turned off, if you want to get pregnant. I am having trouble findng  a doctor that will take my insurance and place in the pump.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 9/23/2012 10:58 AM (GMT -7)   
Minns...I don't know too much about the pain pumps except that they really only put them in if you have exhausted every possible means of oral meds/patches and other treatments.

Have you been on other pain meds besides the Morphine? 120mg of MSContin is really not that strong of medication as Morphine is lower on the list. People tend to think it's so strong based on the IV form they get in the hospital, but oral form is a lot less potent.

Have you ever been on Oxycontin, Opana, Nucynta, the Fentanyl patch? Fentanyl is the strongest med out there and starts at a 12mcgh (it is dosed in Micrograms...not Milligrams), all the way up to 100mcgh.

So...I just wanted to say that you may have a hard time finding a Dr. willing to do this unless you really have tried everything else both medication wise and other modalities to help treat the pain.
 
But obviously I'm not a medical professional so there is a lot of criteria that goes in to it and hopefully you will find a Dr. to discuss the options for you.

Post Edited (Snowbunny21) : 9/23/2012 11:30:19 AM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11510
   Posted 9/23/2012 11:14 AM (GMT -7)   
Minns, I suggest that you check out www.Medtronics.com. as this is a company that makes the pumps. There are other companies that make them but they are the granddaddy of pumps. They have a list of problems the pumps will work for and a list of drs that works with the pumps. This is a user friendly site and very informative. They probably have an 800 number to call and someone live that may be able to help you locate a dr. that could decide if you are a pump candidate.

Take care......Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

minns_hope24
New Member


Date Joined Sep 2012
Total Posts : 7
   Posted 9/23/2012 8:08 PM (GMT -7)   
Snowbunny 21,
I am allergic to Darocet, Perocet, and Oxycotin.

Susie,

My PCP says that she thinks I would be a candidate not just because of the Chronic Pelvic Pain but also because of my Cerebral Palsy and the pain that causes.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 9/23/2012 8:21 PM (GMT -7)   
Thanks for sharing more....That still leaves Opana ER, Exalgo, Nucynta, and Methadone in oral forms or Fentanyl or Butrans patches.

Just naming some that your Dr. may want to try before they move you over to the pump. I was thinking that one of the requirements is that the Dr. has to show that you have not done well and exhausted all the medication choices...

And as Susie will tell you....your pump is only as good as the Dr. who is managing it and who has the most knowledge about it.
 
So...just trying to throw some things out that you may run in to. It's certainly an absolute last possible choice for anyone but we are here to support you along the way.

minns_hope24
New Member


Date Joined Sep 2012
Total Posts : 7
   Posted 9/25/2012 4:45 PM (GMT -7)   
I found a Pain Mangement doctor that takes my insurance finally!
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