postherpetic neuralgia

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jeb1965
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/10/2012 7:13 PM (GMT -6)   
I have had postherpetic neuralgia (pain resulting from having shingles) for over five years. This is constant pain.  Have tried everything the drs can think of and nothing works so now I'm scheduled for a trial neurostimulation. Has anyone had experience with this procedure for PHN?

Matt-man&little-boy
Veteran Member


Date Joined Jul 2012
Total Posts : 788
   Posted 8/11/2012 1:47 AM (GMT -6)   
Hi, just wanted to say welcome, I have no personal experience with that, my old room mate had that same disorder, though she had no insurance and no money to pay for treatment. She had pain over her whole back and wrapping around her abdomen. More then once she actually blacked out from the pain. I just couldnt believe how severe it really was. She said it was that feeling of touching a hot skillet, only leaving your hand on it.

I think you'll enjoy this forum, I've only been here a couple weeks and everyone is very understanding and supportive, just a big family I think. I hope that your procedure gives you some relief, good luck and God bless.

jeb1965
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/11/2012 7:47 PM (GMT -6)   
Thanks for you reply and info. I'm lucky to have had good insurance but now I'm on Medicare Part D and will be in donut hole within 4 months. I don't like being on all this medication so am really hoping SCS will help me. Hope you are doing well.

Franb01
New Member


Date Joined Oct 2013
Total Posts : 1
   Posted 10/17/2013 8:54 PM (GMT -6)   
I have had Postherpetic neuralgia for a year and a half. Have been on large doses of Gabapentin. I just want this to go away but see no signs of that happening. Going to a Neuroligist hoping he will do an epidural but he says that could leave me paralyzed. Does anyone have any advice??

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11182
   Posted 10/18/2013 9:19 AM (GMT -6)   
Hello Fran and welcome to the forum. Please note that you have posted on an older thread. We ask all new members to do their own intro post so that everyone will see it & be able to give you a proper hello & welcome aboard.

Please know that many of us have had epidurals as this is a real common procedure an none of us are paralyzed from having them done....Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Jabez
New Member


Date Joined May 2014
Total Posts : 2
   Posted 5/8/2014 5:21 PM (GMT -6)   
Yes, I've 2 epidurals...very painful for me...I passed out during the second...it didn't work at all. Then went on to have the spinal cord stimulator trial. Oh, man, oh! For one week in electro hell!
Now they gave me an injection for a med. pump. It worked! The effects lasted 12 hours...the first relief in 8 yrs. now onto the actual implant procedure. It's described as having a hockey puck implanted in my upper buttock area.
I'm new to this site and would appreciate anyone responses...
It was having shingles as my partner was dying in 06'.
Jabez
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