Nothing helping my husbands small fiber peripheral neuropathy

Neuropathy
0
pain - 0.0%
0
peripherial neuropathy - 0.0%

 
New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tiger222
New Member


Date Joined Mar 2017
Total Posts : 2
   Posted 3/5/2017 11:23 AM (GMT -6)   
My husband was diagnosed with small fiber peripheral neuropathy over a year ago. We have tried Gabepentin and now on 450 mg of Lyrica as well as a tramedol/acedaminaphin mix. Nothing seems to work. He has spasms in his thighs that are debilitating and pain in his feet. His legs also have tremors from time to time which are painful and cause muscle spasms. They also have tried botox. He feels pain through out his whole body as well. Not sure what else to do. He is seeing a neurologist and a pain specialist.

CaliJR
Veteran Member


Date Joined May 2015
Total Posts : 647
   Posted 3/5/2017 2:54 PM (GMT -6)   
Hi Tiger, Welcome to HW, sorry you have to be here. Wow, at this point the Neurologist is the best bet. How many mg of Gabepentin? Has he tried Cymbalta?
CaliJR
Age 52. PSA 7.1-PSA Free=5% 9/15: PCa G9 (4+5)
Prolaris Score 3.6-High Risk
18 Mnths Casodex & Lupron started Dec 2015
HDR Brachy@UCLA 2/29/16 & 3/1/16 Zometa I.V. 3/8 & 9/7
IMRT: 28 Fractions Completed 5/5/2016
Taxotere Chemo Ended 8/7/16

Chronic Pain Forum: Rotator Cuff & SLAP Repair 2-16-2017
GERD Forum: Nissen Fundoplication Surgery 7/2015

Tiger222
New Member


Date Joined Mar 2017
Total Posts : 2
   Posted 3/5/2017 4:20 PM (GMT -6)   
Thanks CaliJr. Yes, he has a neurologist. He was taking 3500 mg of Gabepentin and then switched to Lyrica 450 mg a day. He tried Cymbalta first but is allergic to it as it depletes his sodium to dangerous levels quickly when taking it. Hi muscle spasms in his thighs are terrible and painful.

spinal Stenosis, small fiber peripheral nephropathy

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 665
   Posted 3/6/2017 9:00 AM (GMT -6)   
Tiger:
Scroll down to the thread further down on this page titled "Chronic Pain - Male" posted by Zarathustar333.

I make reference to the use of topical compounding cremes for neuropathic pain that are proving to be quite helpful in individuals with recalcitrant neuropathic pain - often more helpful than oral agents.

The web site CentralDrugsRx.com has a comprehensive listing of the many possible compounding possibilities. The value of compounding medications is that they can be individualized to the person, different concentrations and proportions to meet an individuals's symptomatic needs.

Compounding creme medications can contain lidocaine, amitryptoline, ketamine, tramadol, gabapentine, clinodine, baclofen - and more.

Go to the CentralDrugsRx.com web site and you will find a listing of suggested compounding agents. It is a useful tool in discussing with physicians. Many physicians are not aware of the compounding possibilities.

I hope that this provides you with a new avenue of hope for pain mediation for your husband, and an improved quality of day-to-day life for him - and you.
- Karen -
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15005
   Posted 3/6/2017 9:23 AM (GMT -6)   
Hello Tiger & welcome to Healing Well. So very sorry to read about what your husband is dealing with. Neuropathic pain is such a difficult condition to treat & finding the right care to help the individual.

I see Karen has posted some good information about topicals, its certainly something to check into & consider trying. I would think about printing off some of the information & taking it to the dr, anything is worth a try.

I searched through some old threads here to see if I could read find something to offer up, but your husband is or has taken the meds generally rx'd for this.

Keep us posted on how he is doing. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 23, 2017 3:10 PM (GMT -6)
There are a total of 2,886,213 posts in 316,689 threads.
View Active Threads


Who's Online
This forum has 157786 registered members. Please welcome our newest member, Georgio.
945 Guest(s), 17 Registered Member(s) are currently online.  Details
NicHostetler, imagardener2, Lapis_29, somegirl, Astronut, Purrrsiankitty, dacarte3, ArtAngel, The Dude Abides, Loutucky, Fronton, tonyaraven, Uniform Charlie, Dmc695, Lwnsmld13, leo77, mcloud


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer