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Date Joined Mar 2017
Total Posts : 1
Posted 3/21/2017 1:31 PM (GMT -6)
My name is Teresa and I have a number of permanent physical disabilities, all of which cause chronic pain which is sometimes unbearable. I also suffer from PTSD.
I have always wanted to write a book, and since this year has been one of the worst pain cycles I've had in a very long time, I've been out of work for over two years. I have been trying to launch an Etsy page and get my photography up and running again, but on bad pain days I can't even get out of bed, much less photograph an event or even make my crafts for Etsy. I have always wanted to write a book, even before my accident. I think now might be a good time to start, but I know that in order to be successful I need to have an audience and enough topics. I would love any advice you could give me. I want this book to be relatable to other pain sufferers and also maybe help the family and friends of pain sufferers. Too often do I want the people in my life to understand what it's like, what does help us and what does not. I want to cover a myriad of topics that need to be addressed, as this effects our lives 24/7, 365 days a year and it also effects our loved ones when they are with us and even when they are not. I would appreciate any and all advice on chapters, content, etc. I also need an audience to make this book a success, so if you could give feedback if an e-book like this would interest you I'd be so appreciative.
PS- I will be posting another thread on this but just in case you don't see it... I want to make a photography project on the beauty of scars of all kinds and also feature amputees. If you live in the Greater Chicagoland Area or Northwest Indiana I would love to speak with you on making this vision a reality.
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Date Joined Mar 2009
Total Posts : 19780
Posted 3/22/2017 1:16 AM (GMT -6)
your writing the book, not others. it seems you are looking for an audience and to promote your e-book. others have come on in a similar vain, and it seems apparent they not know their way around disability / chronic pain advocacy nor aware of the support services and advocates about
the place. i wish people would just write the book, then i would know via the reading of it if it is genuine and not just adjunct supplied content. i assume no knowledge of what you know or affiliations, etc. i have just made comment. i am a wary old bugger and when i hear what you are asking tells me the likely hood that you are not out their in the community otherwise the formulation of the book would be much easier. (in my view)
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Date Joined Feb 2003
Total Posts : 14985
Posted 3/22/2017 6:05 AM (GMT -6)
Hello Teresa & welcome to Healing Well. This forum tends to run slow so I am not sure how much input you would get. I also will ask you to review the rules here at Healing Well. They are located at the top right. Secondly, my thoughts are you will have to obtain permission from the admin@HealingWell.com to see of he will allow this project you are proposing. If he allows you to do this he will give you instructions on what needs to be done.
Moderator in Chronic Pain & Psoriasis Forums
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Date Joined Jun 2016
Total Posts : 294
Posted 3/22/2017 8:51 AM (GMT -6)
Hi Teresa and welcome to Healing Well.
My suggestion to you is to start by taking a course ( on line might be the best method for us chronic pain sufferers ) on creative writing. This
may sound boring, but there are certain things that most any successful
book must have. Having never attempted to write a novel I don't remember what ingredients must be in a book , nor which ingredients are optional or to be avoided.
But before you put pen to paper you must have a rough idea in your
mind of what or who etc that you want the story to centre on , and have
at least a general idea of what your goal is with your novel. Will it involve comedy ( for instance ) , tragedy with redemption, a day in the
life of, etc. What I am trying to say is your need to know generally how
the book will begin , evolve , and end.
It has been decades since I studied creative writing in high-school, but I do remember that there are methods that you need to know if
you really want to have a chance at success.
I think that if you don't do this homework first, you will find your
writing will more or less just meander along , with no real direction, and thus no climax and no ending.
Bear in mind that what I am writing here is from memories of creative writing courses , and language ( English in my case ) studies
from the 1970's , as well as from being an avid reader. You may choose
to take it with a grain of salt, but you asked for some insight, and this
is mine. Start by taking a creative writing course, so that you can learn
the elements and structure of a successful book.
On a slightly lighter note , I would suggest that rather than feel dissapointed with my post and my opinion , you either consider a brush-
up on creative writing as a first step toward success in your goal, or
you disregard everything I have suggested and try it your way.
In any event , I want to wish you happiness and success at your
All the best Teresa,
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Date Joined Dec 2012
Total Posts : 661
Posted 3/23/2017 8:49 AM (GMT -6)
Everyone's life pathway with chronic illness is unique. I think you would have a difficult time cultivating a book on generalities of living with chronic illness and chronic pain, as the terrain is enormously broad and wide.
Chronic illness due to an accident or trauma can be a different experience from chronic illness due to a progressive illness, for example.
One's response to illness is often different when first diagnosed than in the ensuring months and years in adapting and coping, as another example.
I would urge you to spend time to reflect on the focus and direction of your proposed book and writing. To say that you want to write a book on chronic illness/pain that addressees both the patient and family network is a huge undertaking that may not be feasible.
- Karen -
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
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