Seashell checking on you.

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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14812
   Posted 8/24/2017 11:08 AM (GMT -6)   
Hi Karen, I ran across a post of yours several days old & you were in the hospital at the time. When you feel up to it, please let us know how you are doing. I hope you are feeling better.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 647
   Posted 8/24/2017 4:20 PM (GMT -6)   
Susie:
How thoughtful of you to inquire about me.

I am still in the hospital with a small bowel obstruction and GI bleed, day 7. After trying to decompress the intestines with an NG tube and intestinal rest, I underwent a relatively minor surgery on Sunday to release the offending adhesions. I am making steady (but slow) progress and am aiming for discharge to home on Sunday. The Addison's disease is slowing my progress.

I think this intestinal kink had been brewing for several weeks, as nausea/vomiting had become a daily occurrence. I kept thinking the nausea was related to my endocrine deficits . . . and so went for a corticosteroid IV bolus . . . which instigated the GI bleed. The day after the corticosteroid bolus, I was vomiting up stool (no joke) and headed to the emergency room.

This is not my first small bowel obstruction. But I will admit an obstructed intestine is miserable experience.

My little tea cup Maltese, Molly, has been allowed to visit me in the hospital. And my mother has been genuine in her support and presence. When the chips are down, family is precious.

I notice that I posted a response on an incorrect thread. Whoops. I have had a lot of potent medications, so I guess its understandable. I actually hallucinated the evening after surgery. That was very distressing to me. To hallucinate.

Thank You for thinking of me, Susie. I appreciate your genuine friendship. It means more to me than you can possible know.
Karen
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

Abilene
Veteran Member


Date Joined Apr 2014
Total Posts : 939
   Posted 8/24/2017 7:23 PM (GMT -6)   
Susie, I'm so sorry to hear about this. You help all of us, encourage us and your own health issues got overlooked by me. You will be in my prayers. I'm glad your family is helpful!

Thank you Karen for posting this.
Posterior C3 - C7 laminectomy and fusion 2 rods and 10 screws, local bone graft from surgery site-lamina and other bony tissue 12/17/2013; Hyperthyroidism; Sleep Apnea-update-it's gone after a 25 lb weight loss; Total Knee Replacement 2012 and 2017.
Thankful for my husband of over 40 years

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14812
   Posted 8/25/2017 8:03 AM (GMT -6)   
Ha, ha, Abilene's post was intended for you. She got the names messed up. We all do have our moments.

I do hope that you are on the mend & will recover well. I know these obstructions are certainly nothing new for you to deal with. Having crohns in the small bowel, the obstructions are not fun to deal with. I always dread the NG tube. Have been there & done that a few times.

Aw, I am so glad that little Molly gets to visit. She is one of your best medicines. And having your mother there for support is wonderful. I am guessing your mother is caring for Molly while you are in the hospital.

I have hallucinated before from IV Morphine. Now that i think about it, it was when I had an obstruction. It handled the pain very well but made me loony.

Hopefully you will be well enough to go home Sunday. Keep us posted on how you are doing. Sending many healing thoughts & prayers your way.
Susie
Moderator in Chronic Pain & Psoriasis Forums

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 647
   Posted 8/25/2017 10:18 AM (GMT -6)   
Susie and Abilene:
My sincere appreciation for your kindred spirit words of support.

I do believe in the power of collective well-wishes, positive karma, and prayer. I have experienced its benefits first hand.

The gradual loss of health and well-being is a surreal experience. I nerve saw the erosion of my health on my life's trajectory. And, yet, chronic illness found me and has me in its clutches.

The ER physician was concerned that I had a possible small perforation. Fortunately, I did not. I would have declined any intervention. I agreed to this surgery as my palliative care team feels that I have a good potential for being able to recover to my prior status. Each health speed bump that I experience finds it more difficult for me to recover.

I received discouraging new this morning. It appears my small intestine motility is also showing areas of impairment with slow to no propulsion. Small intestine paresis. Likely due to long-term pituitary failure and absence of key hormones that act on the GI attract to keep it moving and humming along. I am not surprised at this finding as the last 2 months nausea and vomiting has been a daily presence.

I am not certain where this will all lead, but I am clear in my decisions for no invasive medical interventions. My quality of life is marginal at best and each recovery is more prolonged and taxing of the limited reaerves of body and soul that I do have.
Karen
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

Mercy&Grace
Veteran Member


Date Joined Jun 2013
Total Posts : 1675
   Posted 8/25/2017 6:11 PM (GMT -6)   
Karen, you are in Prayers Sweetie.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14812
   Posted 8/26/2017 4:53 PM (GMT -6)   
Karen, of course with it being the weekend I am guessing you will not learn much from the drs until Monday as far as recommendations. Hopefully they will be offer to offer something that is not anything drastic.

Sending healing thoughts & prayers.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Abilene
Veteran Member


Date Joined Apr 2014
Total Posts : 939
   Posted 8/26/2017 9:05 PM (GMT -6)   
Well, sorry for the mix up but the care is still there...prayers, too.
Posterior C3 - C7 laminectomy and fusion 2 rods and 10 screws, local bone graft from surgery site-lamina and other bony tissue 12/17/2013; Hyperthyroidism; Sleep Apnea-update-it's gone after a 25 lb weight loss; Total Knee Replacement 2012 and 2017.
Thankful for my husband of over 40 years

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3023
   Posted 8/31/2017 2:45 PM (GMT -6)   
Hi Karen,

I just saw this. I hope you are doing okay. What you are going through sounds very serious. I am going back in for more surgery tomorrow, myself (my 3rd back surgery in 3 mo, ugh), so I don't know when I will be able to check in again. But I just wanted to let you know that I am thinking of you (and Molly)! You always go out of your way to try and help other members, I hope your absence just means that you are focusing on taking care of yourself now (as you should be) as you recover! Keeping you in my thoughts and prayers.

Skeye

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19618
   Posted 8/31/2017 9:54 PM (GMT -6)   
many healing thoughts from the turtle.

rocckyd
Veteran Member


Date Joined May 2012
Total Posts : 1080
   Posted 9/1/2017 3:10 PM (GMT -6)   
It sounds like a form of gastroparises (sp?)
I know you don't want any invasive procedures, but would you be willing to have a g/j tube? It can be placed during an upper endoscopy. I only use the g to vent my stomach which helps with the nausea and vomiting. It's a life saver.
Single mom to my little man 11yrs old
39yrs old. JRA since a kid. Chronic Uveitis, pleurisy, pericarditis, intersticial lung disease, sjorgrens syndrome, Cushing's Syndrome, gastroparisis
Bilateral TMJ replacements due to bone fusion, port-a-cath, g/j feeding tube, antiphospholipid antibody syndrome(my blood fights itself) epilepsy, MCTD, dysphagia(unable to swallow correctly)

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 647
   Posted 9/2/2017 9:40 AM (GMT -6)   
I am home. Home is where true healing begins. Reuniting with my little dog, Molly, brought me to true tears. Of happiness.

My small intestine is still somewhat "traumatized" - for lack of a better word. Its functionality waxes and wanes. Meaning that it is moving and propulsing digested food material along at the pace of a snail and then stops. And then begins again, albeit slowly.

This is not my first instance with paralytic ileus. I have encountered it before. Although I was stronger physically than I am now.

I have endured much and am making the conscientious decision to foregoing any further invasive medical procedures or advanced care. I
can keep down small portions of thickened and clear liquids. It will have to do.

My medical team is accepting and supportive of my decisions for care and comfort measures only.

There can come a time when further medical interventions can leave someone in a worse place, with further reduction in quality of life. As a health car professional myself, I have been witness to medical care that caused more harm and personal suffering than benefit. I do not want this for myself.

I likely will not be posting to this forum any more. Thank You for letting me be a part of this group. It is a group of merit and commaraderie. Be well.
Karen
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

Abilene
Veteran Member


Date Joined Apr 2014
Total Posts : 939
   Posted 9/4/2017 9:57 AM (GMT -6)   
Karen,
I have great respect for the personal decisions you are making. Thank you for being a part of this group with such helpful responses. If you are not able to continue, you will be greatly missed.

Prayers for your peace and comfort.
Posterior C3 - C7 laminectomy and fusion 2 rods and 10 screws, local bone graft from surgery site-lamina and other bony tissue 12/17/2013; Hyperthyroidism; Sleep Apnea-update-it's gone after a 25 lb weight loss; Total Knee Replacement 2012 and 2017.
Thankful for my husband of over 40 years

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3023
   Posted 9/7/2017 3:13 PM (GMT -6)   
Glad to hear that you are home now and doing better, at least for the time being! Even though I tend not post much myself these days (it's been a very rough summer for me, too), I still do stop by and read with some regularity, and I know that I and a great many others here will miss you and your sage advice/wisdom if you do choose to leave the forum. However, I think we all understand. Focusing on maintaining your own health is always most important!! Wishing you (and Molly) all the best & a continued and speedy recovery!

Skeye
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