Good News, No CPRS... but other stuff.

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CaliJR
Veteran Member


Date Joined May 2015
Total Posts : 647
   Posted 9/8/2017 4:53 AM (GMT -6)   
An Update From Past Post: I have been seeing a pain management doctor at UCLA for possible CPRS of my left hand. After two ganglion nerve blocks with no success, we regrouped and ruled out CPRS. In the last few months I have had nodules growing in the palm of my hand and more recently large indents leading to my middle and ring fingers. Now we thought possible Dupuytrens Disease "DD" (aka Vikings Disease). I was referred to an orthopedic hand surgeon for evaluation at UCLA. He looked at my hand and did some painful manipulations and diagnosed me with Dupuytrens, Trigger Finger of the index, middle and ring fingers, as well as knuckle pads of all four fingers (aka Garrods Pads). The Dupuytrens is not normally painful, but as in my case, can involve nerves and cause pain. This disease builds up nodules and cords in your hand and literally pulls your fingers into the palm of your hand. Weird stuff my Norwegian ancestory has given me. It is not curable but manageable. Trigger finger is compounding the issue and can be corrected with cortisone shots and physical therapy. He painfully shot me 7 times in the palm with cortisone shots and referred me to physical therapy. So hopefully I will get the trigger finger issue resolved and will help with swelling and pain. DD needs more treatment when and if I can't lay my palm flat on the table... hoping I don't progress that far.

Meralgia Paresthetica: now working with pain management doc on MP issues. Had nerve block injection and it lasted two weeks. Will do another at end of month. If limited success, will possibly go for RF ablation of nerve.

That's my update... taking care of business one Disease at a time!
CaliJR
Age 53. Diagnosed 51. PSA 7.1-PSA Free=5% 9/15: PCa G9 (4+5)
18 Mnths Casodex & Lupron started Dec 2015
HDR Brachy@UCLA 2/29/16 & 3/1/16 Zometa I.V. 3/8, 9/7 & 4/3
IMRT: 28 Fractions Completed 5/5/2016
Taxotere Chemo Ended 8/7/16

Treatment Over 5-31-2017
SE: Chronic Radiation Enteritis, Dysuria
CP Forum: MP, DD

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2066
   Posted 9/8/2017 8:37 AM (GMT -6)   
Hi Cali. Well, glad you got an answer.

Dupuytrens runs in my family. Didn't know it was from the Norse genes...interesting...probably from pulling on the oars!

You might be interested to know that Frank Sinatra had it. I have a letter from him that was sent to my Dad, thanking him for the name of his surgeon (although I doubt he used him).

Best wishes for a speedy recovery from all of your 'business'.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, wrist ganglionectomies/denervectomies/tenolysis, multiple herniated discs, tarlov cyst, whiplash, bursitis of hips, tendonitis, torus, 3rd degree shoulder separation, torn labrum, ovarian cysts, fibroid tumors of the uterus

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14812
   Posted 9/9/2017 12:21 PM (GMT -6)   
JR, great to read that you do not have CRPS!! You truly dodged a bullet on that. However, sorry to read of the confirmed issues, but at least with treatment hopefully you & the drs can get a handle on this. Yes, the shots can be quite painful. I have had several different type of injections & blocks over the years. Of course all of these various treatments allowed me to work so the discomfort & my huge fear of needles was shelved. I always tell the drs, do not let me see the needles. I have an implanted pain pump in my stomach. The needle & syringe used to access the pump always reminded me of something they would use on a horse, lol. By the way, if you do the RF I do hope you have great success, very much worth trying. I had this done on both my neck & back.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

CaliJR
Veteran Member


Date Joined May 2015
Total Posts : 647
   Posted 9/9/2017 6:54 PM (GMT -6)   
Thank you pitmom and straydog. I agree... dodged a bullet. Like everything, we just get up each day. Take care. -JR
CaliJR
Age 53. Diagnosed 51. PSA 7.1-PSA Free=5% 9/15: PCa G9 (4+5)
18 Mnths Casodex & Lupron started Dec 2015
HDR Brachy@UCLA 2/29/16 & 3/1/16 Zometa I.V. 3/8, 9/7 & 4/3
IMRT: 28 Fractions Completed 5/5/2016
Taxotere Chemo Ended 8/7/16

Treatment Over 5-31-2017
SE: Chronic Radiation Enteritis, Dysuria
CP Forum: MP, DD
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