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holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/6/2007 5:15 AM (GMT -7)   
Okay, I have been suffering horrible migraines for 7 1/2 months, from whiplash. I am sure you have read about my story so I won't get into it. I am not a druggy, as none of you are, but lately my pain has gotten worse instead of better, despite all of my treatment. I hae a follow-up appointment today from the medical procedure where they burned my nerve endings. I want to ask for stronger medication, both pain and muscle relaxers.
 
What I am currently taking is Vicaden for the pain and Skelaxin for the muscle relaxers. What is the next step up? What are some of the pain relievers you all take? Also, what about muscle relaxers? I just need something that works to give me some relief before I lose it. Until they can figure out what is wrong.
 
I am hoping he (the anethesiologist) refers me to a neurosurgeon. I have a name and number of who I want to see, who happens to be a spine specialist. I think he would be the perfect dr to see in my case. I am still thinking I may have a bulging disc that just didn't show up on my MRI in March.

TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 8/6/2007 6:43 AM (GMT -7)   
I wish I could offer some decent advice for you. When I had migraines for a couple of years, they were hormone-driven so the triptan meds worked great for me. Narcotics actually made them worse. There are certainly plenty of other meds to try, and most pain docs don't appreciate you coming in and saying, "I want to try drug x." Just tell the doc the current meds aren't working and throw the decision in his court.

Will your insurance policy allow you to self-refer to a neurosurgeon or do you have to wait for a referral? If you have no restrictions, just do it! Why wait if you don't have to? Also, your pain doc should be able to order an MRI in the meantime and you could take the films with you when you finally get the neuro appointment and speed things up a bit that way.
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/6/2007 7:10 AM (GMT -7)   
Yea, I have a script for Relpax, which helps sometimes, but I have migraines, tension headaches, and occipital nerve pain to go with the neck and shoulder pain and muscle spasms.
 
yea, I sort of figured that if this doctor didn't order me another MRI (I had one last in mid april) that I could get my chiro to order me one. he was the one to order the last one.
 
I don't think the problem is with me insurance company about self referrals. I can go where I want when I want. But its been my problem in the past that the neurologists won't see you without a referral. Well, my anethesiologist said if this last procedure didn't work, he gave up, so that would mean he would refer me, in my eyes. He may have in mind where to refer me, but I don't want him sending me downtown. I am tired of going all they way down there, so i think I have a right to choose where to go.
 
thanks for the advice.

razzle51
Veteran Member


Date Joined Jan 2005
Total Posts : 763
   Posted 8/6/2007 7:46 AM (GMT -7)   
 Sounds like you might have Chiari Malformation . Here is a site that tells about it. Make sure they do a MRI of your neck and thorastic region.
 
Chiari Malformation
Decompression Surgery 1999
 

 
 
 



Stmll
Regular Member


Date Joined Apr 2007
Total Posts : 106
   Posted 8/6/2007 8:59 AM (GMT -7)   

HI

I am sorry for your pain, and that your not getting enough pain relief, I have found that my meds that eventually they working, I was taking Oycontin for a while and they jusy did not give me the same kinda of relief they once did, I explained this to my DR and he now has me on the Fentanyl patch 50mgs, with some meds through BT pain, everyone is soo diffrent what works for some does not work for someone else, I would be honest with your DR, that they are just not giving you the pain relief that you need, maybe your body is getting immune to them so you need more to get the same kinda relief, I really hope you can get some kind of relief, no one should have to suffer in todays age, Keep us posted..

Take Care

Tracey


DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/6/2007 9:28 AM (GMT -7)   
Hi,

Just a thought or 2... never be afraid to let your doc know that your pain meds are not working well. Remember...YOU hired this person to do a good job. Also, instead of "hoping" the doc will do this or that...ask! Bring it up and talk about it. Tell them you've read about it, talked to others who had it work and wonder if it's right for you. When it comes to our medical health you have to be the advocate or you get nothing.

Good luck!
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 8/6/2007 9:54 PM (GMT -7)   
Sorry about the increased pain.  Jen is correct when she commented the the latest trend in migraine tx is to avoid narcotics, as they make migraines worse.  They are saying that abortive therapy (taking medication after the migraine has started) is good for people with less then 3 or 4 migraines per month.  More than that, or when the quaality of your life is majorly impaired, treatment should be to try and prevent them from happening in the first place - rather than treating them after they have already begun.  A good neurologist is the best person to tx your migraines.  Some preventive treatments come out of the drugs used of epilepsy, like Topamax or Depakote.  There are many effective drugs other than these two for preventing migraines.  Once you are on preventive therapy, the break thru migraines tend to be less in severity and have a lower overall pain level.  You don't want to get caught up taking narcotics for migraines, they do not treat the correct pain center and you will end up with a whole new set of problems.  Good luck.

Stella Marie

 Dx:  Rare rapidly progressing neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more).  Added improvements:  Intrathecal pump, spinal cord stimulator, oxygen and a nice shiny power wheelchair with a horn and all the trimmings!  At this rate I could almost be bionic by Christnas.

 

Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Cymbalta, Fentanyl patches, Dilaudid, Fentora/Actiq, Zofran

(The cost of these meds are unbelievable and could feed a starving nation for a month or longer!)

Words that soak into your ears are whispered...not yelled.  Live simply. Love generously. Care deeply. Speak kindly. Leave the rest to God......

 
 
l


holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/7/2007 4:10 AM (GMT -7)   
I should have let you all know that I am also on Topamax. That was the first thing they put me on. Then they put me on Cymbalta for nerve pain and depression. Then Skelaxin for the muscle relaxant. When none of that worked, including the Relpax and OTC stuff, that is when they tried the vicaden.
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