Rant about doctor & pain meds......I'm ready to ring his bloody neck!!!!!

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ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 8/10/2007 9:02 AM (GMT -7)   
Ok, so I have been telling my pain management doctor that my meds are not working for at least the last 6 months, if not longer. I called him around 3pm on Wednesday, after a week of pain so high I couldn't tolerate it any longer, and his office couldn't be bothered returning my phone call. I wound up having to go to the ER, which I probably should have done earlier in the week. So on Thursday morning I decided to just make an appointment with him and talk to him face to face. At 4:30pm my cell phone rang, it was the nurse from his office (more than 24 hours after my call) and she says to me "oh, im sorry we didn't get back to you yesterday, we were very busy" my response was "yeah thanks, I wound up in the ER last night". She told me that the doctor said he doesnt want to give me anything else and that I should keep doing what I've been doing. Well, WHAT I'VE BEEN DOING ISN'T WORKING!!!!! I am so tired of having him tell me that. I told her I made an appointment with him and hung up. I think I've gotten over my nervousness abut talking to him b/c I'm just so mad that I'm ready to fire him. I got the name of another pain management doctor that my boss had seen & liked. This is his last chance, I am done. If he doesn't do what I want him to do on Monday then I am going to go to another doctor b/c this is ridiculous. I tired to change once before but it it jsut confirmed all my fears about changing docs & I left that office in tears so I've been scared ever since. It really makes me so mad that I hear all the time about people who are getting 200 Roxy's or Oxy's a month and I can't even manage to get reasonable pain management for a legitimate condition. The US's medical system is SO MESSED UP! I think our new motto should be "Punish the Masses to Prevent the Few" because that's all we do. People who actually need narcotic medications can't get what they need b/c some people choose to abuse them.
 
Sorry for the rant but I am just soooooooooo frustrated I could scream. How do I make this idiot listen to me? I am not a drug addict, I am in pain darnit & I am sick of it. I don't think I am being unreasonable by asking my pain management doctor to ACTUALLY manage my pain. Am I wrong? All he ever says is "loose weight". I know I need to loose weight, I'm not stupid, but HELLO I had these problems BEFORE I put on weight. And I put on weight BECAUSE of all these probelms & meds. How am I suposed to exercise when I am in so much pain by the end of the day? How am I suposed to cook a healthy meal when I am in so much pain I cannot stand and cook dinner and when I push myself to do so then I end up not being able to eat because I'm in so much pain? And now...I am having funky reactions to the sun and I'm not allowed to be in the sun so how am I suposed to do my pool exericses? ARRRGHHHHH! Ok, I'm done....does anyone have any advice on dealing with this doctor and how to talk to him and make him understand?? Thanks.
 
 
 ~Carina
 

"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."

-Benjamin Franklin


TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 8/10/2007 9:46 AM (GMT -7)   
Carina- HUGS
Dont feel bad for ranting, we all do it at some point or another. I do it every few months or so, when I'm just fed up. :)
The first thing I would do is call your current pain doctors office and request a copy of your records. I have never had this problem, BUT, I've heard from a few that if you go in and rant at the doctor or say you are switching that they some might "edit" your records. If anything just let them know you would like a copy to have due to your ER visit. So you can take it with you.
If your pain doctor is not treating your pain, and you are NOT on an unhealthy dosage of medications already, I highly suggest finding a new doctor. Stick to that. It's just like everything else, sometimes you have to go through alot of frogs before you find a prince. It applies to doctors too. If you decide to go in and confront him be warned that he may upset you more. It might be easier to just switch doctors. Rather than have this doctor tell you what he feels your pain is at, and what he feels your problems are.
As far as the whole weight merry-go-round, I've been there too. I've gained a great deal of weight IMO since I hurt my back in 2000. What sucks is that 1)I can't do anything that creates impact due to my back problems which rules out walking, jogging, etc. 2)I can't bend that too causes pain 3)If I do manage to go for a 15-20 minute walk I'm in pain for a week because of it 4)pain medications screw up your ability to lose weight. 5)I agree you can't cook a healthy meal because of being unable to stand that long 6)My colitis makes eating veggies (such as a salad thats quick) HORRIBLE
I've actually seen a dietician who told me that due to my colitis and reactions to any green veggies, that salad just isn't an option for me unless I want to end up in the hospital. I've also been told after keeping a record of everything I ate (using a measuring cup) for a month, that I should weigh about 1/2 of what I do. She said the only fix is to go off the pain medication, but my other hormone problems still interfere, and hope that it works. When I have a bit of pain free time, I do lose weight. I was given steroid shots July 06 that I was told would force me to gain weight, I lost 20lbs because over 2 weeks I felt good. But was told the steroid shots were not something that could be done again.
Anyways, take care, and I would really debate on confronting this doctor. Personally I would go see the other pain doctor to interview him, and ask about what he plans to do as a treatment plan, and then write a letter to your previous doctor if you like the new one explaining why you are leaving his practice.
Good luck!
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
_____________________________________________________________________________
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/10/2007 6:51 PM (GMT -7)   
I'm so sorry Carina!! This guy not only needs to be fired NOW, but write up the treatment he's given you..or should I say lack of treatments and send it to your local AMA or state medical board. No one should be treated like that.

Email any time you need to chat,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/10/2007 10:07 PM (GMT -7)   
Carina, I am so sorry for where you are. I have been there before and I know exactly what you are feeling right now. If you ever- ever need to talk, send me and e-mail & I will happily talk to you. I know how ticked you feel and alone and I thought I was crazy until I was properly diagnosed from a different PM. Well, I have had a hell of a week too. I should start with I am 5'1, and of course, overweight (we all know why). Started a diet plan with a HIGHLY recommended dietician. Was going great- 2 weeks I had lost 25 lbs. Now, strict diet though. At the same time, my dosage was upped on the duragesic patch. Started getting nausiated, thought well- it must be the patch. I had talked to the dietician & he said it was sodium, I needed more. Sunday, I couldn't even swallow water or barely move. Decided to go to the ER. They IV'd some fluids in me- said to see my physician the next day. Went the next day & he had a fit over the amount of phentermine I was on. Told me to stop taking it, get some rest- drink lots of gatorade. Tuesday, still not feeling any better- called my physican- he said to come in right away. As soon as I got there he took me to the hospital and admitted me. Now, I want to make it perfectly clear I do not abuse any of my meds. The number one side effect on ALL my meds- from PM to BC- was depression. I had been crying like a fool the past week, could not understand why. So bless my dr, he dropped his other patients that day- got me the hospital psychiatrist and stayed until 8 pm -when I was calm and rested. Came back the next morning before he went to work to check on me. God Bless him. Now, I am not upset at any of my drs, they could not possibly know what would effect me the way it did. My physician put me on zoloft, amitriptyline, MS contin and my regular soma & percocets. I really thought I was going to die. I check all my meds, when I get something new I go to the web and look into the side effects- talk to my pharmacist.... it was very scary. So all the meds I have been on the past few years- I have not felt this well in 5 years. My physician said he could not understand why I wasn't on something for depression since it is linked to chronic pain, even the psychiatrist said the same thing. Was this all it took? I love my PM dr- he really does have my best interest at heart. I just can't believe this. I am sitting in bed with my laptop- not lying down crumbled with an ice pack. Well, I know it is a long story- Carina. But, my point was that there are drs out there who have good intentions. I know I had told you before about what I went through with my old drs... I don't think the majority would personally attend to you in the hospital, but you need someone you can have faith in. If you need to start from sctratch with a new dr- then do it. Thats what I did. They did all of my MRI's, etc all on their own without my previous record from the quacks I had before. If you ever need to talk, feel free to e-mail me anytime I really mean that. I know the place you are at right now with the dr and it sucks. I just wonder with myself with all the depression it was keeping me from healing. I can't tell you how well I feel right now- I am a consistant 8 pain scale and I am at maybe a 4 right now. Anyway, I will say a prayer for you tonight and I hope this week will give you the courage to drop him and get some help from somewhere else. It will be worth it in the end. You should be able to talk to your dr like you talk to us on here. You can not possibly get better if he is not setting monthly goals for you or trying different meds to help manage this. And, now I know I needed the mental help too. It felt good to say it aloud to an actual person. Be done with this dr and don't look back. Let me know what happens! :) Shannon.
 
----------------P.S. Thursday was the first day in over 5 years I had more than 5 hours worth of sleep without waking up.

Post Edited (kttn251977) : 8/10/2007 11:14:57 PM (GMT-6)


baseballmomof3
Regular Member


Date Joined Apr 2007
Total Posts : 189
   Posted 8/11/2007 6:35 AM (GMT -7)   

Carina:  I am so sorry for what you are going through.  These doctors that treat any one with pain like we are stupid, drug seeking, idiots make me want to scream!  I deal with them with my mom on a daily basis.  As soon as each doctor sees her meds, they completely quit helping with whatever we are there for.  They want to blame everything on her pain meds.  It is such a horrid cycle.  If you have meds to take for pain, then those meds must cause every other problem you have.  Nothing else!  At least according to most docs!

Anyway, I am hoping Rehab Nurse will chime in - she will be a great resource on how to handle this.  I think that TDOern has great advice - I wouldn't dare go in and tell your current doc you are leaving until I had another doctor in place and ready to accept you as a patient.  The last thing you need is for your current doc to say "fine, see ya" and then you can't get an appointment anywhere for weeks, etc.  Just a thought but unfortunately (and this makes me sooooo angry), these docs have all the power.  Your pain (and life) is in their hands so sometimes it seems you just have to play the game.

Good luck and know that we are all thinking about you.  I am sure that most of us have been in your shoes at one time or another.


DX:  Migraines since June, 2006, kidney stones
 
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray


ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 8/13/2007 7:36 AM (GMT -7)   
Thanks for all your replies. I am definately NOT going to tell my pain doctor that this is his last chance but I will know it. I agree that it wouldn't be a smart move to let him know I was looking for a new doc, I don't want to have to deal with not being able to get my meds or treatment or anything. I made a list of things I want out of this appointment. I AM going to get through each one, I am NOT going to let him talk over or inturrupt me, and I WILL make him listen. I can't make him do anything about it but he will at the very least listen to me.
 
I wound up in the ER AGAIN last night, which sucked! And I got the doctor I hate b/c he treats me like a drug adict & is just generally a jerk, then the stupid nurse gave me a shot IN THE SAME PLACE that she did one Wednesday night when I was there......its still a green bruise & I asked her 3x to please not give me a shot on the bruised area. They should really just let me do my own darn shots....then I wouldn't bruise at all. Grrrr.
 
I have my appointment today at 12:30 (and then a Rhumey appt at 2) so I will definately update after that & let you guys know if my doc listened to me or if I am looking for a new one.
 
Thank you all so much for your support! I know most of us have dealt with difficult doctors and we often take a lot of crap from them b/c of our fears of not having one at all or not getting our meds, etc.
 ~Carina
 

"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."

-Benjamin Franklin


baseballmomof3
Regular Member


Date Joined Apr 2007
Total Posts : 189
   Posted 8/13/2007 7:55 AM (GMT -7)   
Carina:  Good Luck today and keep us updated.  Stay strong!
DX:  Migraines since June, 2006, kidney stones
 
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/13/2007 8:12 PM (GMT -7)   
Carina, well how did it go? I was thinking about you today- hoping it went well. Give us an update! Shannon.

ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 8/14/2007 6:58 AM (GMT -7)   

Ok, so it went better than I had expected. He did try to inturrupt me & talk over me but I simply told him to stop and listen to me, which he did. Before I got to the part about wanting to change my meds & perhaps try the patch HE SUGGESTED IT! Go figure!! I finally get up the courage to ask for what I need and he beats me to it. lol So he prescribed the Fentanyl patch at the lowest dose and said we would try that out and adjust the dose if needed. (YAY!) He also stopped my Flexeril which I take in the morning, he said he doesnt want me to be a zombie so we were trying to get rid of any meds that we could, unfortunately that was the only one we could stop. He refused to write me a scrpit for all the MRI's I wanted b/c he doesn't think it's necessary.....I personally don't understand what the big deal is, it wont hurt me & he doesn't have to pay for it but he did agree to write me a script for a cervical MRI which I really think I need. So, for the time being he isn't fired! lol I put the first patch on last night, the nurse in his office told me to put it on my chest, and it fell off.....I even put medical tape around the edges but it came off in my sleep.....figures lol. Oh....and so no one worries.....I had Chris drive me to work and my friend Wendy will drive me home (and hopefully to get soem lunch lol)! :)

After that I went to my Rhumetologist appointment and got my x-ray results. He said I have "significant" artritis in my neck & one of my vertebre has slipped slightly (ummm....aren't they not suposed to do that???). He also thinks it's a good idea to get an MRI done to see if anything else is going on there. He also wanted to up my Lyrica dose again but I asked that we wait until my body has adjusted to the Fentanyl, if I am having side effects or a reaction from one I'd like to know which one.

So, thats all she wrote! Thanks to everyone for their support and good wishes!! *hugs*


 ~Carina
 

"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."

-Benjamin Franklin


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/15/2007 1:29 PM (GMT -7)   
At least that's better news. BTW, that rotten ER nurse??? Write a short note to hospital admin and share that story. She'll get busted. I did that with some *$#ch that didn't care how she ran a mamogram machine. She got sent back for retraining. Bet she doesn't "slam" anyone ever again.

Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/15/2007 8:20 PM (GMT -7)   
FABULOUS! As for the patch- call Jennssen (spelled wrong I'm sure) they are the pharm. co. that makes the patch- they will send you like a 3 or 4 month supply of tagaderm (a dressing) to help the patch stay on. And, you can go to a drug store and buy the tagederm (it's an otc large band-aid like thing) to help the patch stay on while you are waiting. (plus, janssenn will send you a $30 coupon for your next supply) I'm so glad it went well! Good for you for getting up the ummph to tell him how you feel. I'm so glad- let me know how you feel. Hope you have better luck with it than I did. Shan.

ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 8/16/2007 6:43 AM (GMT -7)   

Well the first day on the patch was wonderful (Tuesday)....I felt like a totally different person and it was GREAT. But by the end of the day I could feel the pain start to creep in & then late that night it was unbearable again. I ended up having to leave work 1/2 way through the day on Wednesday b/c the pain was so bad. It's this one spot, like at my sholder blade level and it feels like someone is stabbing me and it hurts right through to my chest then up my neck & through my jaw....all on the right side. I've had this pain a million times & it has been the cause of most of my ER trips. My doctor refuses to send me for an MRI of this area.....don't ask me why b/c it makes no sense at all but I am going to have another of my doctors write the script. So i paged my doc last night and he told me to apply a 2nd patch, which I did at 9pm last night. (and I wrote the dates on them so Id know when to change them lol) But as I sit here I am feeling the pain start to come on & I just don't get it!! I've got ALOT of Fentanyl going through my system right now.....why wont anything work???? confused I just don't know what to do. I do feel better than before the patches but I don't get hoe this incredibly strong pain is breaking through it all or how to stop it!! Now, I've only been on the patch since Monday night so I am hoping that it will build up in my system more & start to be more effective but man, this is killing me!!

As for getting the patch to stay on I am seem to be fine now with the medical tape around the edges. I did call the manufacturer and ask about those things that go over them but they said they do not advise them. They said that the brand name Duragesic manufacturer is the one will advises those. They told me not to cover the patch completely with anything & that this patch works a little differently than the others in the way the medication is dispersed and covering the patch completely can cause the patch to dispense the medication too quickly.

Thanks again to everyone for their support & input, I can use all the help I can get! ;)


 ~Carina
 

"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."

-Benjamin Franklin


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/17/2007 8:27 AM (GMT -7)   
hmmm, thats weird. the lady i spoke with did recommend the tagederm. i didn't have any luck with the patch- i was also up to 50mcg. actually, i was nausiated more than anything. did you get your coupon? my pharmacist actually let me bring back the receipt with the coupon and refunded me the $30. i was quite happy about that! my dr switched me to: ms contin, percocet, soma, zoloft & amitritpylne (sp wrong) and i have had very little pain in almost a week now. maybe check into the amitryptiline. (sp wrong again) he said that depression & chronic pain go hand in hand- whether i showed it or not, and the leaflet that came with the rx even said it is often prescribed for depression & chronic pain. i feel a million times better. i never really thought i was the depressed type- but i guess i was. now i have all these other things going on- i feel so much better. i'm sorry it didn't work for you. i had high hopes for it too. there was an advertisement at my PM dr office & i would read it thinking- wow, this would be great for me. when he recommended it, i was so dissapointed. oh well... everyone is different. i have a huge tolerance to pain meds. well, i wish you the best with this! a lot of people may have some ideas for you. ask around. shannon.

ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 8/17/2007 11:13 AM (GMT -7)   
I have finally gotten the patches to stick, and my doc has me on 2 25 patches (equiv. of a 50 patch) but honestly it isn't working like I had hoped. I really do not understand why!! Its a strong med and enough of it that it should be helping but I find myself in a good amount of pain still. This is SO frustrating!! I am still giving it a shot but I jsut don't get whats going on here. I am gonna call and talk to the nurse in my doctor's office and see if she might have any suggestions. It is helping but at the same time I am in a lot of pain. And the pain that is the worst is between my sholder blades....it's killing me. *sigh* I will keep with it and maybe the doctors office will have some suggestions. I will keep you all updated! Thanks for the replies!!
 
I have tried amitriptlyne (sp?) but it no longer works for me, I am on Lexapro but not for depression....its to try and help with the pain also. I was depressed for a very very long time & I know when I am depressed. I had a doctor try to tell me "maybe your not depressed enough to know your depressed" which to me is a load of crap!! But thank you very much for the advice because you are corect, depression can play a big part & many depression meds are used to help in pain management situations! Also, FYI, I take SOMA 1-2x daily and prior to the patches I was on 10mg of Percocet 3x daily so I have already tried that road. Right now I am jsut using small amounts of Percocet to manage the breakthrough pain (cause I know when I run out my doc isn't going to give me anything for breakthrough pain....hes just like that)



 ~Carina
 

"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."

-Benjamin Franklin

Post Edited (ohthepain) : 8/17/2007 12:43:57 PM (GMT-6)


painKILLER
Regular Member


Date Joined Aug 2007
Total Posts : 69
   Posted 8/22/2007 7:59 PM (GMT -7)   
Carina, is your doctor switching your patches out every 48 hours or every 72 hours?  It is well documented that most people on the Duragesic patch need to change their patches every 48 hours instead of every 72 hours.  Its pretty hard to get the patch to deliver a stream of medication for 72 hours.  If not, you may want to ask your doctor to let you change your patches every 48 hours.  When I took it, this worked for me.  Otherwise, Fentora/Actiq are wonderful for controlling breakthrough pain w/ the patch.  My Fentora works in as little as minutes.  !~painKILLER
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