"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."
Post Edited (kttn251977) : 8/10/2007 11:14:57 PM (GMT-6)
Carina: I am so sorry for what you are going through. These doctors that treat any one with pain like we are stupid, drug seeking, idiots make me want to scream! I deal with them with my mom on a daily basis. As soon as each doctor sees her meds, they completely quit helping with whatever we are there for. They want to blame everything on her pain meds. It is such a horrid cycle. If you have meds to take for pain, then those meds must cause every other problem you have. Nothing else! At least according to most docs!
Anyway, I am hoping Rehab Nurse will chime in - she will be a great resource on how to handle this. I think that TDOern has great advice - I wouldn't dare go in and tell your current doc you are leaving until I had another doctor in place and ready to accept you as a patient. The last thing you need is for your current doc to say "fine, see ya" and then you can't get an appointment anywhere for weeks, etc. Just a thought but unfortunately (and this makes me sooooo angry), these docs have all the power. Your pain (and life) is in their hands so sometimes it seems you just have to play the game.
Good luck and know that we are all thinking about you. I am sure that most of us have been in your shoes at one time or another.
Ok, so it went better than I had expected. He did try to inturrupt me & talk over me but I simply told him to stop and listen to me, which he did. Before I got to the part about wanting to change my meds & perhaps try the patch HE SUGGESTED IT! Go figure!! I finally get up the courage to ask for what I need and he beats me to it. lol So he prescribed the Fentanyl patch at the lowest dose and said we would try that out and adjust the dose if needed. (YAY!) He also stopped my Flexeril which I take in the morning, he said he doesnt want me to be a zombie so we were trying to get rid of any meds that we could, unfortunately that was the only one we could stop. He refused to write me a scrpit for all the MRI's I wanted b/c he doesn't think it's necessary.....I personally don't understand what the big deal is, it wont hurt me & he doesn't have to pay for it but he did agree to write me a script for a cervical MRI which I really think I need. So, for the time being he isn't fired! lol I put the first patch on last night, the nurse in his office told me to put it on my chest, and it fell off.....I even put medical tape around the edges but it came off in my sleep.....figures lol. Oh....and so no one worries.....I had Chris drive me to work and my friend Wendy will drive me home (and hopefully to get soem lunch lol)! :)
After that I went to my Rhumetologist appointment and got my x-ray results. He said I have "significant" artritis in my neck & one of my vertebre has slipped slightly (ummm....aren't they not suposed to do that???). He also thinks it's a good idea to get an MRI done to see if anything else is going on there. He also wanted to up my Lyrica dose again but I asked that we wait until my body has adjusted to the Fentanyl, if I am having side effects or a reaction from one I'd like to know which one.
So, thats all she wrote! Thanks to everyone for their support and good wishes!! *hugs*
Well the first day on the patch was wonderful (Tuesday)....I felt like a totally different person and it was GREAT. But by the end of the day I could feel the pain start to creep in & then late that night it was unbearable again. I ended up having to leave work 1/2 way through the day on Wednesday b/c the pain was so bad. It's this one spot, like at my sholder blade level and it feels like someone is stabbing me and it hurts right through to my chest then up my neck & through my jaw....all on the right side. I've had this pain a million times & it has been the cause of most of my ER trips. My doctor refuses to send me for an MRI of this area.....don't ask me why b/c it makes no sense at all but I am going to have another of my doctors write the script. So i paged my doc last night and he told me to apply a 2nd patch, which I did at 9pm last night. (and I wrote the dates on them so Id know when to change them lol) But as I sit here I am feeling the pain start to come on & I just don't get it!! I've got ALOT of Fentanyl going through my system right now.....why wont anything work???? I just don't know what to do. I do feel better than before the patches but I don't get hoe this incredibly strong pain is breaking through it all or how to stop it!! Now, I've only been on the patch since Monday night so I am hoping that it will build up in my system more & start to be more effective but man, this is killing me!!
As for getting the patch to stay on I am seem to be fine now with the medical tape around the edges. I did call the manufacturer and ask about those things that go over them but they said they do not advise them. They said that the brand name Duragesic manufacturer is the one will advises those. They told me not to cover the patch completely with anything & that this patch works a little differently than the others in the way the medication is dispersed and covering the patch completely can cause the patch to dispense the medication too quickly.
Thanks again to everyone for their support & input, I can use all the help I can get! ;)
Post Edited (ohthepain) : 8/17/2007 12:43:57 PM (GMT-6)