Anyone had good luck w/ a

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Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 8/20/2007 5:52 PM (GMT -7)   
Hi Friends!
 
Just saw my PM doc today about my on-going SI pain (had nice steroid shots 2 weeks ago that worked a little).  He wants me to try using some "Lidoderm" 5% lidocaine patches, locally, @ the SI joint to tide me over until my next shot in Sept.
 
Any thoughts?
 
How well does it "stay put" during the day? (I teach 2nd grade so I'm active...)  Also, anyone have any side-effects?
 
Thank you so much!  Hope everyone is doing OK tonite, or at least doing what you NEED to do to feel better! :)
 
~Lakeside

2 lumbar surgeries for L4-L5-S1 cystic tumor & post-surgical CSF leak complications. (Fall of '06). Central canal stenosis, severe degnerative arthrosis, grade 1 (21% shift) spondylolisthesis @ L5-S1 area, sensory & nerve function loss & radiculopathy in r leg/foot, on-going facet pain, sacral/illiac pain, lots of epidural fibrosis @ L5/S1.


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 8/20/2007 11:11 PM (GMT -7)   

Dear Lakeside,

I use the Lidoderm patches on my legs and you will  be  quite surprised at how well they work at cutting down pain.  I use Fentanyl 75 mg patches and Dilaudid orally and I was able to decrease some of my pain medication by using the patches.  Getting them to sit is another thing.  If you can tolerate paper tape, I just put a piece of tape over the center of them = just taping them in place.  Remember it is 12 hours on and 12 hours off.  Good luck.


Stella Marie

Dx:  Rare progressive neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more).  Added improvements:  Intrathecal pump and a spinal cord stimulator..

 Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Fentanyl patches, Lidoderm patches, Dilaudid, Fentora and Zofran


SophiaBella
Regular Member


Date Joined Aug 2007
Total Posts : 150
   Posted 8/21/2007 4:00 AM (GMT -7)   
Dear Lakeside,
 
I have tried those patches for siatica pain, and tailbone pain and it didnt work at all.  I mean it was like nothing at all was on me.  I gave the entire box to my mom in law since she also had a script for them, but those suckers are expensive!  She didnt get any relief at all either.  I think it may have an effect better if you are skinny?  (I am not that fat, but I mean maybe skin and bones skinny) They didnt stay on well either.  Sorry.  Perhaps they will work better for you!  If they dont perhaps the doc will give you something else?  If that does not work, you can always try Icyhot, or Capzison (sorry thats the best I can do on the spelling of that one, it now comes in a roll on, which is great because YOU DONT WANT IT ON YOUR HANDS) It is made from red hot peppers believe it or not, and it feels like a sunburn at first.  (test your skin first, my hubby had a bad reaction and it really burned him, we had to wash with dish soap and water, and then cold aloe I keep in the fridge) The stuff works if you can tolerate it, and it works on and off for a week or more giving deep heating relief. The sunburn feeling goes away once it gets down into the muscles.  I had to prick it with a pin to get more out of it and rub it on the skin.
Hopefully the patch will actually work for you.  Good Luck!  Sbella
Fibromyalgia, Chronic Myofascial Pain Disease, Herniated disc, c-5-6, disc bulge at T8-10, T9-10, Arthritis in my back, Diabetic II,  Restless leg syndrome, Severe Depression, Anxiety disorder, bladder issues, stress induced asthma, carpal tunnel, Frozen shoulder, AND BAD SPELLING DISORDER! (haha)
******************************************************************
"What does not destroy me, makes me stronger"
 
 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/21/2007 5:47 AM (GMT -7)   
Read the postings on "pharacists gave me bad advice" it's about the patches. I used the lidocain patch and it helped but would start falling off after you use the restroom (pulled your pants down) and mine is for lower lumbar area too (S1 thru L-4) Spinal stenosis, ddd and osteoarthritis. Also, becareful out in the heat with those patches heat will make you sick. Best of luck to you and hugz........

holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/21/2007 6:20 AM (GMT -7)   
I was prescribed the lidoderm patch for neck pain and can't say that it helped me. I had the problem with it fallin off as well so I used medical tape to keep it on. Good luck!

Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 8/21/2007 6:57 AM (GMT -7)   
Good Morning Friends!

Thank you all for your replies! And for sharing your expertise! I just, now, put a big Lidoderm 5% patch on my L5/S1 area--will be very interested to find out how well it works today! Cool & damp here, which makes me feel worse than usual, so this will be a good "test"!

Yes, if you're skinny, it might work better, my PM doc said. (I'm 5'10" and 115) That was one reason he felt the patch could be an effective tool for me against the level 5-6 CP I usually have in that area. "Not much tissue there for it to transverse!" he said. Hope he's correct!

Thank you all again! I welcome any/all responses--you are all so generous w/ your advice---much appreciated!

~ Lake
2 lumbar surgeries for L4-L5-S1 cystic tumor & post-surgical CSF leak complications. (Fall of '06). Central canal stenosis, severe degnerative arthrosis, grade 1 (21% shift) spondylolisthesis @ L5-S1 area, sensory & nerve function loss & radiculopathy in r leg/foot, on-going facet pain, sacral/illiac pain, lots of epidural fibrosis @ L5/S1.


ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 8/21/2007 8:57 AM (GMT -7)   

Hi. I use these patches ALOT now. At first I didn't think they worked at all but now they do help to minimize the pain, they wont do it all on their own but you know that it is a combination of lots of things to get us to a functional place. I would recommend using the paper tape (medical tape) and taping all around the patch...all 4 sides....to get it to stay in place the best & for the longest. Thats what I do! I do usually have to have someone do this for me on my back....im not quite that flexible lol. I am actually going to ahve someone put one on me as soon as I am finished typing this post. :) Good luck...please let us know how they work out for you!!!

Also, have you tried things like Icy Hot patches or Therma Care patches (the heat ones?) I found relief from those as well....especially to use during the day while I am at work.

 


 ~Carina
 

"Any society that would give up a little liberty to gain a little security will deserve neither and lose both."

-Benjamin Franklin


Lakeside
Regular Member


Date Joined Jun 2007
Total Posts : 138
   Posted 8/21/2007 6:47 PM (GMT -7)   
Hi Everyone!

Thank you again for all yopur advice & support of my "trial" of the Lidoderm 5% patch today...just took it off (ouch!) & must admit my over-all pain level, at that awful SI joint, was less today....placebo effect or the patch! Still at about a "4" but that's "low" for me! :)

Heck, who cares?! Something worked, at least for today! May have been the patch or the asprin or the PT or the weather or the tides, etc....but any port in a storm, eh?!

Nothing works all the time, nor consistently. There's the pity of this whole CP thing....nothing is reliable anymore, nothing (like your body...!) can be counted on, nothing is exempt from capriciousness....from whim or sudden change or unexpected disaster....

But for today, SOMETHING worked...! I'll just assume the Lidoderm patch was an accomplice! :)

For tonight, I'll trust my usual 15 mgs of Restoril, 5 artfully-arranged pillows & 2 cats...zzzzzzz's ahead....

hugs & blessings to you all, as sleep knits up the raveled sleeve of care....& use what you must to get there...

~Lakeside (& the Lake is quiet tonight also)
2 lumbar surgeries for L4-L5-S1 cystic tumor & post-surgical CSF leak complications. (Fall of '06). Central canal stenosis, severe degnerative arthrosis, grade 1 (21% shift) spondylolisthesis @ L5-S1 area, sensory & nerve function loss & radiculopathy in r leg/foot, on-going facet pain, sacral/illiac pain, lots of epidural fibrosis @ L5/S1.


stayingafloat
Regular Member


Date Joined Jul 2007
Total Posts : 87
   Posted 8/22/2007 4:09 PM (GMT -7)   

Hi Lakeside,

 

I'm glad something made you feel better, even if your not sure what it was exactly.  Just wanted to say hi, I have been out of touch for a while had my surgery on Monday. I don't know much about the patches, but when I had SI pain, I did stretches with a yoga ball which helped a lot.  I don't know if you have tried it yet, but it might be able to help you.  You'll want to check with a therapist to see what exercises would help you.   Keep your head up something will work for you soon, enjoy the peace at the lake it sounds beautiful. yeah

 

Take care,

 

Afloat

Post Edited (stayingafloat) : 8/22/2007 5:12:27 PM (GMT-6)

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