Need Some info Plz...

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Stmll
Regular Member


Date Joined Apr 2007
Total Posts : 106
   Posted 8/21/2007 1:57 PM (GMT -7)   
Hi All,
 
I was wondering if you could help me with something, I have not been having very good pain control, lots of BT pain, I am on the 50 mg of Fentanyl Patch,and Percocet 5 & 325 for BT pain,plus we tried Tramacet 37.5, I am going to the Dr.s tomorrow to talk to him about improving this, I guess my question is what would be next after Percocet and Tramacet, I was looking on-line too see if there was a Opiod Pain Scale for meds, Unfortunately with my DR when I say "I need someting stronger" he says "sure but I don't know what to give you", so I would like some options, I know everyone is diffrent and reacts better/worse to certain drugs, but with the Dr I have I need to give him some kind of name, I know, I know, I need a new Dr. But if someone was on Percocet, and it is taking me 4 of them at a time to get any kind of relief, and really it isn't even alot, what would be kind of next on the scale, any info would be greatly appreciated...
Thanks Everyone
Take Care
Tracey
DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 


Circa1988
Regular Member


Date Joined Aug 2007
Total Posts : 90
   Posted 8/21/2007 6:08 PM (GMT -7)   
Hi,

Sorry you have not been able to control your pain very well. In response to your question there are lots of different opioids available to treat pain. From simply a higher dose of your current med, like Percocet 10/325, to other medications like dilaudid. Dilaudid (hydromorphone), Morphine, Opana (oxymorphone), and Roxicodone (pills that only contain oxycodone and go up to a higher dose than percocet) are some of the options available for your breakthrough pain. Opana and Dilaudid are both extremely powerful medications and asking for them by name may cause a doctor to think that you are med seeking, they also may be too strong for you anyway. I would say that if you must suggest a med to your doctor that you suggest either a stronger form of percocet, or Roxicodone and see what he thinks. I think these may be good suggestions because they are both forms of oxycodone which you are already on.

You may also want to consider looking into none opioid forms of treatment, though I dont know what your pain is so I really dont know what may help you. I wish you luck and hope you find something that works for you.

Stmll
Regular Member


Date Joined Apr 2007
Total Posts : 106
   Posted 8/21/2007 6:32 PM (GMT -7)   

Thanks for your input, see this is why I wanted to ask some info, last time I was in too see the Dr, I asked him if I could go up in meds with the Percocet as they are not working, he told me that Percoet DO NOT come any stronger, and that's why he gave me the Tramacet 37.5/325, well those really do not work well either, I do not get high from my meds, nor do the meds seem to be taking that edge off unless I dbl up on them, which leaves me short, My Nephrologist told me that I could take the strongest med known to man and unfortunately I would still have BT pain with this awful disease LPHS, I am not looking to be comatose I realize I will have to suffer through some pain but this amount is too much, But I just wanted some ideas of meds as case in point he told me percocets do not go up in strength, just so I don't look like an idiot, I can get that strength in Canada?, so any ideas, and I have no problem going in there and asking for them by name, My husband asked for my patch by name when the Oxy's were not working anymore and he gave them too me, he says " Well yes Steve I think that would be a good Idea"..the guy is a utter idiot, but unfotunately in Bracebridge this is the best I am going to get as no Dr.s are really accepting new patients, so any ideas would be great..

Thanks

Take Care

Tracey


DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 


Circa1988
Regular Member


Date Joined Aug 2007
Total Posts : 90
   Posted 8/21/2007 6:50 PM (GMT -7)   
Hmm... I didn't know you are in Canada, I am not sure if they are available there. You can certainly search the internet, Im sure there is somewhere on there that will say if they are or not. You are sure that there is no way for you to get to a better doctor like in a pain clinic or something? I sure hope that this works out for you and you can get relief. Ya those Tramacet are far weaker than the percocet, a lot of people say they are even weaker than Codiene, they are about at the bottom of the opioid scale (if you even consider tramadol a opioid, it is unique, and some people dont even say it is an opioid). They do work for some people though I will say.

But good luck.

Stmll
Regular Member


Date Joined Apr 2007
Total Posts : 106
   Posted 8/21/2007 7:15 PM (GMT -7)   

I have been to a pain clininc and they say they really can not help me, as there is no cure for this and just pain control and I can rcv that from my DR, I go back down to London University Hospital next week and get tested too see if I can have this surgery, an Auto-transplant, it is approx 8 hrs and they will remove my Kidney and relocate it in my abdomen, I will still have the LPHS but the pain signal will not get through hpoefully!!, it is not guarented to work nor is it a permenant fix, but I am willing to try anything at this point, and yes they offer 10 Percocet in Canada as far as I can tell on the internet, funny he told me nope they don't go up, should make for an interesting afternoon tomorrow...

 Thanks

Tracey



DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 


Circa1988
Regular Member


Date Joined Aug 2007
Total Posts : 90
   Posted 8/21/2007 10:33 PM (GMT -7)   
Well good luck with your surgery! I really hope that works out for you. I guess you figured out if they offer the Percocet 10s in Canada. Hopefully it goes well when you talk to your doctor and you are able to find something that better controls your pain. Make sure you don't insult him when you tell him that there are larger Percocet, that might make him less inclined to help you out.

Wish you luck with all of your endeavors!

Stmll
Regular Member


Date Joined Apr 2007
Total Posts : 106
   Posted 8/22/2007 8:01 AM (GMT -7)   
Thanks, I know, I really have to make sure I don't insult him, sometimes it is just so hard, my hubby can't be with me today, he usually comes and everything goes smoothly, he's a chavunist pig...when I go he always try's to change my meds and play dumb, like he has no clue what to give me, I will keep you posted I go at 4:00 today and I will try and bite my tongue,
Hope everyone is having a good day!!
Take Care
Tracey
DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 

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