Arundinaria, How wonderful to have someone like you who at least knows the system to advise people who are not thinking straight. Pain can make your mind go for sure. For those of us at the point of not knowing if we should apply for SSI , it is nice to hear that we should do it and see what happens. We read and see such horror stories how no one gets it which just makes us wait longer
Rehabnurse, My heart goes out to you. You certainly don't need anymore on your plate. How lucky you are to have a supportive family. Some people don't. I would take the advice given and file asap. We are here for you to listen as you go through troubled times.
Hi Rehabnurse: Just read your post and I wish I was there to give you a big hug. I know that things look impossible right now but tomorrow is a new day (and the day after, and the day after that, etc.) and things will get better. The last post about going to the SS office is good advice. Please do it. Your kids need you! You are young and even though, right now, it seems that things will never get better, they will! Just keep putting one foot in front of the other and eventually, you will look back and know that you were strong enough to make it through. I know you have a caring, lovely heart - you have to have that to have made it through nursing school and then while you were nursing. Believe me, I know what it takes to be a nurse - especially to adult patients - I admire anyone that can take care of "big" people.
Anyway, I wish I had some good advice. All I know is that I want you to understand that you are cared about. I have been worried about you for a couple of weeks. Please hang in there and if you need to talk, just email me. I think you can just click on my screen name here and it will take you to my email. If not, post on here and I will post my address.
Hang in there, kiddo. I will pray that God surround you with his love and hold you in his hand. Remember, at times like this when you feel like there is no one there for you and there are only one set of footprints in the sand, it is because God is carrying you in his arms!
My heart goes out for you at this time. From your description, it sounds like you feel that the entire world is closing in on you from all sides. It must be scary and difficult for you but have faith, as there is a light at the end of the tunnel. First of all, you need to stop mentally punishing yourself for moving in with your parents. When all is said and done at the end of the day, family is the most important thing we have. Just as you want to protect your children, I am hoping your parents are of the same mind set and want nothing more than to help you (their daughter) and your children. There is nothing wrong with needing your family in difficult times.
I am slightly older then you are, but we share many of the same experiences. I divorced my first husband of 10 years when my child was just 3. I also went though the non-child support payments, limited visitation, and an endless string his girlfriends, most of which were just over legal age and where nothing but novel play toys. I cringed when my child has to spend time with them. In the long run, the divorce was the best thing I even did for myself and my child. After several years, I was fortunate to meet and marry a wonderful man who cares for me and my child with love and respect.
I worked at a professional career in the medical field for about 20 years. I was off work for two years on a medical leave and then was required to filed for SSDI online. I was approved for permanent SSDI within about one year. I did have a diagnosis of a rapidly progressing non-curable neurodegenerative disease. The hardest part about being on SSDI is that I feel useless and unable to give back to society. There is something very rewarding and satisfying when you work with people. There are very few volunteer opportunities that offer that same feeling. Also keep in mind that if you are awarded full disability, the money is not large, so you may be faced with many financial difficulties for years to come.
Caring for children is extremely difficult when you are of the best of health, and it gets more difficult when illness, injury and pain play into the picture. It takes not only physical and mental strength, but also a strong support system from those around you and the financial means to raise your children. When any of those items are lacking, the process is much harder. Before filing for disability, make sure to that you review the possibility of any other health care positions you could do, instead of direct patient care nursing, you might be eligible for that may have less physical demands. Just remember you are not alone in all of this. Many of us have walked a similar path and we are always here to listen and offer you support. Take time to make the right decision. Talk to friends, clergy or a counselor to help you sort out you feelings. Don’t try and be super woman and do it all by yourself.
Dx: Rare progressive neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more). Added improvements: Intrathecal pump and a spinal cord stimulator..
Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Fentanyl patches, Lidoderm patches, Dilaudid, Fentora and Zofran
Post Edited (Stella Marie) : 8/27/2007 11:20:40 PM (GMT-6)