Dx: Rare progressive neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more). Added improvements: Intrathecal pump and a spinal cord stimulator..
Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Fentanyl patches, Lidoderm patches, Dilaudid, Fentora and Zofran
Thank-you for your very kind words, I have done alot of praying, thinking, researching, and to be honest I just don't have a good "feeling" about it, I was talking to another sufferer with LPHS and she had advised me that she heard of someone doing Chemoneurolysis and he has bee pain free for about 3 years, my gosh!! I would give anything to be pain free for any amount of time, I still cant believe that this is happening to me, and my options for procedures for pain are not that great..lol..I finally have a great DR. he has actually been educating himself on LPHS, and for pain control we are going to try the Fentanyl Patches in higher doses, and if does not work he is going to switch me over to Methadone, so at least he is trying to help me, unlike my last Dr, that many of you im sure remember, but I will keep you all posted on where and how I go for pain relief, I wish all of you a pain free day, and as comfortable as possible, Chronic Pain is an awful disease on it's own, let alone all the other underlying problems we all have...
Post Edited (Abilene) : 3/6/2015 10:29:20 PM (GMT-7)