Post Edited (Circa1988) : 9/11/2007 12:26:49 PM (GMT-6)
Hi. Wanted to respond b/c sounds like were in a similar situation; I had to move to the CP forum for support b/c, it seemed to me, that chronic pain was discussed very little on the UC forum, even though CP is common w/CD&UC. Anyway, several years ago MD gave me Vicoden (as needed) to help w/the pain (same as Lortab) and it worked for me. Last year had a major flare and had to move up to something stronger Endocet 5/325 (same as percocet) take as needed. Recently MD said that CP wasn't managed well and added Oxycontin SR 10mg X2 day, as well as, the Endocet for "breakthrough pain." See, it wasn't that I built up a tolerance, it was that I wasn't managed appropriately. You don't want to wait until the pain gets unbearable and then you take a pain reliever, not as effective. A constant, extended release of medicine is best, especially w/CD&UC b/c our illness is very unpredictable; you know, o.k. in a.m. and by 7 p.m. you can have bad cramps, diarreha for hours, etc. I also suffer from chronic stomach pain, headaches, fatigue (all related it seems)--just posted yesterday on the IBS forum about it, looking for other sufferers. If you're not already aware by others posts, getting pain meds from doctors is, hummm, challenging to say the least, GI doctor's are famous for not giving them, so I went to a pain specialist for three years and now my general practitioner supplies them b/c of my extensive history and b/c he's very compasionate. Good luck.
Dx: Rare progressive neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more). Added improvements: Intrathecal pump and a spinal cord stimulator and a new brand new power wheelchair with shiney horn,.
Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Fentanyl patches, Lidoderm patches, Dilaudid, Fentora and Zofran
Post Edited (Stella Marie) : 9/12/2007 3:45:07 PM (GMT-6)