do any of you need to use a scooter?

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rehabnurse
Regular Member


Date Joined Sep 2005
Total Posts : 169
   Posted 9/18/2007 1:16 AM (GMT -7)   
hi everyone. i am still waiting on the papers i am supposed to be served (if anyof you remember that)so I can't update on that. i left a message on the guys answering machine, but still not service of papers.

anyway, my pain has gotten progressively worse as i walk. initially my pain hurt the worst when sitting, although it still hurt in all positions. but recently, i am in tears just walking down the hallway, or having to walk through the grocery store. i mean, it brings me to tears to have to walk more than a few feet. my mom wants me to use a scooter, but i am reluctant. i know they help, cause i did use one at cedar point this year, cause there was NO WAY i could walk around that whole park.

i am reluctant because i have already gotten enough comments from people saying i should be ashamed of myself for "abusing" equipment meant for handicapped people. also, when i use my handicap sticker in my mom's car, i have had elderly people stop behind me and yell at me for taking the spot (even if there's a dozen other handicap spots). it's so frustrating that i don't LOOK disabled. no one seems to understand that one can have a disability and NOT be missing a limb, be 100 years old, etc.

i have considered going back to the surgeon to see if i could get a MRI done and see if anything has changed. I don't know what good it would do, but i have really been wondering if something else is wrong. the pain is the same, but it is just getter worse. it hurts all the time, but now walking is the worst position in relation to sitting. i don't know. all i know is i am only 30, and here i am not able to work, or walk, or sit, or anything, and having two young kids not understand how sick i am with the cancer and stuff. i am so TIRED.

anyway, i just wondered if any of you have had to use the scooters in the stores, and if you've been given attitude by someone because you're using it and you don't "look like you need it". wouldn't it be nice if we could just touch someone and they could feel our pain??? would make people a lot more sympathetic i would imagine.
DX: DDD, DJD, HNP L2-S1, OA, OP, intractable pain, severe asthma, COPD, migraines, endometriosis, uterine ca, PCOS, metabolic syndrome, chronic epstien-barr virus, fibromyalgia, depression, anxiety, PTSD, avoidant personality disorder, social phobia, SLE, connective tissue disorder

MEDS: MS Contin 100mg q 6; MSIR 30mg q 6 PRN; Celebrex 200mg QD; Actiq 600mcg q 6 PRN; Lamactil 25mg BID; Klonopin 0.5mg BID, Cymbalta 60mg QD;
Ventolin 2 puffs q 6; Advair 500/50 one puff q 12, Multivitamin


whitfield
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 9/18/2007 5:40 AM (GMT -7)   
Is the handicap sticker yours or your moms'?  If it is yours, then I wouldn't let what other people say bother me.  I also have a handicap sticker and use it when I feel I can't walk as far as is needed.  Regarding the scooter--I did use one for about a year (I highly recommend one called "Hoveround")--Needed when I was having an M.S. Flair-up--before I decided to go through intensive Cytoxin Chemotherapy in 2002--Worked as far as MS symptoms, but I think also caused my pancreatitus.  I hear about other handicapped people being treated unfairly by the public because they cannot see chronic pain, but so far have not experienced it myself--Although, many people do say--"You look great!"--Only we know how we feel--can't let other people dictate our lives--we live the life we choose--IMHO(Just starting to learn the computer shorthand--means In My Humble Opinion--hehe!)  Hope things work out for you---Roger
Multiple Sclerosis
Chronic Pancreatitus
 
 


rehabnurse
Regular Member


Date Joined Sep 2005
Total Posts : 169
   Posted 9/18/2007 6:00 PM (GMT -7)   
I'm sorry I was not clear. The sticker is MINE, not my mother's. However, I am driven usually by her, so it stays in her car. I hope that makes sense. Of course I would not use a handicap sticker that wasn't mine.

I don't know why my pain has gotten worse when I walk,, but I intend to see if I can get a referral back to see my original surgeon and see what he says. Or perhaps asking my pain doctor. I can't stand the pain, it is just horrible. Even if I only have to walk down my hallway, by the end, I am in tears.

I only used the scooter once, and it was like a miracle how I didn't have to deal with the pain. However, I had to deal with nasty looks, nasty comments, rude people of all ages...the young to the old. I guess no gains have been made in how the disabled are viewed, which is a shame. I know about the Hoveround...I am a RN and many of my patients, especially the ones confined to a facility, used them with great success.

It's just hard for me to get over the fact mentally that I am not a young, fit 30 year old. I am an 80 year old disabled person, in chronic pain, cancer-ridden lady in a 30 year old body. That is hard to swallow. It has been very very difficult for me to "get over".
DX: DDD, DJD, HNP L2-S1, OA, OP, intractable pain, severe asthma, COPD, migraines, endometriosis, uterine ca, PCOS, metabolic syndrome, chronic epstien-barr virus, fibromyalgia, depression, anxiety, PTSD, avoidant personality disorder, social phobia, SLE, connective tissue disorder

MEDS: MS Contin 100mg q 6; MSIR 30mg q 6 PRN; Celebrex 200mg QD; Actiq 600mcg q 6 PRN; Lamactil 25mg BID; Klonopin 0.5mg BID, Cymbalta 60mg QD;
Ventolin 2 puffs q 6; Advair 500/50 one puff q 12, Multivitamin


mexximelt
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 9/18/2007 6:13 PM (GMT -7)   

I have never used a scooter for my current back problems but 2 years ago I had surgery on my ankle.  I was off for 6 weeks and my boss said if I would come back (still not healed enough to walk at work all day) he would get me a scooter. I absolutely loved it.  It was great and saved me from being in pain the rest of the day.  I would do it again in a minute.  Forget what anyone thinks!!!!!!!!!!!!!!!!!!! You will never see those people again and if they give you dirty looks you don't want to see them again.  I have also been through the dirty looks for the disabled parking place but I was never asked by anyone why I have one if I don't look "disabled" and it was a good thing.  The people I care about in this world would not ask and that is all I need to know.

 

GET ONE!!!!!!!


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/18/2007 11:14 PM (GMT -7)   
I have never used a scooter but I did have to have a wheelchair for a year.I so relate to the disability sticker.I can't tell you the time's that elderly people have came up to me and told me that I should be asamed of my self.There was one time I was going in to wal-mart and this elderly women that aproched me and hit me with her purse and demanded that I move to another parking spot.I was at the time so swollen up that you could'nt tell what was my feet,ankles it was really bad but any when I started to get out of my car she looked down and seen my leg's and she looked at me and said I'm so sorry please forgive me.I told I would let it pass but next time she needed to stop and think about what she was doing.So you are not alone and I and a whole lot of other people understand as well.But just don't let it get to you.
Curley
.........
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 9/19/2007 11:52 PM (GMT -7)   
I have used the scooters and really like them. Yes, I have handicap plates on my car and even with a portable oxygen tank strapped on and a cane, I still get the looks, so I just given the looks right back. I am real good at that, ask my husband, lol. I guess because we are not blue hairs yet, we are not suppose to park in the handicap or use their darn scooters, lol. Susie

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